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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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infections

  1. SWAlexander

    Rapidly Progressive Dementia around Covid and...?

    Dr. McMillan mentioned "Rapidly Progressive Dementia around Covid and...?" https://philipmcmillan.substack.com/p/rapidly-progressive-dementia-around?utm_source=podcast-email%2Csubstack&publication_id=604377&post_id=138671602&utm_campaign=email-play-on-substack&utm_medium=email&r=squl4#details...
  2. W

    Underlying disease in small fiber neuropathy

    Hi. I really wonder if fellow friends of the forum found their underlying conditions of sfn (small fiber neuropathy). Also , hopefully I wonder if they treated them succesfully. I was diagnosed with sfn through a skin biopsy from my ankle after covid jab which I am not really sure the reason...
  3. W

    Infection related sulphur intolarence

    Lately I develop a high intolerance for sulphur containing foods and suplements basically : garlic, nac , ala, msm and etc. ( I love aeting garlic ps) All of them give me imsomnia, racing heart, frequent bowel movements and urinary frequecy. I wonder if anyone solve this issue. My story is a...
  4. Thebirdman333

    Why you should be scared of Enteroviruses... (Full list of all diseases associated with EV)

    Over the past few months I have compiled a list of all Enterovirus associated diseases. Some of these are broad (as in other diseases / viruses can cause them), some are speculation, but a majority are confirmed to be associated or semi-associated (i.e. multiple possible pathologies). I also...
  5. Martin aka paused||M.E.

    Twitter Survey on infectious onset

    Hey folks, I did a (not representative) Twitter survey. I wanted to get an overview on how many cases of ME had an (symptomatic) infectious onset. These are the results, I thought I share them with you (yes I know that the results have their limitations) 365/500 had a known infectious onset...
  6. uglevod

    The dark side of Vitamin D supplements and chronically high D25 levels

    [2020] Higher 25-hydroxyvitamin D level is associated with increased risk for Behçet's disease https://pubmed.ncbi.nlm.nih.gov/32593521/ Background & aim: Previous studies showed a vitamin D deficiency in patients with Behçet's disease, suggesting potential benefits of vitamin D supplementation...
  7. J

    Elevated Vitamin D 1,25 Dihydroxy and Low Vitamin D, 25-OH

    Hello all, I have an abundance of multi-system symptoms that seem to be some sort of chronic version of ME, dysautonomia, autoimmune or other "zebra" type issue yet to be diagnosed. Recently, an endocrinologist that also specializes in Mast Cell Activation Syndrome (a hunch that I had and we...
  8. F

    A symptom I didn't tell my doctor but should have: phantom smells

    I always figured "smelling things that aren't there" would be something a doctor would have maybe not heard of and not know what to do with, but turns out it's a thing. Also, it's neurological. https://www.nbcnews.com/health/health-news/phantom-smells-may-be-sign-trouble-n890271 It's usually...
  9. Notjustfatigue

    Crowfunding for a study about etiopathogenesis and try to set potencial biomarkers

    Dear mates, I want to inform about a crowfunding campaign for a study about etiopathogenesis of ME/CFS that could lead to set potencial biomarkers for the disease. The following is based in our mate @Manuel work...