Jadzhia
Senior Member
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- 136
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- England, UK
That's wonderful news! I have to say I have had no improvement re histamine and oxalate problems, so I must still be missing one or more pieces of the jigsaw.
Very noticeable improvements in brain fog using Dr Greg Russell-Jones's transdermal B12 oils (which provide a similar dose to B12 injections)
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Yes I am pretty sure it's because of the protocol, as I tried 2 or 3 dozen other things in the last 2y & none of them did much.
I don't know where I was on the scale. But I was sleeping 11-12h/day & often found it hard to focus (brainfog). I went thru cycles of worse & better weeks.
I don't know where I was on the scale. But I was sleeping 11-12h/day & often found it hard to focus (brainfog). I went thru cycles of worse & better weeks.
I'm not fixed yet with OHS - but am definitely improved. The days of fanatical eating & ridiculously restricted diets are behind me.
hey could you send me your name on Facebook by private message and I'll ask the admin ?
The Facebook group is called "Understanding B12 Deficiency".
Jadzhia
Senior Member
- Messages
- 136
- Location
- England, UK
The group isn't 'hidden' - it just won't appear in a search when the group is archived. That happens for 3 or 4 days of the week (definitely archived at the weekends), so if you can't find it one day, check the next and you will eventually find it!
This is what Greg Russell-Jones' B12/B2 protocol yielded me in the six months from Jan 1 till June 30:
(Slight update at the end.)
(You don’t realise how much things have changed till you sit down & do a list.)
Mind:
OCD (songlines going round my head): constant before, now zero
Anxiety: 20% less
General mood: 20% higher
Anhedonia (was occasional): Gone
Mental processing, memory: Not changed (yet?)
Autism: Social skills tons better. Am highly social, no longer introverted.
(I’m a mid-range adult autistic)
Eyes:
Itchy eyes: gone (after several years)
Blurry eyes: no change
Morning eye crust: gone
Energy/CFS:
Physical energy: 3-4 years of chronic fatigue is gone
Exercise tolerance is fine now—no PEM
Muscle weakness: Gone
Somatic sense of anemia (part of CFS): Now gone.
Sleep: Still 9.5h (but down from 12h six months ago)
Food reactions:
Reactivity to oxalate & salicylate: 70% less
Reactivity to histamine: 20% less
(I can eat almost anything I like now, other than too many ferments. No more neurotic diets.)
Miscellaneous:
Orthostatic Intolerance: Gone
Kidneys: No longer ache (The aching was during my Month 4 crash, & felt like a huge detox)
Tongue: No longer furry! Pinkest it’s been in years
Psoriasis: No better
Fine bodywide tremor: This seemed to be a ‘symptom’ of building the B12 levels. Lasted ~2m. Now gone.
Strained hypothyroid voice: now gone
Heart arrythmias: Still have plenty—if anything more than before. (Was a bit paranoid that this is COVID vaccines. Tho on reflection it is likely my potassium getting tanked with rising methylation. Coconut water fixes it instantly.)
Peeing all night: Unchanged
Slow urine stream: Unchanged
Facial colour: huge change: from pasty to pink
Weight has gone from 63 to 66 kg in 6m (very pleasing as I have always been way too skinny)
Hunger has reduced somewhat (which means the propensity to weight gain isn’t a prob)
Insomnia: Unchanged—still quite a lot
Blocked nose at night: 75% less
Tinnitus (mostly from salicylates perhaps): ~60% reduced
Foot paresthesia (been there for decades): 90% gone
Libido: Much higher
Small benign cyst on the back on my neck has reduced in size 40%
As of Aug 4 most of the above was still in place. I had a week of PEM just now, after a massive stress episode. However my previous PEM in April lasted 25 days; & before that serious stress could lay me out for weeks or months. Now gone.
I'd say that banishing the CFS + making oxalate, histamine & salicylate foods eatable again are the big gains in terms of being able to resume a normal life.
(Slight update at the end.)
(You don’t realise how much things have changed till you sit down & do a list.)
Mind:
OCD (songlines going round my head): constant before, now zero
Anxiety: 20% less
General mood: 20% higher
Anhedonia (was occasional): Gone
Mental processing, memory: Not changed (yet?)
Autism: Social skills tons better. Am highly social, no longer introverted.
(I’m a mid-range adult autistic)
Eyes:
Itchy eyes: gone (after several years)
Blurry eyes: no change
Morning eye crust: gone
Energy/CFS:
Physical energy: 3-4 years of chronic fatigue is gone
Exercise tolerance is fine now—no PEM
Muscle weakness: Gone
Somatic sense of anemia (part of CFS): Now gone.
Sleep: Still 9.5h (but down from 12h six months ago)
Food reactions:
Reactivity to oxalate & salicylate: 70% less
Reactivity to histamine: 20% less
(I can eat almost anything I like now, other than too many ferments. No more neurotic diets.)
Miscellaneous:
Orthostatic Intolerance: Gone
Kidneys: No longer ache (The aching was during my Month 4 crash, & felt like a huge detox)
Tongue: No longer furry! Pinkest it’s been in years
Psoriasis: No better
Fine bodywide tremor: This seemed to be a ‘symptom’ of building the B12 levels. Lasted ~2m. Now gone.
Strained hypothyroid voice: now gone
Heart arrythmias: Still have plenty—if anything more than before. (Was a bit paranoid that this is COVID vaccines. Tho on reflection it is likely my potassium getting tanked with rising methylation. Coconut water fixes it instantly.)
Peeing all night: Unchanged
Slow urine stream: Unchanged
Facial colour: huge change: from pasty to pink
Weight has gone from 63 to 66 kg in 6m (very pleasing as I have always been way too skinny)
Hunger has reduced somewhat (which means the propensity to weight gain isn’t a prob)
Insomnia: Unchanged—still quite a lot
Blocked nose at night: 75% less
Tinnitus (mostly from salicylates perhaps): ~60% reduced
Foot paresthesia (been there for decades): 90% gone
Libido: Much higher
Small benign cyst on the back on my neck has reduced in size 40%
As of Aug 4 most of the above was still in place. I had a week of PEM just now, after a massive stress episode. However my previous PEM in April lasted 25 days; & before that serious stress could lay me out for weeks or months. Now gone.
I'd say that banishing the CFS + making oxalate, histamine & salicylate foods eatable again are the big gains in terms of being able to resume a normal life.
godlovesatrier
Senior Member
- Messages
- 2,290
- Location
- United Kingdom
It's frustrating when I first took it I got huge benefits for about four years and then it just stopped working and gave me brainfog instead. I also don't seem to get the same PEM buffering effects.
But I'm glad it's working for you. Wonder if b12 effects mast cell degranulation and mast cell histamine release. Could explain why you can now tolerate those foods.
But I'm glad it's working for you. Wonder if b12 effects mast cell degranulation and mast cell histamine release. Could explain why you can now tolerate those foods.
I don't know why it might have stopped working for you. You could write to Greg Russell-Jones & ask him, if you haven't done so.
My histamine tolerance is a bit better, but nothing dramatic. The main food changes are oxalate & salicylates. No, I don't know the science well, so can't explain the mechanism, sorry.
My histamine tolerance is a bit better, but nothing dramatic. The main food changes are oxalate & salicylates. No, I don't know the science well, so can't explain the mechanism, sorry.
godlovesatrier
Senior Member
- Messages
- 2,290
- Location
- United Kingdom
Well I did try every up or was it downstream metabolite in the past and every single b vitamin made my brainfog significantly worse. So yeah I'm not sure really. Oh I've spoke to Greg he can be super rude and aggressive so yeah I'll pass.
It is possible that NAC has stripped some minerals that my body needs to convert the b12 or use it. But my b12 is also quite healthy now so that may not be relevant.
It is possible that NAC has stripped some minerals that my body needs to convert the b12 or use it. But my b12 is also quite healthy now so that may not be relevant.
This is excellent news. Well done. I'm currently on about 6 months too, to no avail at all. But more importantly: have you done the full months with Dr. Greg RJones' oils, or have you switched to other forms in the meantime ? of maybe tablets for Molybdenum, or Selenium oral drops.
I've done the whole period on the full protocol - B12 as the transdermal, iodine, selenium & molybdenum as transdermal, + B2 twice a day orally.
I've used the protocol before (on & off from 2016), so possibly I had a head start.
You can always email Greg if you have problems.
Also, there is now a Facebook group you can join, which discusses the protocol - with many happy customers + quite a few with partial or no results like you:
Understanding B12 Deficiency
No clue, sorry. But there is a pretty good Facebook group on the protocol now:
Understanding B12 Deficiency
Greg generally distinguishes between blood levels of B12 & brain/organ levels. The latter are much more important, & may bear no relation to the blood level. (They also can't be measured - only inferred by observing progress with symptoms.)