Twitter Survey on infectious onset

[Martin aka paused||M.E.]

Hey folks,
I did a (not representative) Twitter survey. I wanted to get an overview on how many cases of ME had an (symptomatic) infectious onset.

These are the results, I thought I share them with you (yes I know that the results have their limitations)


365/500 had a known infectious onset

45/500 not

90/500 don’t know

(here it is possible that they had an infectious onset but it was asymptomatic)

 

[Sophiedw]

Really interesting Martin, I’ll follow you on Twitter I mostly just complain about brexit or troll idiotic British people but that’s none of your concern. Maybe you could do a further poll to see if people can narrow down what sort of infections initiated onset if they know.

 

[Sophiedw]

Even ear/nose/chest/flu/something more specific/wound? Surgery? Still data.

 

[mariovitali]

It would be interesting to see whether any medications not relevant to virus infections have caused ME, e.g. medication taken for acne.

 

[BrightCandle]

Typically they come out about 80% infectious start so it seems fairly consistent with the usual results.

 

[Pyrrhus]

These results are also pretty similar to the results from this 2012 Phoenix Rising poll:

Has anyone gotten CFS after a physical trauma (major car accident, burn, etc)?
https://forums.phoenixrising.me/thr...cal-trauma-major-car-accident-burn-etc.16129/