poll

And a followup question for those that answer yes: Did the results of your autonomic testing lead to prescription of useful treatment?

Crimson crescents are red or purple inflamed-looking areas of skin in the throats of ME/CFS patients, located by the back arches of the soft palate, on either side of the uvula (see pictures below). In a 1992 study, Dr Burke Cunha found crimson crescents in 80% of ME/CFS patients, but in the...

Hi! I am really pondering if I should do the 23andme genetic testing. So I'd be really interested in your experiences. My biggest fear is, that it has no practical implications but is frightening me (p.e. when I read I have the snp for lung cancer risk and know I have smoked 7 years.). I am a...

Hello everyone, recently I've been reading a lot of new/old threads on whether me/cfs is contagious or not. From what I can gather, this is up for debate as no one knows the exact answer. With that said, I am curious as to what the statistics are like for members that had a viral onset (i.e...

Poll Question: As a PWME CFS who is Borrelia positive , how did you test Borrelia Positive? Hello everyone. I would like to see if the forum response to the question above, has any link to the phenomena that Borrelia in CFS or ME sufferers tends to be seronegative in nature, (and thus evade...

If you have taken LDN and you have / used to have Hashimoto's (high thyroid antibodies), please click on all choices that apply to you. I'm a tad confused about which questions I should ask to get the information I want. So please give details in the comments if you have something to add. I...

Just wondering how common it is for us to have documented immunodeficiencies here on PR. If you have had one of these (IgE for example) very HIGH, please select this response and elaborate in a comment. Thank you so much, guys! Please spread this around, inquiring minds want to know. :) Um...

If you have tried the Andrew Cutler frequent low dose mercury chelation protocol, please vote in the poll. Frequent low dose means dosing with DMSA, DMPS and/or ALA every few hours, including at night, to keep within the half life of these substances. Three day rounds are done with at least...

There have been a number of threads with male PWME discussing issues with sex hormones. Plus we are men with what is frequently considered a 'woman's disease'. What gives? I've had and still have concerns, been tested and have (at times) had results outside of normal range. How about you?

Hey there people. I thought about making this poll about cortisol in saliva or urine. Mine is low, always, more so in saliva. Blood is high. Super strange uh? Now, I don´t even know the validity of salivary/urinary cortisol as a biomarker as opposed to serum, but lets see what you guys got and...

I am curious, Do you get pain in the spine and between shoulder blade.

Just curious............. Edited to add that after seeing some of the responses I wanted to explain that drowsy and sleepy have positive connotations for me. My intent was to ask about pleasant sensations that you may - or may not - have before bedtime. I can't edit the poll question now...

Poll is multiple choice so please choose all that apply to you. A positive antibody titer result is one that the lab flagged as indicative of current or recent infection. Please don't answer yes if your test was negative and done by complement fixation (CF), for example if it was done by Focus...

Just wondering where we all came down with our maladies

There's definitely a significant, albeit minority, subset of us with ME/CFS who are intolerant to supplementing vitamin D (either D3 or D2) and who also have associated 1,25-dihydroxyvitamin D3 (i.e., calcitriol) levels that are too high relative to the more commonly measured 25-hydroxyvitamin...

This poll, open to ME/CFS patients, is about whether or not you get significant PEM after physical exercise, and also whether or not you are sensitive to lactate-producing probiotics and/or to prebiotics. By sensitive, we mean you get a significant worsening of ME/CFS symptoms when taking such...

I thought it would be interesting to see if a person's mitochondrial DNA/maternal haplogroup has an effect on ME/CFS "phenotype" (characteristic symptoms) after learning that the mtDNA for the J haplogroup has been found to consistently produce less ATP than that of the H haplogroup, all else...

When I first got sick, my 25OHD tested at 25. I couldn't get more than 3 hours of sleep at night. My last test showed 47 and my sleep had improved quite a bit, but still not to the point where I could drop the sleep meds. I doubled my D3 by switching to 10k transdermal cream and on the days I...

Please note that this poll is about PREbiotics (substances that feed bugs), not PRObiotics (bugs). :) We've been discussing this topic on the resistant starch thread. Initially, people were experimenting with resistant starch but rapidly tried lots of other prebiotics. Sometimes, people come a...

I was curious as to how many people who have (other) typical ME symptoms have, or have always had, post-exertional malaise. The poll should not be completed by people who are not yet reasonably certain that they have ME/SEID, ideally by the CCC criteria, which are summarised in this thread. If...

I have been receiving mental health treatment/therapy weekly for about 1year and a 1/2 now. So my doctor/therapist is pretty much convinced that I have Asperger's on top of my many other illnesses. As they are in my signature.. After researching Asperger's I tend to agree with her. PS: She...

This is an attempt to make links between @Valentijn's depression poll and the recent cytokine study by Hornig et al., to see if there could be a link between gamma-interferon and the depression experienced by some ME sufferers. Please only answer if you have ME/CFS/SEID, and use your best...

I have put this in 'General Symptoms' to try to reduce the risk of bias that might occur if it were placed in 'Skeleton, Skin, Muscles, Hair, Teeth, and Nails'. If you are pacing and resting very strictly so as not to get myalgia, or are unable to be active due to the severity of your illness...

* Before posting, please apprecaite that this is a public forum and you should assume that your comments are public and will be accessed by non-PR members for uses other than the constuctive discussion of this topic. And sorry about the red but I felt it important to get your attention. I...

Many studies show high rates of depression in CFS patients, but usually use inappropriate questionnaires which take physical and cognitive symptoms as an indication of depression. Hence actual rates are difficult to even guess at. So the one item in this questionnaire is a simple question: Are...

I'd all so appreciate after your POLL participation, I would like you to POST what form of Dysautonomia you have and what TCA and dose your are on. Thank You.. My vote>*Yes: AMITRIPTYLINE before my diagnosis Max Dose of 150mg

For me, shaking my head vigorously even just for a few moments causes instant headache and a discomfort that is difficult to describe. Traveling in a car on a bumpy or serpentine road is very unpleasant for this reason. I'm curious how common this is among CFS patients. The severely affected...

This is the first poll I have ever created (and I am technically challenged with these types of things) so am hoping that it worked! I have been posting a lot about IV saline in @jeff_w thread but decided it was time to create my own thread and let him have his back! I also wanted to do a poll...

By 'neck' I mean the glands and lymph nodes beneath the chin and/or on the throat. I'm using the common names for the body parts for simplicity. Symptoms could be at separate times or at the same time. Each person should ideally chose four options: Neck swollen or not swollen, armpits...

This POLL/DEBATE: is more geared toward those of us that have not been able to travel for what ever reason, to one of the nationally recognized CFS/ME specialists.. And why you believe one is better than the other? My pick without hesitation is a Neurologist. Why? CFS/ME has everything to do...