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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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poll

  1. sb4

    POLL: Do antivirals help only those whose onset was viral?

    Seems pretty obvious but I am thinking those whose onset was through flu, tonsilitus, etc, should respond to treatment however those whose onset was something else (emf, chemicals, ???) would not respond.
  2. JaimeS

    Cholesterol levels poll: pls answer even if they're normal!

    Hey, all. Recently, I uncovered a mutation in my cholesterol-making apparatus, which makes sense as my cholesterol is quite low. I know I've seen others here on PR who are the same as me, with low cholesterol. At the same time, I've seen a lot of other patients with their cholesterol quite...
  3. Jesse2233

    POLL: Which ME/CFS researcher has the most compelling evidence for their theory?

    I haven't seen this question posed, so here goes. Which researcher has the most compelling evidence for their theory? Let me know if I should add anyone major I'm forgetting
  4. Jesse2233

    POLL: Is there a lack of permanent damage in ME/CFS that suggests a plausible chance for a cure?

    I ask this question from a place of relative ignorance on other long term diseases. I know that in MS for example, there are often lesions in the brain that appear to be irreversible even, in some cases, with HSCT. In my understanding, this doesn't appear to be true in ME/CFS. For example...
  5. Jenny TipsforME

    Poll: what's your pattern of muscle weakness?

    On my last neurology appointment I showed a pattern of muscle weakness. It would be useful to know other people's pattern before my next appointment. I already have a ME diagnosis so if my pattern is fairly typical this maybe doesn't add much. Dr Google doesn't bring up CFS or ME though and...
  6. Jesse2233

    Poll: What Gives You the Most Hope for a Cure?

    A simple but importantant question in my view
  7. Jesse2233

    Poll: Do You Believe Prolonged Periods of Rest Can Lead to Remission?

    I'm specifically referring to a disiciplined, long term strategy involving resting beyond the point one feels energetic enough to do activities in order to slowly rebuild one's energy envelop to the point of remission. I'm not talking about those who are unable to do anything but rest because...
  8. Jesse2233

    Poll: How Long Did it Take You to Begin Treatment?

    How long did it take you to begin treatment for your condition? I'm not referring to diagnosis, supplements, or palliative treatments but specifically referring to medical intervention targeted at a core, albeit theoretical, pathology. PS - also not CBT/GET Thanks!
  9. ArunP

    The Clonazepam / Klonopin poll

    Hey, I can relate a lot to Dr. Cheney's ideas about seizure threshold and where we ME patients are on that scale. For the members here who take klonopin or clonazepam I'm very interested in knowing how long you have been on it. And possibly what dosage you are on. I've been on it for it for...
  10. G

    Poll: Does your ME/CFS include MCAS?

    I suffer from terrible mast cell issues along with my ME/CFS. Smokes, Molds, Fragrances, and chemicals from new products like furniture, clothing, and general merchandise all set me off terribly. I was under the impression that this was true for the majority of ME/CFS sufferers, but another...
  11. Strawberry

    (poll) Facial Expressions and Smiling

    I have a tough time with smiling and facial expressions. I have had severe TMJ issues for 35 years, but even when I was young and my jaw was in massive pain, I didn't have problems with smiling. Is this from the muscle fatigue of CFS? Or the fact that I have extremely damaged jaw joints...
  12. Jesse2233

    Poll: Who do you believe is the most effective CFS/ME doctor?

    Let me know who I should add *Accidentally listed Bieger and Weir twice and can't edit. Vote for the first
  13. Hip

    POLL: How far were you living from a mobile phone base station mast when your ME/CFS first appeared?

    This poll asks: at the time your ME/CFS first appeared, how far was the home you were then living in from the nearest mobile phone base station mast? This poll is really only open to people whose ME/CFS first appeared within the last 10 or 15 years, simply because for those whose ME/CFS...
  14. Jesse2233

    Poll: Which Type of Treatment Has Not Worked For You At All?

    Poll: Which Type of Treatment Has Not Worked For You At All? Hi everyone, This is a sequel to the previous poll about Most Effective Treatments. Thanks to @alex3619 and @Neunistiva for the suggestion. Please respond if your diagnosis corresponds with the Canadian Consensus Criteria for CFS/ME...
  15. Jesse2233

    Poll: Which Type of Treatment Has Worked Best For You?

    Edit: This poll now has a sequel Treatments That Have Not Helped Hi everyone, I was looking for a post like this but couldn't find one. If there's a pre-existing one please point me in that direction. It'd be interesting to learn in a general way what's worked best. Obviously this will be...
  16. rosie26

    Have you always had sinus problems with infections all throughout your ME?

    Just wondering if there is a subgroup of ME who gets the constant sinus problems with infections whenever you overdo it. I have had this all the way through my ME. I have it quite bad at the moment, sore throat with it, also. I don't want to take antibiotics because of the bad reaction I had...
  17. Cheesus

    Poll: Have you been tested for leaky gut?

    I WOULD APPRECIATE IT IF EVERYONE COULD CONFINE THEIR RESPONSES TO OBJECTIVE TESTS. IF YOU ONLY HAVE A CLINICAL DIAGNOSIS WITH NO OBJECTIVE MARKERS, PLEASE RESPOND "NO". Interesting research and prominent hypotheses suggest that so-called "leaky gut" could be implicated in the pathophysiology...
  18. hixxy

    Weight loss and weight gain poll

    This poll is in response to a post by @charles shepherd in another thread asserting that ME never causes weight loss as a part of it's disease process. A snippet from his post: I would have liked to separate based on gender in the poll but there didn't seem to be a tidy way to do it. Just from...
  19. Gingergrrl

    Poll: Do you have an exaggerated startle reflex or response?

    This Poll is an off-shoot from another thread (link below) in which I asked for feedback re: my extremely exaggerated startle reflex/response. I realized after three pages that I'd wished that I had included a poll. So I am creating this new thread as a poll b/c I didn't think enough people...
  20. J

    Poll: Neurological Symptoms or No Neurological Symptoms

    Have everyone, Starting this Poll just out of curiosity and to inform people that they they are not alone. When you pic your answer *PLEASE NOTE THE NEURO SYMPTOMS YOU EXPERIENCE* *Note most of us get brain fog so keep this one out Im refering to the really weird stuff* This I feel will give...
  21. mattie

    Amitriptyline Poll - Does it work for you?

    Hello all, I'm new here and this is my first thread. Hope I put it in the right place. Beginning of 2016 I was diagnosed with ME/CFS and POTS. Also suffer from severe sleep disturbance which contributes heavily to my symptoms. Tried all the OTC options for better sleep, none of them worked for...
    • mattie
    • Thread
    • poll
    • Replies: 49
    • Forum: Sleep
  22. J

    What does your ME/CFS Look like Poll: Please describe your symptoms and Cluster

    I am asking a lot from the community with regard to this but it may help down the line as disease tend to have a certain cluster of Symptoms that has not ever been defined or subsetted and academic articles seem to be all over the place. I am asking for clear responses not full stories etc. I...
  23. hamsterman

    What are your PEM/Crash triggers? - Poll

    I couldnt find this poll here, so I figured I'd add it. Please let me know if I need to change the wording or add anything.
  24. bigmillz

    Poll: How much TMG do you find to be helpful?

    Wondering how much helps everyone here. Bonus points if you share any details pertaining to how much was too little or too much!
  25. Never Give Up

    Poll: In What Month Did You First Become Ill?

    It's probably just a coincidence, but many of the people we know with ME/CFS first became ill in September. So I thought a poll was in order.
  26. roller

    Poll: Severe head inflammation before onset?

    Was there anything that made you wonder, why you got / caught this, and the others not. Or seemed it more severe than with others - lasting longer, more pain, more sideeffects?
  27. K

    Poll: rs11627387 MTHFD1

    rs12939757 (edit: this is supposed to say rs11627387) is a loss of function variant of MTHFD1 which is fairly common with AA (the risk allele) being about 12% on OpenSNP. I think this allele may be significant only when a person is experiencing oxidative stress.
  28. Owl42

    The ultimate poll about CFS/ME diet

    Hi guys, I've been splitting my brains appart in the diet topic since I came to the forum, for I've experienced great recovery from quitting some foods and a lot of symptoms from taking others. So, seeing how my researching went into a LOT of different and contradictory diets I'm looking for...
  29. halcyon

    Poll: Have you received autonomic testing for OI (POTS, NMH, etc.) symptoms

    And a followup question for those that answer yes: Did the results of your autonomic testing lead to prescription of useful treatment?
  30. Hip

    POLL: Crimson Crescents In Your Throat? Know Your Coxsackievirus B Titers? ME/CFS Onset After Mono?

    Crimson crescents are red or purple inflamed-looking areas of skin in the throats of ME/CFS patients, located by the back arches of the soft palate, on either side of the uvula (see pictures below). In a 1992 study, Dr Burke Cunha found crimson crescents in 80% of ME/CFS patients, but in the...