poll

On average per 24 hour period, preferably over the last month. Would be interesting to see given how many studies do not include step count as a measure

Who has tested positive for streptococcus? My son had several bouts with it and had his tonsils removed. The surgeon said they were the largest tonsils and adenoids that he has removed (my son was only 7 years old at the time).

Seems pretty obvious but I am thinking those whose onset was through flu, tonsilitus, etc, should respond to treatment however those whose onset was something else (emf, chemicals, ???) would not respond.

Hey, all. Recently, I uncovered a mutation in my cholesterol-making apparatus, which makes sense as my cholesterol is quite low. I know I've seen others here on PR who are the same as me, with low cholesterol. At the same time, I've seen a lot of other patients with their cholesterol quite...

I haven't seen this question posed, so here goes. Which researcher has the most compelling evidence for their theory? Let me know if I should add anyone major I'm forgetting

I ask this question from a place of relative ignorance on other long term diseases. I know that in MS for example, there are often lesions in the brain that appear to be irreversible even, in some cases, with HSCT. In my understanding, this doesn't appear to be true in ME/CFS. For example...

On my last neurology appointment I showed a pattern of muscle weakness. It would be useful to know other people's pattern before my next appointment. I already have a ME diagnosis so if my pattern is fairly typical this maybe doesn't add much. Dr Google doesn't bring up CFS or ME though and...

A simple but importantant question in my view

I'm specifically referring to a disiciplined, long term strategy involving resting beyond the point one feels energetic enough to do activities in order to slowly rebuild one's energy envelop to the point of remission. I'm not talking about those who are unable to do anything but rest because...

How long did it take you to begin treatment for your condition? I'm not referring to diagnosis, supplements, or palliative treatments but specifically referring to medical intervention targeted at a core, albeit theoretical, pathology. PS - also not CBT/GET Thanks!

Hey, I can relate a lot to Dr. Cheney's ideas about seizure threshold and where we ME patients are on that scale. For the members here who take klonopin or clonazepam I'm very interested in knowing how long you have been on it. And possibly what dosage you are on. I've been on it for it for...

I suffer from terrible mast cell issues along with my ME/CFS. Smokes, Molds, Fragrances, and chemicals from new products like furniture, clothing, and general merchandise all set me off terribly. I was under the impression that this was true for the majority of ME/CFS sufferers, but another...

I have a tough time with smiling and facial expressions. I have had severe TMJ issues for 35 years, but even when I was young and my jaw was in massive pain, I didn't have problems with smiling. Is this from the muscle fatigue of CFS? Or the fact that I have extremely damaged jaw joints...

Let me know who I should add *Accidentally listed Bieger and Weir twice and can't edit. Vote for the first

This poll asks: at the time your ME/CFS first appeared, how far was the home you were then living in from the nearest mobile phone base station mast? This poll is really only open to people whose ME/CFS first appeared within the last 10 or 15 years, simply because for those whose ME/CFS...

Poll: Which Type of Treatment Has Not Worked For You At All? Hi everyone, This is a sequel to the previous poll about Most Effective Treatments. Thanks to @alex3619 and @Neunistiva for the suggestion. Please respond if your diagnosis corresponds with the Canadian Consensus Criteria for CFS/ME...

Edit: This poll now has a sequel Treatments That Have Not Helped Hi everyone, I was looking for a post like this but couldn't find one. If there's a pre-existing one please point me in that direction. It'd be interesting to learn in a general way what's worked best. Obviously this will be...

Just wondering if there is a subgroup of ME who gets the constant sinus problems with infections whenever you overdo it. I have had this all the way through my ME. I have it quite bad at the moment, sore throat with it, also. I don't want to take antibiotics because of the bad reaction I had...

I WOULD APPRECIATE IT IF EVERYONE COULD CONFINE THEIR RESPONSES TO OBJECTIVE TESTS. IF YOU ONLY HAVE A CLINICAL DIAGNOSIS WITH NO OBJECTIVE MARKERS, PLEASE RESPOND "NO". Interesting research and prominent hypotheses suggest that so-called "leaky gut" could be implicated in the pathophysiology...

This poll is in response to a post by @charles shepherd in another thread asserting that ME never causes weight loss as a part of it's disease process. A snippet from his post: I would have liked to separate based on gender in the poll but there didn't seem to be a tidy way to do it. Just from...

This Poll is an off-shoot from another thread (link below) in which I asked for feedback re: my extremely exaggerated startle reflex/response. I realized after three pages that I'd wished that I had included a poll. So I am creating this new thread as a poll b/c I didn't think enough people...

Have everyone, Starting this Poll just out of curiosity and to inform people that they they are not alone. When you pic your answer *PLEASE NOTE THE NEURO SYMPTOMS YOU EXPERIENCE* *Note most of us get brain fog so keep this one out Im refering to the really weird stuff* This I feel will give...

Hello all, I'm new here and this is my first thread. Hope I put it in the right place. Beginning of 2016 I was diagnosed with ME/CFS and POTS. Also suffer from severe sleep disturbance which contributes heavily to my symptoms. Tried all the OTC options for better sleep, none of them worked for...

I am asking a lot from the community with regard to this but it may help down the line as disease tend to have a certain cluster of Symptoms that has not ever been defined or subsetted and academic articles seem to be all over the place. I am asking for clear responses not full stories etc. I...

I couldnt find this poll here, so I figured I'd add it. Please let me know if I need to change the wording or add anything.

Wondering how much helps everyone here. Bonus points if you share any details pertaining to how much was too little or too much!

It's probably just a coincidence, but many of the people we know with ME/CFS first became ill in September. So I thought a poll was in order.

Was there anything that made you wonder, why you got / caught this, and the others not. Or seemed it more severe than with others - lasting longer, more pain, more sideeffects?

rs12939757 (edit: this is supposed to say rs11627387) is a loss of function variant of MTHFD1 which is fairly common with AA (the risk allele) being about 12% on OpenSNP. I think this allele may be significant only when a person is experiencing oxidative stress.

Hi guys, I've been splitting my brains appart in the diet topic since I came to the forum, for I've experienced great recovery from quitting some foods and a lot of symptoms from taking others. So, seeing how my researching went into a LOT of different and contradictory diets I'm looking for...