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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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brain fog

  1. G

    Researchers discover underlying cause of brain fog linked with long COVID

    Researchers discover underlying cause of brain fog linked with long COVID. Study Title: Blood–brain barrier disruption and sustained systemic inflammation in individuals with long COVID-associated cognitive impairment (Nature Neuroscience) MedicalExpress.com: "The findings reported by the...
  2. L'engle

    Long Covid and brain scans

    An article that focuses on brain changes in Long Covid. Refers to several studies. It's a nice combination of personal case studies and discussion of research. https://www.statnews.com/2023/02/16/the-haunting-brain-science-of-long-covid/ I'm too exhausted to really add more. If it's...
  3. Hip

    COVID can infect dopamine neurons, causing neuron senescence, and potentially brain fog and depression. But 3 drugs can rescue these infected neurons

    A 2024 study found that SARS-CoV-2 is able to infect dopaminergic neurons, triggering an inflammatory and cellular senescence response. Such an infection in the brain's dopamine neurons may potentially explain long COVID symptoms such as brain fog and depression, an article about the study...
  4. maddietod

    Coffee, cocoa, tea, & mold

    I finally stopped drinking coffee, tea, and cocoa, and my brain fog is gone and my energy is close to normal I'm very sensitive to mold. I'm wondering if there's something in the drying/fermenting process that creates allergens that maybe we don't know about. Tea is by far the worst, and I...
  5. Hip

    Long COVID "brain numbness" versus ME/CFS brain fog

    Since catching COVID just over a year ago and developing some long COVID on top of existing ME/CFS, I've found that whilst ME/CFS gives me brain fog, long COVID for me seems to produce what you might call "brain numbness". This brain numbness feels like having your brain mildly anaesthetised: I...
  6. ChookityPop

    Anyone start squinting, have burning eyes and burning brain after straining your brain = brain fog?

    Anyone start squinting, have burning eyes and burning brain after straining your brain/brain fog? I had a long telephone call last week and I pushed it so much longer than I should and I felt my head getting warm, brainfoggy and my eyes started squinting. Now I cant talk for 5 minutes without...
  7. SWAlexander

    Clinical experience with the α2A-adrenoceptor agonist, guanfacine, and N-acetylcysteine for the treatment of cognitive deficits in “Long-COVID19”

    Highlights • Combined treatment with the α2A-adrenoceptor agonist, guanfacine, and the anti-oxidant, N-acetylcysteine (NAC) reduced the cognitive deficits (“brain fog”) associated with long-COVID19 in eight out of twelve patients. • Two patients stopped treatment due to hypotension and/or...
  8. Ingold12

    Possible CFS with neurological symptoms

    Hi everyone, I'm new to the forum, in June 2022 I got what I presume was a viral illness, with symptoms such as fever, cough, throat pain and slight dysphagia. All symptoms besides the dysphagia subsided until I got tired moving for a new job and, between July and August, I first developed...
  9. A

    neuropsych testing?

    Does anyone know who is doing neuropsych testing for ME/CFS disability these days?
  10. SWAlexander

    Aussie breakthrough on the long Covid condition that leaves sufferers with symptoms similar to 'traumatic brain injury'

    Australian researchers have brought the world a step closer to curing brain fog Researchers have proven there is a physical reason for the nebulous condition Trials can now begin for treatments for the condition after pin-pointing a toxin The findings show 'brain fog' could take a huge toll on...
  11. O

    Fast or fast-ish brain fog busters - what's working for you?

    Hi all. As my username suggests, brain fog has been my least favorite symptom and that says alot It's the one that makes me question my capacity to hold down a job, and at times, the state of my intelligence, feeling like the mentally degrading protagonist in "Flowers for Algernon". I'm a very...
  12. SeanQHX1

    Another Post-Viral Diagnosis

    Hi everyone again. I just seen a neurologist and PVFS/ME/CFS specialist recently in the UK and the consultation went as well as it could have I will say. The doctor was very approachable, spent a good hour with me and was very thorough with his questions and observations. As some of you may...
  13. SeanQHX1

    Opioids and Brain Fog

    Hi everyone again. For about 3 years I've been taking codeine (in the form of co-codamol) regularly every day to get relief from the continuous bombardment of severe brain fog and what I can only describe as horrible head feelings I've had non-stop, getting progressively worse since becoming ill...
  14. SeanQHX1

    Possible Autoimmune Encephalitis

    Hi everyone once again. I'm currently waiting on word to see a neuroimmunologist in the hopes of finding answers after battling worsening, disabling brain and head symptoms for 5 years now which I suspect at this point to have neuroimmune causes. Just now, I continue to deteriorate with this...
  15. WantedAlive

    Hesperidin Methyl Chalcone: potent neuro-anti-inflammatory and pain relief.

    I’ve been trialling Doctor’s Best Hesperidin Methyl Chalcone (HMC) on and off more than a month. This product is remarkably potent against brain fog and neck pain, in fact I’d say HMC is as effective as naltrexone for me (which I use concurrently). HMC is by far the most impressive supplement...
  16. nerd

    My Keto Experience

    I recently switched to a ketogenic diet and would like to share my experience and draw attention to some aspects that might not be common knowledge yet. I prepared myself for the ketogenic diet. I had MCT oil, Acetyl-L-Carnitine, and the right food available. I use Fora 6 and Ketonix for keto...
  17. stefanosstef

    How I solved my neuroinflammation

    I am posting this because I have a strong feeling that it can help many others.For me neuroinflammation was/is the worst symptom. The manifestation is happening in many ways: Heavy feeling on head, similar to the feeling I have when I'm sick (which is very rare for the past years).A little more...
  18. Gratefulliving

    CCI Symptoms vs POTS

    Hi all! I am going to get an upright mri to look for CCI... I was diagnosed with ME/CFS 5 years ago. Also have been diagnosed with EDS and hyperadrenergic POTS. I’m curious if CCI symptoms develop over time. I recently (6months) have developed more neurological symptoms like nonepileptic...
  19. D

    Gluten or Fructan's, bread vs pasta?

    I'm trying to narrow something down here. Since I was young I've had terrible brain fog. It seems that this is at it's worst when I eat bread or oats. I initially thought it was gluten but I've now read about Fructans and how they can be the culprit. Oats don't contain Gluten, but they do...
  20. SeanQHX1

    Brain symptoms still getting worse - Losing hope

    Hi everyone again. After looking through some old threads, I see that someone previously reported brain symptoms which are exactly like mine and couldn't have put it any better into words. This was after I spent years thinking that I was the only one in the planet with this mysterious brain...
  21. H

    How to objectify brain fog / cognitive dysfunction?

    I was always wondering, if brain fog / cognitive issues are part of my issue. I mean, it seems so, somehow. When I take a look on the ICC and CCC criteria, I match nearly every cognitive problem mentioned there. Its definitely a much milder form of cognitive problems than others have. At least...
  22. Hip

    Glucuronolactone (ingredient of energy drinks like Red Bull) boosts my energy, cognitive clarity, uplifts mood, and has anti-grumpiness effects

    I've been experimenting with the energy-giving supplement glucuronolactone in recent weeks, and have noticed some good results. Glucuronolactone is naturally found in the body (it is an important part of connective tissues), and is an ingredient in some energy drinks. The Red Bull energy drink...
  23. M

    Mild, bizarre symptoms

    Hello All, Sure we're all familiar with the vagueness of the symptoms that occur with chronic fatigue. I have been to see POTS/cardio specialist for several years, then haematology for high iron, rheumy for atypical anca and slightly low C4, gastroenterologist for a colon/gastroscopy, and now...
  24. Hip

    Very noticeable improvements in brain fog using Dr Greg Russell-Jones's transdermal B12 oils (which provide a similar dose to B12 injections)

    For the last few months I have been using the methylcobalamin + adenosylcobalamin vitamin B12 transdermal oil developed by Dr Greg Russell-Jones in Australia, which he recommends for ME/CFS. This transdermal B12 oil has made very noticeable improvements in my brain fog and cognitive clarity...
  25. hystericalwoman

    Need help finding abstract - Zinn's qEEG study presented at Stanford

    Try as I might, I cannot find where their study was published or if it was even published. I cannot find the abstract on Pubmed, Co-cure, or any blogs that came out during the Stanford Symposium last spring. It is the one that found patients emitting delta waves during the daytime, among other...
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