vision blue
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This follows up on the overview poll. There will be one final poll to follow.
This is a hard poll for me.
I suspect I have some on that list (Lyme or similar, dysautonomia or such) but have not been able to find a doctor who was willing to dig deeper...assign a label and treat it, not at least w/o a great outlay of resources I don't have.
And then I actually did get hypothyroid and Fibromyalgia (considered autoimmune?) labels.
However, I had the feeling that those particular doctors rubber stamp every tired patient who walks through the door with those. They seemed to be their "pet diagnoses" as I call them.
So I really don't know now which box(es) to check. How about adding TBD or "stay tuned to the next not-exciting episode of As the ME/CFS World Turns." ??
Edit: Oh, IBS. That diagnosis I trust so I can check "Other autoimmune condition..."
Anyway, coach me @vision blue since even though I'm being a bit silly, I don't want to mess up your poll.
(I shoukd have been clearer to say lets NOT consider fibromyalgia as an ai autoimmune illness
Another great question. I"d say put multiple chemcial sensitivity under MCAS and then also if you've had a known chemical exposure can check that off too in the other poll. I didn't put a seperate category for multiple chemical sensitivity- maybe i should have. I will try to add it not to this poll but to poll 3. Thanks.Okay, I won't check it for that. I'll just check it for IBS then. Thanks.
Oh, one more question, what would MCS (multiple chemical sensitivities) be under? I think some doctors are starting to put that under the MCAS label?
Edit: Oops...just saw the other polls. Hopefully, I'll look better next time. Sorry.
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Okay, I won't check it for that. I'll just check it for IBS then.
Oh, one more question, what would MCS (multiple chemical sensitivities) be under? I think some doctors are starting to put that under the MCAS label?
Indeed, i had read a fascinating study suggesting its caused by a specific bacteria that the researchers had even identified, and i'm sure i bookmarked it but i can't find the study the last time i went searching for it.I don't know of any evidence suggesting that IBS is an autoimmune condition.
There is, however, plenty of evidence that IBS is a form of dysautonomia:
I think if you think you have conditions but arebt sure-
Can you add POIS to the poll please? It can be described as having delayed PEM after sexual activity which can last for week or two. It’s interesting how many males with CFS have POIS.
bladder has been running my life for years now.....Oops, just found out that Interstitial Cystitis
I assumed you meant that you need an official diagnosis of X and Y from a doctor.
I never have diagnoses. Even if I show up in a hospital, they don't ID whats wrong with any rigor or correctness.
Even my SEID diagnosis isn't really one. no tests were run...
I've already happily answered two. Where's the third?There's 3 polls total. if we can get 100 people to take each, i think we have some useful data despite some of the issues.
I agree. And you've already got over 100 on this one, so good start !!!if we can get 100 people to take each, i think we have some useful data despite some of the issues.