1. MartinK

    Do sore throat / tonsil ulcers make you worse - PEM/inflammation?

    I realized one thing and I'm very interested. Before my ME/CFS started, I suffered also a lot from various upper respiratory illnesses - sore throat / tonsil ulcers / influenza. It often met me even when I was mild / moderate, not so much now, probably because Im at home at constant...
  2. Martin aka paused||M.E.

    Twitter Survey on infectious onset

    Hey folks, I did a (not representative) Twitter survey. I wanted to get an overview on how many cases of ME had an (symptomatic) infectious onset. These are the results, I thought I share them with you (yes I know that the results have their limitations) 365/500 had a known infectious onset...
  3. MartinK

    majority or minority ME/CFS worsens only physical activity (not mental) (POLL)

    I'm very interested in this! In last years I wrote with many ME/CFS patients, or read posts here, on reddit, FB groups...whatever. After that long time, I feel like one of the few who have long-term severe and mooore seveve ME/CFS or PEM/crashes with no worsening mental activity...no brain fog...
  4. TinaYesen

    Poll: Have you been diagnosed with POTS/POSH, NMH, or OH with your ME?

    I'm interested to know how common these conditions are being diagnosed with ME. I'm also interested to know if doctors' diagnoses are falling in line with current research indicating POSH and POTS occur together.
  5. Dr.Lynne

    Take the poll: What are YOUR triggers?

    Hi all! Here's the poll I've been promising. The reasons for doing this are two-fold: (1) to share information about triggers, and (2) to help members track down their individual triggers (the better to avoid them). What I'm looking for are: (A) triggers that DIRECTLY make your ME/CFS worse...
  6. nerd

    Poll: Mast cell and histamine degradation genotypes

    I know that there has been one poll on how frequently MCAS co-exists with CFS/ME. But I could imagine that some of the negative cases just are not perceived as MCAS when, in fact, the mast cells might still be dysregulated asymptomatically. This is why I would prefer to describe the condition...
  7. nerd

    POLL: How common are B Vitamin deficiencies?

    Given the assumption that CFS/ME is a hypermetabolic condition, I'm trying to found the hypothesis that Vitamin B deficiencies are amplified by the hypermetabolic state and that the normal recommended intake of these Vitamins doesn't apply to CFS/ME. I'm particularly interested in how common...
  8. Pyrrhus

    Is social media helpful or hurtful for people with ME?

    I'm curious about people's opinions of social media, from an ME perspective! Vote for as many options as you like. Feel free to post your experiences or perspectives in a post below!
  9. C

    Poll: Has anyone lost their ability to enjoy music

    One of the first things I noticed when I was getting sick is that I don't enjoy listening to music as much as I did back when I was healthy. Music was actually one of the most important parts of my life. I liked playing DJ sets and worked on music production. Trance was the genre I enjoyed most...
  10. Pyrrhus

    B12: a simple 5-second poll for everyone

    This is a simple 5-second poll for anyone who has ever tried a B12 supplement in any form. Many thanks to everyone who responds! Please feel free to share your experience in more detail in a post.
  11. mattie

    Tracking CCI / AAI MRI & Treatment outcomes

    Starting this thread to keep track of ME-CFS patients who have been tested for craniocervical instability / atlantoaxial instability / chiari / spinal stenosis. Because the number of patients that test positive is getting significant now, especially considering the low number of patients tested...
  12. mariovitali

    Alcohol tolerance before ME/CFS

    I searched for similar polls but couldn't find one asking about alcohol tolerance before ME/CFS. Looking forward to your responses! Some clarifications about the options : 1- I had no problems tolerating it : This means that you always had a positive mood with alcohol, you enjoyed having it...
  13. Cort

    The Family Member ME/CFS Prevalence Poll Take II

    Does ME/CFS crop up in families? Take the poll and lets find out! If at least one member of the following groups has something that appears to be ME/CFS (mysterious fatiguing and debilitating disorder doctors cannot figure out) please check them.