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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
User Blogs
Could the first drug for ME/CFS be a chemotherapeutic drug? That would sound like a long shot at best but the fact is a two physicians in Norway are having surprising success with a drug originally developed to treat cancer.
Their Story - Dr. Fluge and Dr. Olav Mella of Haukeland...
I lie quiet in my bed.
Nativity in there,
little hard heads butted up
of the Divine
and his folks;
shepherds' hooks,
crowns of the kings;
poke of a hoof and a stick and straw
and roof peak;
and too many points
of a terrible star.
Chronic Fatigue SyndromePatients Run First-ever Ad in The Washington Post
--Possible New HIV-like Retrovirus in Blood Supply
http://www.prnewswire.com/news-releases/chronic-fatigue-syndrome-patients-run-first-ever-ad-in-the-washington-post-111363234.html
CORAL GABLES, Fla., Dec. 6...
ME/CFS is hitting the lawmakers in Washington DC right in the chops tomorrow with a provocative half page ad suggesting that everybody, healthy or not, is put at risk when the federal government ignores ME/CFS. The ad has been the fruit of months of work from people with ME/CFS, the MWPCA...
Ad Winner, Publication Monday Posted by tina on December 5th, 2010 at 4:12 am
WASHINGTON POST AD WINNER IS THE VIRUS AD - IN WASHINGTON POST ON MONDAY 6 DECEMBER 2010
We have much pleasure in announcing that the Virus Ad will go forward for publication in The Washington Post. It will...
Anything normal I do, screaming pain flare. I am so sick of this. I can't do one normal thing in life without having severe, screaming pain all over later on.
I went foodshopping today. I had to. When I run out of stuff and start eating badly, I get worse. And I was out of money till...
The recent paper by Christine Kozac traces the origins of the XMRV virus and she kills the contamination theory dead. She pretty much follows the MLV virus from around 8 to 12 million years ago or MYA to the present and shows how XMRV arrived in it's present form. The three things that this...
http://mcwpa.org/
We have hit the magic number and our Angel donor is sending off the money for the matching $1,000. Thank you all for donating and joining!
Please!!! Continue to join, get friends to join, and donate if possible. We must continue with this major media campaign and keep up...
My aunt in NY, she's kind of a step aunt, not blood related. She officially has CFIDS now. She was suffering from POTS for a long time to the point of falling down the stairs a few times from the lightheadedness and blood pressure drops. And we saw the fatigue in her for a long time. She's...
Hi All,
I am new to this Forum and so glad to find others with CFS to talk to. I am 46 (birthday yesterday) and have had this for 21 years. About a year ago I went into a bad downward spiral and have not made much headway since.
I believe that I am going through peri-menopause and that...
I did make it for Thanksgiving dinner with my friend. She came and got me and we went for a really nice free church dinner. Some of her friends were there and it was nice to finally be out with people. This was the first time I've been able to go out to dinner for a holiday in years.
The...
Happy holidays everybody. Just thought I would post a healthful recipe I just discovered recently. It's for homemade sauerkraut. Enjoy!
ANd the reading to go with it if you choose...
"Among foods, the brassica family, i.e. cabbage, broccoli, and Brussels sprouts, contains chemical...
(originally posted at Sundog Tales)
An early snowstorm and cold front brought some amazing weather this week. This time I decided to capture it on film!
Last week Planet Thrive <a href="http://planetthrive.com/2010/11/mcs-survivalist-guide-part-1/">published an article </a>I wrote on how...
From my blog, Dreams at Stake
When I was a little girl, I remember often being told by a variety of adults that "life is hard." This was most typically said when I complained about something I saw as terribly unreasonable or unfair, such as not being able to eat dessert without first...
Time to Vote for Ad for ME/CFS Worldwide Patient Alliance (MCWPA)
Posted at 10:58am on Tuesday, 23 November 2010.
It's time to vote for your favorite Ad.
Go here to see instructions and copies of the ads: http://mcwpa.org/2010/11/ads-ready-fo...
If you have problems with access to...
Are you dreading the holidays too? I mean, it's the most wonderful time of the year.....right? :Retro eek:
When I was younger, I always loved the holidays. Even when I had CFS in my 20's. It was not easy because that was when I had just become ill. I would become down because I would...
(Dr. Friedberg is an intriguing figure; a psychologist questions the effectiveness of CBT and who, as President of the IACFS/ME, has taken the CDC to task for beginning CBT trials yet someone who is also believes that pacing and 'stress management' can pay real dividends for some people...
(Marly Silverman is the co-founder of PANDORA, a Florida organization devoted to improving the lives of people with ME/CFS and other NEID's (neuroendocrineimmune disorders). Marly granted permission to post her blog here.))
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If accepted [S 510] would preclude the publics right to grow, own, trade, transport, share, feed and eat each and every food that nature makes. It will become the most offensive authority against the cultivation, trade and consumption of food and agricultural products of ones choice. It will be...
I have toxoplasmosis in my eye i was diagnosed in 2007 i had gone completely blind in my right eye and didn't know what was going on so i went to the emergency room and was promptly sent to a retinal specialists who told me i had a very severe case of toxo in my eye. since then it has...