• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Twitter Survey on infectious onset

Martin aka paused||M.E.

Senior Member
Messages
2,291
Hey folks,
I did a (not representative) Twitter survey. I wanted to get an overview on how many cases of ME had an (symptomatic) infectious onset.

These are the results, I thought I share them with you (yes I know that the results have their limitations)


365/500 had a known infectious onset

45/500 not

90/500 don’t know

(here it is possible that they had an infectious onset but it was asymptomatic)

0579C3DC-643B-4300-8BBD-707B738C3516.jpeg
 

Sophiedw

Senior Member
Messages
384
Really interesting Martin, I’ll follow you on Twitter :) I mostly just complain about brexit or troll idiotic British people but that’s none of your concern. Maybe you could do a further poll to see if people can narrow down what sort of infections initiated onset if they know.
 
Back