infections

  1. Martin aka paused||M.E.

    Twitter Survey on infectious onset

    Hey folks, I did a (not representative) Twitter survey. I wanted to get an overview on how many cases of ME had an (symptomatic) infectious onset. These are the results, I thought I share them with you (yes I know that the results have their limitations) 365/500 had a known infectious onset...
  2. uglevod

    The dark side of Vitamin D supplements and chronically high D25 levels

    [2020] Higher 25-hydroxyvitamin D level is associated with increased risk for Behçet's disease https://pubmed.ncbi.nlm.nih.gov/32593521/ Background & aim: Previous studies showed a vitamin D deficiency in patients with Behçet's disease, suggesting potential benefits of vitamin D supplementation...
  3. J

    Elevated Vitamin D 1,25 Dihydroxy and Low Vitamin D, 25-OH

    Hello all, I have an abundance of multi-system symptoms that seem to be some sort of chronic version of ME, dysautonomia, autoimmune or other "zebra" type issue yet to be diagnosed. Recently, an endocrinologist that also specializes in Mast Cell Activation Syndrome (a hunch that I had and we...
  4. F

    A symptom I didn't tell my doctor but should have: phantom smells

    I always figured "smelling things that aren't there" would be something a doctor would have maybe not heard of and not know what to do with, but turns out it's a thing. Also, it's neurological. https://www.nbcnews.com/health/health-news/phantom-smells-may-be-sign-trouble-n890271 It's usually...
  5. Notjustfatigue

    Crowfunding for a study about etiopathogenesis and try to set potencial biomarkers

    Dear mates, I want to inform about a crowfunding campaign for a study about etiopathogenesis of ME/CFS that could lead to set potencial biomarkers for the disease. The following is based in our mate @Manuel work...