• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

poll

  1. Hope78

    Poll genetic testing

    Hi! I am really pondering if I should do the 23andme genetic testing. So I'd be really interested in your experiences. My biggest fear is, that it has no practical implications but is frightening me (p.e. when I read I have the snp for lung cancer risk and know I have smoked 7 years.). I am a...
  2. M

    Poll: Viral vs. Non-Viral Onset and Contagious Relationship

    Hello everyone, recently I've been reading a lot of new/old threads on whether me/cfs is contagious or not. From what I can gather, this is up for debate as no one knows the exact answer. With that said, I am curious as to what the statistics are like for members that had a viral onset (i.e...
  3. Research 1st

    Poll: As a person living with ME CFS , how did you test Borrelia Positive?

    Poll Question: As a PWME CFS who is Borrelia positive , how did you test Borrelia Positive? Hello everyone. I would like to see if the forum response to the question above, has any link to the phenomena that Borrelia in CFS or ME sufferers tends to be seronegative in nature, (and thus evade...
  4. picante

    Poll for People with Hashimoto's Who Have Taken LDN

    If you have taken LDN and you have / used to have Hashimoto's (high thyroid antibodies), please click on all choices that apply to you. I'm a tad confused about which questions I should ask to get the information I want. So please give details in the comments if you have something to add. I...
  5. JaimeS

    Poll on Immunoglobulin antibodies - Please respond if you've been tested!

    Just wondering how common it is for us to have documented immunodeficiencies here on PR. If you have had one of these (IgE for example) very HIGH, please select this response and elaborate in a comment. Thank you so much, guys! Please spread this around, inquiring minds want to know. :) Um...
  6. caledonia

    Cutler Mercury Chelation Poll

    If you have tried the Andrew Cutler frequent low dose mercury chelation protocol, please vote in the poll. Frequent low dose means dosing with DMSA, DMPS and/or ALA every few hours, including at night, to keep within the half life of these substances. Three day rounds are done with at least...
  7. Marco

    Poll for MEN ONLY - Sex Hormones

    There have been a number of threads with male PWME discussing issues with sex hormones. Plus we are men with what is frequently considered a 'woman's disease'. What gives? I've had and still have concerns, been tested and have (at times) had results outside of normal range. How about you?
  8. Beyond

    "Adrenal Fatigue" Poll

    Hey there people. I thought about making this poll about cortisol in saliva or urine. Mine is low, always, more so in saliva. Blood is high. Super strange uh? Now, I don´t even know the validity of salivary/urinary cortisol as a biomarker as opposed to serum, but lets see what you guys got and...
  9. Seven7

    Poll: Do you have pain in the neck/shoulders/spine

    I am curious, Do you get pain in the spine and between shoulder blade.
  10. Scarecrow

    Poll: do you get sleepy or drowsy at bedtime?

    Just curious............. Edited to add that after seeing some of the responses I wanted to explain that drowsy and sleepy have positive connotations for me. My intent was to ask about pleasant sensations that you may - or may not - have before bedtime. I can't edit the poll question now...
  11. halcyon

    Poll: Have you been tested for enteroviruses?

    Poll is multiple choice so please choose all that apply to you. A positive antibody titer result is one that the lab flagged as indicative of current or recent infection. Please don't answer yes if your test was negative and done by complement fixation (CF), for example if it was done by Focus...
  12. cman89

    Poll On Origins

    Just wondering where we all came down with our maladies
  13. nandixon

    Poll for Vitamin D supplement tolerance and calcitriol levels

    There's definitely a significant, albeit minority, subset of us with ME/CFS who are intolerant to supplementing vitamin D (either D3 or D2) and who also have associated 1,25-dihydroxyvitamin D3 (i.e., calcitriol) levels that are too high relative to the more commonly measured 25-hydroxyvitamin...
  14. Hip

    POLL: Do You Get PEM From Physical Exercise? Are You Sensitive To Lactate Probiotics Or Prebiotics?

    This poll, open to ME/CFS patients, is about whether or not you get significant PEM after physical exercise, and also whether or not you are sensitive to lactate-producing probiotics and/or to prebiotics. By sensitive, we mean you get a significant worsening of ME/CFS symptoms when taking such...
  15. nandixon

    Poll for maternal haplogroup as possible indicator for ME/CFS phenotype

    I thought it would be interesting to see if a person's mitochondrial DNA/maternal haplogroup has an effect on ME/CFS "phenotype" (characteristic symptoms) after learning that the mtDNA for the J haplogroup has been found to consistently produce less ATP than that of the H haplogroup, all else...
  16. SwanRonson

    Vitamin D / Sleep Poll

    When I first got sick, my 25OHD tested at 25. I couldn't get more than 3 hours of sleep at night. My last test showed 47 and my sleep had improved quite a bit, but still not to the point where I could drop the sleep meds. I doubled my D3 by switching to 10k transdermal cream and on the days I...
  17. S

    Poll: If you've tried prebiotics and have had bad effects, how long before you returned to baseline?

    Please note that this poll is about PREbiotics (substances that feed bugs), not PRObiotics (bugs). :) We've been discussing this topic on the resistant starch thread. Initially, people were experimenting with resistant starch but rapidly tried lots of other prebiotics. Sometimes, people come a...
  18. MeSci

    Poll on post-exertion malaise

    I was curious as to how many people who have (other) typical ME symptoms have, or have always had, post-exertional malaise. The poll should not be completed by people who are not yet reasonably certain that they have ME/SEID, ideally by the CCC criteria, which are summarised in this thread. If...
  19. Tired of being sick

    POLL for CFS/ME sufferers who have or have not been diagnosed with Asperger's

    I have been receiving mental health treatment/therapy weekly for about 1year and a 1/2 now. So my doctor/therapist is pretty much convinced that I have Asperger's on top of my many other illnesses. As they are in my signature.. After researching Asperger's I tend to agree with her. PS: She...
  20. MeSci

    Poll on depression and interferon-gamma

    This is an attempt to make links between @Valentijn's depression poll and the recent cytokine study by Hornig et al., to see if there could be a link between gamma-interferon and the depression experienced by some ME sufferers. Please only answer if you have ME/CFS/SEID, and use your best...
  21. MeSci

    Poll on myalgia (muscle pain)

    I have put this in 'General Symptoms' to try to reduce the risk of bias that might occur if it were placed in 'Skeleton, Skin, Muscles, Hair, Teeth, and Nails'. If you are pacing and resting very strictly so as not to get myalgia, or are unable to be active due to the severity of your illness...
  22. C

    Poll: Suicide - as many as one in five CFS patients kill themselves

    * Before posting, please apprecaite that this is a public forum and you should assume that your comments are public and will be accessed by non-PR members for uses other than the constuctive discussion of this topic. And sorry about the red but I felt it important to get your attention. I...
  23. V

    Depression Poll

    Many studies show high rates of depression in CFS patients, but usually use inappropriate questionnaires which take physical and cognitive symptoms as an indication of depression. Hence actual rates are difficult to even guess at. So the one item in this questionnaire is a simple question: Are...
  24. Tired of being sick

    tricyclics/TCA:POLL for all CFS/ME suffers who was diagnosed with POTS,NMH or form of dysautonomia

    I'd all so appreciate after your POLL participation, I would like you to POST what form of Dysautonomia you have and what TCA and dose your are on. Thank You.. My vote>*Yes: AMITRIPTYLINE before my diagnosis Max Dose of 150mg
  25. A.B.

    Poll: do you get unusual symptoms when vigorously shaking your head?

    For me, shaking my head vigorously even just for a few moments causes instant headache and a discomfort that is difficult to describe. Traveling in a car on a bumpy or serpentine road is very unpleasant for this reason. I'm curious how common this is among CFS patients. The severely affected...
  26. Gingergrrl

    Poll on the effects of IV saline on ME/CFS symptoms

    This is the first poll I have ever created (and I am technically challenged with these types of things) so am hoping that it worked! I have been posting a lot about IV saline in @jeff_w thread but decided it was time to create my own thread and let him have his back! I also wanted to do a poll...
  27. MeSci

    Poll on lymph nodes and glands

    By 'neck' I mean the glands and lymph nodes beneath the chin and/or on the throat. I'm using the common names for the body parts for simplicity. Symptoms could be at separate times or at the same time. Each person should ideally chose four options: Neck swollen or not swollen, armpits...
  28. Tired of being sick

    Rheumatologist or Neurologist POLL/DEBATE

    This POLL/DEBATE: is more geared toward those of us that have not been able to travel for what ever reason, to one of the nationally recognized CFS/ME specialists.. And why you believe one is better than the other? My pick without hesitation is a Neurologist. Why? CFS/ME has everything to do...
  29. BadBadBear

    Do you sunburn? (making it a poll, easy to answer)

    Do you tend to sunburn? I do not unless I'm out on the water or somewhere super intense. I have reddish hair & light complexion. My sisters fry in the sun, I do not. I don't really tan, either. Can our bodies get too tired to burn or to bother turning tan?
  30. BadBadBear

    The Chickenpox & Shingles Poll

    Have you had Shingles or Chickenpox? If you feel like it, please leave a comment at what age you had shingles. I have had both, I had Shingles at 38.