I finally stopped drinking coffee, tea, and cocoa, and my brain fog is gone and my energy is close to normal I'm very sensitive to mold. I'm wondering if there's something in the drying/fermenting process that creates allergens that maybe we don't know about. Tea is by far the worst, and I...
I'm pretty sure that mold was the origin story of my ME/CFS although I've only realised it in the last year! My question is if I should still be looking to test / treat this, even though it was so long ago?
I lived in a London basement flat 2009 - 2011. We had a damp storage cupboard under the...
I started getting sick 8 years ago. At that time we got married, had fist kid, moved into new house and got a new used car. My symptoms were fatigue and sinus pressure. My wife never really got sick. I got a sleep study and it was negative. A few years later I developed a slight dizziness...
looking for podcast participants
Potentially upsetting
Looking for people to be interviewed on a podcast:
The most interesting things I'd like to talk about ir type of guests : 1. People who have had some kind of experience with environmental factors in their illness
People who have done some...
Prevalence of Aspergillus-Derived Mycotoxins (Ochratoxin, Aflatoxin, and Gliotoxin) and Their Distribution in the Urinalysis of ME/CFS Patients (Wu et al, 2022)
Abstract
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a known complex, multi-organ system disorder with a sudden or...
https://openletteropenmedicinefoundation.com/long-covid-and-environmental-toxins-lake-tahoe-2-0/
Heres a short post I made on my website about long covid and mold. Hopefully google indexes it soon.
For now, hopefully I can get some eyes on it by posting it here.
Just the scant beginnings of a long-term advocacy project I'm working on
Re environmental factors in this illness and having the omf address them.
https://openletteropenmedicinefoundation.com
Here's a new one, particularly long, in which I interview a friend I knew from school who got sick with similar issues simultaneously to me and ended up pursuing mold avoidance in new Mexico. We talk about his whole journey but at the end we get into his visions for using permaculture to...
Please help me get this person some resources. Including caregiving and a (paid of course) ride to the desert....
I'm desperate here. Writing to try and find a caregiver for someone with mild illness who is willing to help someone I know who is stuck in Los Angeles with possible me/cfs, get...
My fatigue doctor advised me to start taking Great Plains bentonite (a binder) for my mold toxin detox and we'll likely add more things to the treatment plan shortly after I move to my new apt at the end of Oct. I scored sky high on the Real Time Labs mycotoxin test.
Great Plains Bentonite...
So tomorrow I'm leaving for my first month of mold avoidance. A test run that I hope will give me a lot of information on how to move forward.
I'm severe, but I think I can avoid crashing, because I have what is hopefully enough help.
I don't know what to expect. It could be heaven, hell, or...
https://paradigmchange.me/wp/outdoor-toxins/
There is a lot of focus on building mold in me/cfs but often outdoor toxins are underlooked, because they are harder to study. But there is a large volume of anecdote suggesting they matter in me/cfs as much as building mold.
Made this video which id like to get to people at the Open Medicine Foundation and maybe other researchers as well.
As a side note, I find the thumbnail deeply unflattering and want tech support to know if I can edit the thumbnail from mobile
Please watch and share as widely as possible if...
WWYD -- What Would You Do? To those who are mold sensitive...
I am in the process of buying a house and the mold and mycotoxins tests (Realtime Labs) are being conducted Friday morning. Is there any level of mold or mycotoxin that you would remediate or would you walk away from the deal?
Do...
The RBC-NOX hypothesis
Hello again, everyone. Welcome, to the RBC-NOX hypothesis, which I consider by far my best idea yet.
It connects the IDO metabolic trap, red blood cell deformability, craniocervical instability (including recoveries after surgery), Alan Light’s research on fatigue...
Has anyone found that Dr Joseph Brewer's antifungal nasal spray, which is designed to kill nasal mold, triggers substantial fatigue and PEM, even after light doses for a few days?
I tried a home-made version of Brewer's nasal spray last week, and was hit with considerable tiredness and PEM...