Poll - very high prolactin

Do you have very high prolactin over 320miul? (Or equivalent)


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I've come across some old threads where people mention they have very high prolactin. Mines been high for 6 weeks two consequitive sets of tests. I'm to be re tested again in 6 weeks. GPs in the UK don't test prolactin levels as part of any standard or thorough tests I've seen (I've seen about 6 doctors over 6 years including 1 specialist). So I have no idea of knowing how long prolactin has been high.

Very high prolactin seems to have a whole host of side effects. Including aggregating auto immune disorders like lupus. They also cause issues with bone density and calcification. The side effects go on.

I've removed lion's mane which I believed was the issue. I've also removed egcg. Both 5-ar inhibitors from my supplement set. But my prolactins actually gone up not down.

Lupus can I believe lower neutrophil counts as well and as my neutrophils are dropping as my prolactin is rising (based on two sets of seperate tests) I'm wondering if there's a connection.

My free t is 0.29 with the lowest reading being 0.2 apparently high prolactin can cause low free t if it doesn't cause low testosterone. Although I'm not clinically low in free t unless it drops below 0.2.

Thanks for the replies.
 

lenora

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Hi.......I'm 74 and before I knew I had any conditions, neurological illnesses, ME and a host of others, I had high prolactin levels (can't tell you what they were b/c this was about 40 yrs. ago). I'd also had two children, but apparently that had no bearing on it....the youngest was about 6 yrs. old then.

I was put on bromocriptine for years and the tumor did disappear, and I've had no problems with it since. I do have plenty of other problems, but this one is now stable. What does your Dr. say? Yours, Lenora.
 
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Hi Lenora,

I've even going back over my notes. Beta glucans do increase prolactin levels. But even when I removed the lion's mane which was 50% beta glucans the prolactin still went up. I've just removed oat bran completely today. Going to see how that fairs. Joshua was fairly sure that oat bran should be rotated anyway because the beta glucans immune response probably isn't that optimal if taken every day.

I'll see what my next set of blood tests look like.
 

Zebra

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I've come across some old threads where people mention they have very high prolactin. Mines been high for 6 weeks two consequitive sets of tests. I'm to be re tested again in 6 week
In my experience, prolactin level is usually checked when a doctor suspects a problem with the pituitary gland. Is that what's happening with you?

If your prolactin has been elevated twice, and will be checked again in 6 weeks, is your doctor going to order a dedicated MRI of the pituitary for you?

I ask because I'm concerned about you, and I hope your doctor is too!

Please let me know if I have this all wrong. :)
 
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Hi Zebra,

Pretty much yes to everything. Lots of specialist referrals if it's still high in a weeks time.

It's odd that it never gets tested for, not sure what the pituitary symptoms are but it must be relevant for some.

Thanks,
 
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i was about to post that I have high prolactin levels and they increase every year more and more. I also have all the symptoms associated with high prolactin. Sadly the endocrinologist doesn't want to put me on medication. They should rule out a tumor, but I dont think that's the problem. I think it can be related to inflammation ?
 
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Yes they should definitely check for a tumor.

I'm not sure what's causing it for me, but it seems very odd. If it's not the beta glucan I take every day I am not sure what it is.
 

Crux

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If iron is not regulated, it can accumulate in organs , including the pituitary.

Low neutrophils can mean other things , but copper deficiency is one of them.
Copper is needed to regulate iron.

Perhaps dysregulated iron is a cause.
 

Pyrrhus

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In my experience, prolactin level is usually checked when a doctor suspects a problem with the pituitary gland. Is that what's happening with you?
You may also be interested in John Richardson's buspirone challenge test, which suggested a possible problem in the hypothalamus:
ETA: from Charles Shepherd's book, Living with ME: (not going to write it all)
"When people with ME/CFS were given busprione, their output of prolactin far exceeded that of the control group (as well as that of a group with depression). This type of experiment has also been repeated by other researchers, most of whom have reported simiar findings (see refs 156, 158, 172, 173 & 178).

It has also been suggested that a buspirone challenge could become a use objective test for monitoring progress in ME/CFS,or even a diagnostic test. Levels of prolactin before administration of buspirone are, incidentally, quite normal in people with ME/CFS. A raised level of resting prolactin may indicate the presence of a pituitary tumour."
Also:
Relationship Between SPECT Scans and Buspirone Tests in Patients with ME/CFS (Richardson, 1998)
https://forums.phoenixrising.me/thr...ship-between-spect-scans-and-buspirone.10441/
 
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Thank you Pyrrhus. Fascinating study. But what does it all mean?

Maybe the small amount of pituitary stimulation that the beta glucans are giving me is causing the abnormal resulting levels of prolactin.

It may also have nothing to do with beta glucan. But they do increase prolactin secretion.

Even if that was true I've no idea how you would supress prolactin release. With drugs I mean. Vitamin E and zinc don't appear to be enough on there own. More research needed. Thanks for the link.