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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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pem

  1. Pyrrhus

    The development of an instrument to assess post-exertional malaise in patients with ME/CFS (Jason et al., 2018)

    This paper establishes a questionnaire that can measure Post-Exertional Malaise (PEM). (I don't think this paper from 2018 has been discussed yet.) The development of an instrument to assess post-exertional malaise in patients with myalgic encephalomyelitis and chronic fatigue syndrome (Jason...
  2. Pyrrhus

    Meta-analysis investigating post-exertional malaise between patients and controls (Brown and Jason, 2018)

    This paper establishes Post-Exertional Malaise (PEM) as a cardinal symptom in ME. (I don't think this paper from 2018 has been discussed yet.) Meta-analysis investigating post-exertional malaise between patients and controls https://journals.sagepub.com/doi/10.1177/1359105318784161 Excerpt:
  3. Gemini

    NIH: ME/CFS "PEM" Focus Group Study Results Published

    The first paper from the NIH’s post-infectious ME/CFS study was published in Frontiers in Neurology: Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
  4. Murph

    Cardiopulmonary responses to exercise in an individual with ME/CFS during long-term treatment with intravenous saline: A case study (Davenport 2020)

    Cardiopulmonary responses to exercise in an individual with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome during long-term treatment with intravenous saline: A case study Article type: Research Article Authors: Davenport, Todd E.*; a; b | Ward, Michael...
  5. ChookityPop

    If I use my muscles a tiny bit too much I get PEM.

    Its so weird. Last year my legs suddenly "stopped" working. I got crazy lactic acid buildup and lots of pain. Walking in general sucks, but stairs and walking downhill is a lot worse. In november I removed snow from my car and "destroyed" my arms and got crazy PEM afterwards. I bought this car...
  6. keepswimming

    How soon does PEM hit after exertion?

    I'm curious about this. Personally, sometimes PEM hits the next day, but often I find it takes a few days to hit and I wondered if this is the case for anyone else. I find this extra confusing, as I just think I've coped with something and then it hits me! A case in point was this week, I had a...
  7. O

    Anyone's symptoms get worse after doing anything stress related?

    I want to here from people who experience PEM and what the resulting symptoms are from PEM.
  8. hmnr asg

    handling mentally challenging tasks

    Hi everyone, So there is a lot of discussion on the forum about handling physically demanding tasks, e.g., using a heart rate monitor to ensure one's heart rate is not going above some baseline and breaking the tasks into smaller chunks and resting in between. What I like to ask the members...
  9. soxfan

    Different feeling PEM depending on activities

    PEM is my most debilitating and troublesome symptom. I am wondering if anyone experiences what I do... My PEM feels different according to what activity has brought it on. Like when I work and get home I am almost always crashed the minute I walk in the door. I usually lay down and my body is...