pem

I'm very interested in this! In last years I wrote with many ME/CFS patients, or read posts here, on reddit, FB groups...whatever. After that long time, I feel like one of the few who have long-term severe and mooore seveve ME/CFS or PEM/crashes with no worsening mental activity...no brain fog...

Because of the pandemic, I've pretty much stayed in bed for the last year. I want to slowly start to recondition, but I don't know where to start, especially because I want to avoid PEM.

I have those very nasty PEM. Each time i had a PEM and i didn't even push myself my function decreased so much that it felt it was like a major evenement in my life as a stroke or a car accident. I can't get out of my energy enveloppe even for 10 seconds. I really feel that the next big PEM...

A common question that people ask is: "Are there any other conditions that also come with PEM?" Post-Concussion Syndrome (PCS) follows a Traumatic Brain Injury (TBI). It is often suggested that Post-Concussion Syndrome (PCS) may possibly come with PEM/PENE. However, I am not aware of any...

We're trying to justify treatment to insurance, but a standard 2-day exercise test doesn't get at my son's primary functional issues. His key items are the fatigue, anxiety, intractable headache, brain fog, bad sleep ... AND the neurocognitive/emotional crash he has after cognitive/emotional...

The evidence base for physiotherapy in myalgic encephalomyelitis/chronic fatigue syndrome when considering post-exertional malaise: a systematic review and narrative synthesis https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-020-02683-4 Excerpt: (emphasis added)

This paper establishes a questionnaire that can measure Post-Exertional Malaise (PEM). (I don't think this paper from 2018 has been discussed yet.) The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome (Jason...

This paper establishes Post-Exertional Malaise (PEM) as a cardinal symptom in ME. (I don't think this paper from 2018 has been discussed yet.) Meta-analysis investigating post-exertional malaise between patients and controls https://journals.sagepub.com/doi/10.1177/1359105318784161 Excerpt:

The first paper from the NIH’s post-infectious ME/CFS study was published in Frontiers in Neurology: Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...

Cardiopulmonary responses to exercise in an individual with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome during long-term treatment with intravenous saline: A case study Article type: Research Article Authors: Davenport, Todd E.*; a; b | Ward, Michael...

Its so weird. Last year my legs suddenly "stopped" working. I got crazy lactic acid buildup and lots of pain. Walking in general sucks, but stairs and walking downhill is a lot worse. In november I removed snow from my car and "destroyed" my arms and got crazy PEM afterwards. I bought this car...

I'm curious about this. Personally, sometimes PEM hits the next day, but often I find it takes a few days to hit and I wondered if this is the case for anyone else. I find this extra confusing, as I just think I've coped with something and then it hits me! A case in point was this week, I had a...

I want to here from people who experience PEM and what the resulting symptoms are from PEM.

Hi everyone, So there is a lot of discussion on the forum about handling physically demanding tasks, e.g., using a heart rate monitor to ensure one's heart rate is not going above some baseline and breaking the tasks into smaller chunks and resting in between. What I like to ask the members...

PEM is my most debilitating and troublesome symptom. I am wondering if anyone experiences what I do... My PEM feels different according to what activity has brought it on. Like when I work and get home I am almost always crashed the minute I walk in the door. I usually lay down and my body is...