poll

Many ME/CFS patients suffer from some degree of blurred vision. This blurred vision is not due to having the wrong prescription of glasses or contact lenses, but likely due to some ill health effects in the retina or eye lenses, or perhaps in the optic nerve or the visual processing areas of the...

I came across a pattern where a certain group of people with ME had a 100% chance of something. Statistically, they should have had a 5% chance. My sample was small and I presume with a larger sample, it will go below 100%. Yet, even if it proved to be a 10% (double the realistic odds ratio)...

I purposely picked 1-2 days as a sweet spot educated guess. Too little time fasting might not be enough time to see symptoms improve, too much time fasting might cause ME symptoms to get worse.

Here's the full poll question (because I couldn't fit it): Are all ME cases and most of the symptoms, at least at onset and early disease, driven by the drastic intracellular impairment of glucose metabolism? The realm of intracellular glucose metabolism impairments suggested by the various...

For those with POTS, Chronic Fatigue, Autonomic Dysfunction, etc... PLEASE VOTE ABOVE: Are you primarily a mouth breather or nose breather (when you breath without thinking)? The purpose of this poll is to determine if there is any correlation with breathing abnormalities and these disorders.

I searched for similar polls but couldn't find one asking about alcohol tolerance before ME/CFS. Looking forward to your responses! Some clarifications about the options : 1- I had no problems tolerating it : This means that you always had a positive mood with alcohol, you enjoyed having it...

I want to put collection boxes in some local shops and businesses, but I can't decide which charity to choose. I know one of the UK charities supported a proposed trial run by some of the old PACE characters, but I can't remember which one that was.

I know that it's too much for many people to go to a conference but if you were healthy enough and had the money to go where would you like it held? The IACFS/ME conference is a great place to meet patients, doctors and researchers. One issue is having an ME/CFS support group to support it -...

Poll. What is your NK Function LU result if you tested. Decreased activity <7 LU Normal activity 7-125 LU Increased activity > 125 LU My result is 3 I knew it was going to be not great But I didn’t expect to see this. Found an evaluation of ME / CFIDS patients by severity. ““Those...

Interesting study in "Toxicology and Industrial Health" from 2009. The study is unique in that a comprehensive protocol was used instead of just one intervention. This of course makes it hard to tease out key variables, but does show the potential benefit of a comprehensive approach. The...

Poll: Famvir BRAND NAME vs Generic

Tyramine is a biogenic amine. Its similar in some ways to histamine, except broken down by MAO not DAO . Biogenic amines tend to be produced by protein as it ages (breakdown product of protein along with other amines) and sometimes by bacterial processing of undigested stuff. I should have...

Curious about role of "allergies" in the etiology of CFS as others have discussed as well. In my case, was triggered by dental work to which i had immune reactions. following local reactions of hives, i developed increased basophils, though they were fleeting and not enormously high. Still, i...

I've been researching NAD+ IVs extensively in the last few days. NAD+ is of course a crucial co-factor in cellular metabolism, and one that is plausibly deficient in many ME/CFS patients. ------------------- The full NAD+ infusion protocol is 7-12 days of 1500mg 8 hour infusions. This is...

This poll is for ME/CFS patients who have had their illness for 6 to 8 years or longer. The poll asks whether over the first 6 to 8 years of your illness, you slowly got worse, slowly got better, or remained reasonably stable in that period? Please exclude the first 2 years of your ME/CFS...

This poll is only for ME/CFS patients whose illness appeared immediately after vaccination. The poll asks whether post-vaccination ME/CFS patients have any chronic active herpesvirus or enterovirus infections, as viral infection-triggered ME/CFS patients often have. The purpose of this poll is...

Who has had their ADH (anti-diuretic hormone) levels checked and found them to be low? This has been discussed before but I’ve not seen a poll on it. A quick refresher... Antibodies to Arginine Vasopressin / ADH (AVPcAb) have been reported in post viral diabetes insipidus Low ADH has been...

If you want to answer the poll, please see read the info below. For a summary of the poll results, see here: This poll asks which standard ME/CFS treatment protocols have resulted in major improvements in your overall ME/CFS symptoms, which treatments have resulted in minor improvements...

A bit late, but I promised to report about Mestinon Trial (@echobravo) My new GP takes M.E. seriously. :thumbsup: Not only that, he allows me to trial Mestinon without going through a specialist which would be the normal route for this kind of off-label medication use. It works well for a...

There seems to be a huge contradiction in reported patient experiences in regards to the effectiveness of exercise for POTS vs ME/CFS patients. Many POTS patients report full or near remission with careful recumbent / water-based exercise over 3-9 months. This is even reported in post-viral...

A recent retrospective study of 49 POTS patients showed positive results for ivabradine (a funny channel antagonist that decreases heart rate and the amount of cardiac oxygen consumption): There is also an ongoing clinical trial (RCT) for the drug's use in POTS being conducted by Dr Pam Taub...

RituxME has failed, but many teatments remain to be tested. Interested to see people’s thoughts. If something isn’t listed feel free to comment below. I’ve tried to keep answer selections in the realm of feasibility (vs something risky like HSCT or infesible like CRISPR editing or organ...

I thought it would be interesting to see a more qualitative measure of the differing levels of severity represented here. By regular basis I mean do consistently without significantly worsening your condition Answer below and provide any qualifying details in comments

Please bear with me, this is my first attempt at creating a poll. I hope it works. There are quite a few threads here where people report various issues with sun exposure. I myself have always had polymorphic light eruption, it runs in my mother's family. Then I came across this link and it...

Add any symptoms not listed in comments below. I've not seen a similar poll posted before, please let me know if there has been. ------------------ This poll can hopefully help us: Understand how well this forum matches Canadian Consensus diagnostic criteria Gain greater appreciation for...

This is a poll for ME/CFS patients (you), and also optionally for a healthy control person (eg a healthy friend or family member) that you might like to recruit. The polls asks whether there is soreness or tenderness when you press your fingers or thumb into Perrin's point, a spot located on...

Please read before responding. I'm wondering whether people who have ME/CFS are willing to check off what their 'pattern' of ME/CFS is like. For the sake of expediency, I've copied the types of multiple sclerosis. I'd love to also characterize early vs later on in terms of symptoms, but for...

Caveats: This is a patient's anecdotal report We do not know their level of severity We don't know their definition of cure or what other treatments they were trying It took 4 years for the full result to manifest indicating a potential coincidence with spontaneous remission ARVs have strong...

Prednisone is a steroid with powerful immunosuppressant properties. It is sometimes used by rheumatologists to assess whether a patient has an autoimmune condition that may respond to other treatments (when laboratory testing and one's clinical picture are inconclusive). Note that the euphoric...

This poll asks whether the amount of reading you do has changed since you developed ME/CFS: are you still reading as much as you used to when you were healthy, or do you read less now that you have ME/CFS? Here I am referring to the in-depth sort of reading, that involves getting stuck into a...