pem

  1. Pyrrhus

    Prof. Betsy Keller Video: PEM – strategies for determining and managing the cardinal symptom of ME/CFS

    Prof. Betsy Keller Video: PEM – strategies for determining and managing the cardinal symptom of ME/CFS This was a presentation at a recent Swedish scientific conference:
  2. frozenborderline

    Doing buddhist practices with low energy

    Since having severe ME I have done a lot of emotional compartmentalization bc emotions take too much energy to process usually. I dont know if this is emotionally healthy but it seems to be what my body needs This has come into conflict with the buddhist practice I'm trying to do. The...
  3. Martin aka paused||M.E.

    Crashes - what does science tell us for practical use?

    My fear pwME on PR, as some of you might know, I'm very engaged in advocating and feel a kind of responsibility to educate pwME who can't read/understand/handle all the science on PubMed and elsewhere and want to translate that into plain language. Atm I'm dealing with a bad crash again and...
  4. nerd

    Chronic Fatigue Syndrome and Cardiovascular Disease: JACC State-of-the-Art Review

    Natelson BH, Brunjes DL, Mancini D. Chronic Fatigue Syndrome and Cardiovascular Disease: JACC State-of-the-Art Review. J Am Coll Cardiol. 2021 Sep 7;78(10):1056-1067 doi: 10.1016/j.jacc.2021.06.045 PMID: 34474739 Abstract
  5. MartinK

    Do sore throat / tonsil ulcers make you worse - PEM/inflammation?

    I realized one thing and I'm very interested. Before my ME/CFS started, I suffered also a lot from various upper respiratory illnesses - sore throat / tonsil ulcers / influenza. It often met me even when I was mild / moderate, not so much now, probably because Im at home at constant...
  6. frozenborderline

    Does pneumonia cause generalized muscle pains and spasms? Or PEM?

    I have this in hospital during cci surgery recovery and my ability to move is suddenly way worse, pain and muscle spasms way worse, they're being unclear about whether the pneumonia is totally the problem It could be worsened tethered cord. But the pneumonia and low grade fever could maybe...
  7. Phoenix Rising Articles

    Article Central Autonomic Network Disturbance in People with ME: A Conversation with Dr. Mark Zinn

    Central Autonomic Network Disturbance in People with ME: A Conversation with Dr. Mark Zinn Dr. Mark Zinn, along with his late wife Dr. Marcie Zinn, pioneered the use of advanced electro-encephalographic techniques to study myalgic encephalomyelitis. Image courtesy of Dr. Mark Zinn. by Bronc...
  8. MartinK

    majority or minority ME/CFS worsens only physical activity (not mental) (POLL)

    I'm very interested in this! In last years I wrote with many ME/CFS patients, or read posts here, on reddit, FB groups...whatever. After that long time, I feel like one of the few who have long-term severe and mooore seveve ME/CFS or PEM/crashes with no worsening mental activity...no brain fog...
  9. 20somethingspoonie

    How do I recondition after being bed bound?

    Because of the pandemic, I've pretty much stayed in bed for the last year. I want to slowly start to recondition, but I don't know where to start, especially because I want to avoid PEM.
  10. E

    Anyone feeling like he's living on a thread

    I have those very nasty PEM. Each time i had a PEM and i didn't even push myself my function decreased so much that it felt it was like a major evenement in my life as a stroke or a car accident. I can't get out of my energy enveloppe even for 10 seconds. I really feel that the next big PEM...
  11. Pyrrhus

    Post-Concussion Syndrome may come with PEM

    A common question that people ask is: "Are there any other conditions that also come with PEM?" A suggestion that Post-Concussion Syndrome (PCS) may possibly come with PEM/PENE seems to pop up often. Post-Concussion Syndrome follows a Traumatic Brain Injury (TBI): However, I am not aware...
  12. W

    2-day neurocognitive testing to measure cognitive crash?

    We're trying to justify treatment to insurance, but a standard 2-day exercise test doesn't get at my son's primary functional issues. His key items are the fatigue, anxiety, intractable headache, brain fog, bad sleep ... AND the neurocognitive/emotional crash he has after cognitive/emotional...
  13. Pyrrhus

    The evidence base for physiotherapy in ME/CFS when considering PEM: a systematic review and narrative synthesis (Wormgoor and Rodenburg, 2021)

    The evidence base for physiotherapy in myalgic encephalomyelitis/chronic fatigue syndrome when considering post-exertional malaise: a systematic review and narrative synthesis https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-020-02683-4 Excerpt: (emphasis added)
  14. Pyrrhus

    The development of an instrument to assess post-exertional malaise in patients with ME/CFS (Jason et al., 2018)

    This paper establishes a questionnaire that can measure Post-Exertional Malaise (PEM). (I don't think this paper from 2018 has been discussed yet.) The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome (Jason...
  15. Pyrrhus

    Meta-analysis investigating post-exertional malaise between patients and controls (Brown and Jason, 2018)

    This paper establishes Post-Exertional Malaise (PEM) as a cardinal symptom in ME. (I don't think this paper from 2018 has been discussed yet.) Meta-analysis investigating post-exertional malaise between patients and controls https://journals.sagepub.com/doi/10.1177/1359105318784161 Excerpt:
  16. Gemini

    NIH: ME/CFS "PEM" Focus Group Study Results Published

    The first paper from the NIH’s post-infectious ME/CFS study was published in Frontiers in Neurology: Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
  17. Murph

    Cardiopulmonary responses to exercise in an individual with ME/CFS during long-term treatment with intravenous saline: A case study (Davenport 2020)

    Cardiopulmonary responses to exercise in an individual with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome during long-term treatment with intravenous saline: A case study Article type: Research Article Authors: Davenport, Todd E.*; a; b | Ward, Michael...
  18. ChookityPop

    If I use my muscles a tiny bit too much I get PEM.

    Its so weird. Last year my legs suddenly "stopped" working. I got crazy lactic acid buildup and lots of pain. Walking in general sucks, but stairs and walking downhill is a lot worse. In november I removed snow from my car and "destroyed" my arms and got crazy PEM afterwards. I bought this car...
  19. O

    Anyone's symptoms get worse after doing anything stress related?

    I want to here from people who experience PEM and what the resulting symptoms are from PEM.
  20. hmnr asg

    handling mentally challenging tasks

    Hi everyone, So there is a lot of discussion on the forum about handling physically demanding tasks, e.g., using a heart rate monitor to ensure one's heart rate is not going above some baseline and breaking the tasks into smaller chunks and resting in between. What I like to ask the members...