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Dear mates,
I want to inform about a crowfunding campaign for a study about etiopathogenesis of ME/CFS that could lead to set potencial biomarkers for the disease.
The following is based in our mate @Manuel work:
https://forums.phoenixrising.me/thr...lease-share-this-informat.62038/#post-1009323
https://forums.phoenixrising.me/thr...-your-doctors-the-cause-of-your-cfs-me.61905/
https://forums.phoenixrising.me/thr...ated-with-epstein-barr-virus-infection.60582/
https://forums.phoenixrising.me/threads/new-possible-diagnostic-method-for-cfs-or-me.61772/
The current objective is of 46.800,00 € and the link for donations is the following:
https://helpify.es/comunidades/todo-por-la-causa-del-sindrome-de-la-fatiga-cronica/
All you have to do is to click on "DONAR" button and then just put an amount in the field "Donación" (this amount would be in € - you can convert it to $ here https://fx-rate.net/calculator), fill your full name in the field "Nombre y apellidos" and your email in the last field. Then you just need to choose a payment method (Credit Card or Paypal) and proceed.
You must also mark the checkbox "Acepto los Términos y condiciones y la Política de privacidad" (i accept the terms and conditions including the privacy policy) and in case you prefer to make an anonymous donation mark the checkbox below "Donar como anónimo" (donate as anonymous")
I translate the message of the campaing and also take this opportunity to ask you for support in all means possible (if you can´t or don´t want to donate, you can just share in your social networks, email this post to contacts, etc).
All for the Chronic Fatigue Syndrome cause
How do you feel when there's no solution to a problem? You may experience sadness, helplessness, disappointment, failure, anger, fear, or even misunderstanding. That's why we're here. We want to find a solution for Chronic Fatigue Syndrome.
The initiative comes thanks to Manuel Ruiz Pablos, a patient suffering from this disease, and his girlfriend Rosario Montero Mateo. Manuel's life was like that of any other university student, student of Medicine, who is enjoying one of the best stages of youth: travel, friends, sport ... And suddenly one day woke up with what seemed a cold. His life changed completely. After spending a lot of time from doctor to doctor and with unexplained chronic fatigue, he was finally diagnosed with Chronic Fatigue Syndrome. He tried to continue the degree but the symptoms made it impossible. Since then, together with Rosario, who is currently preparing the medical internship, both fight and study to find a cure for this disease. They have it clear: "we want the people who suffer it to recover their lives".
Chronic Fatigue Syndrome or Myalgic Encephalomyelitis is a chronic disease that leads to physical fatigue and impaired cognitive capacity. It presents neurological, immunological and endocrine alterations. It lasts for weeks or even months. It is not relieved by rest and may incapacitate the patient. The person suffering from this disease may feel like an old man unable to move because of the pain he suffers.
It is untreated and its cause is unknown. Drug treatments try to alleviate its many symptoms and other co-morbid diseases. This is one of the many reasons why CIMA has decided to undertake research into the cause of this disease in order to treat it effectively.
We have a hypothesis to start with:
Several investigations have demonstrated the presence of potential biomarkers that would indicate inadequate immune function and signs of autoimmunity as well as alterations in NK, cytokine profiles and T-cell response capacity. Therefore, we propose this hypothesis: patients with Chronic Fatigue Syndrome may have an alteration in the activation of T lymphocytes caused by a decrease in the HLA-II antigenic presentation due to intracellular pathogens.
Symptoms
ME/CFS usually begins with an infectious process in a commonly active person, which begins with fever, cough, odynophagia, myalgia... i.e., flu-like symptoms. From this onset, a permanent exhaustion is established that does not improve with rest. It worsens with both physical and mental activity that becomes persistent. When chronic symptoms are established, fatigue, febricula or temperatures of 35ºC predominate when the disease is more advanced. Also arthralgias, myalgias, cervical adenopathies, intestinal symptoms, increase in respiratory allergies, hormonal alterations... etc. It should be noted that all these symptoms are not present in all patients.
Thanks in advance!!!
Best
I want to inform about a crowfunding campaign for a study about etiopathogenesis of ME/CFS that could lead to set potencial biomarkers for the disease.
The following is based in our mate @Manuel work:
https://forums.phoenixrising.me/thr...lease-share-this-informat.62038/#post-1009323
https://forums.phoenixrising.me/thr...-your-doctors-the-cause-of-your-cfs-me.61905/
https://forums.phoenixrising.me/thr...ated-with-epstein-barr-virus-infection.60582/
https://forums.phoenixrising.me/threads/new-possible-diagnostic-method-for-cfs-or-me.61772/
The current objective is of 46.800,00 € and the link for donations is the following:
https://helpify.es/comunidades/todo-por-la-causa-del-sindrome-de-la-fatiga-cronica/
All you have to do is to click on "DONAR" button and then just put an amount in the field "Donación" (this amount would be in € - you can convert it to $ here https://fx-rate.net/calculator), fill your full name in the field "Nombre y apellidos" and your email in the last field. Then you just need to choose a payment method (Credit Card or Paypal) and proceed.
You must also mark the checkbox "Acepto los Términos y condiciones y la Política de privacidad" (i accept the terms and conditions including the privacy policy) and in case you prefer to make an anonymous donation mark the checkbox below "Donar como anónimo" (donate as anonymous")
I translate the message of the campaing and also take this opportunity to ask you for support in all means possible (if you can´t or don´t want to donate, you can just share in your social networks, email this post to contacts, etc).
All for the Chronic Fatigue Syndrome cause
How do you feel when there's no solution to a problem? You may experience sadness, helplessness, disappointment, failure, anger, fear, or even misunderstanding. That's why we're here. We want to find a solution for Chronic Fatigue Syndrome.
The initiative comes thanks to Manuel Ruiz Pablos, a patient suffering from this disease, and his girlfriend Rosario Montero Mateo. Manuel's life was like that of any other university student, student of Medicine, who is enjoying one of the best stages of youth: travel, friends, sport ... And suddenly one day woke up with what seemed a cold. His life changed completely. After spending a lot of time from doctor to doctor and with unexplained chronic fatigue, he was finally diagnosed with Chronic Fatigue Syndrome. He tried to continue the degree but the symptoms made it impossible. Since then, together with Rosario, who is currently preparing the medical internship, both fight and study to find a cure for this disease. They have it clear: "we want the people who suffer it to recover their lives".
Chronic Fatigue Syndrome or Myalgic Encephalomyelitis is a chronic disease that leads to physical fatigue and impaired cognitive capacity. It presents neurological, immunological and endocrine alterations. It lasts for weeks or even months. It is not relieved by rest and may incapacitate the patient. The person suffering from this disease may feel like an old man unable to move because of the pain he suffers.
It is untreated and its cause is unknown. Drug treatments try to alleviate its many symptoms and other co-morbid diseases. This is one of the many reasons why CIMA has decided to undertake research into the cause of this disease in order to treat it effectively.
We have a hypothesis to start with:
Several investigations have demonstrated the presence of potential biomarkers that would indicate inadequate immune function and signs of autoimmunity as well as alterations in NK, cytokine profiles and T-cell response capacity. Therefore, we propose this hypothesis: patients with Chronic Fatigue Syndrome may have an alteration in the activation of T lymphocytes caused by a decrease in the HLA-II antigenic presentation due to intracellular pathogens.
Symptoms
ME/CFS usually begins with an infectious process in a commonly active person, which begins with fever, cough, odynophagia, myalgia... i.e., flu-like symptoms. From this onset, a permanent exhaustion is established that does not improve with rest. It worsens with both physical and mental activity that becomes persistent. When chronic symptoms are established, fatigue, febricula or temperatures of 35ºC predominate when the disease is more advanced. Also arthralgias, myalgias, cervical adenopathies, intestinal symptoms, increase in respiratory allergies, hormonal alterations... etc. It should be noted that all these symptoms are not present in all patients.
Thanks in advance!!!
Best
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