I have mold illness symptoms but test negative for mold...

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I started getting sick 8 years ago. At that time we got married, had fist kid, moved into new house and got a new used car. My symptoms were fatigue and sinus pressure. My wife never really got sick. I got a sleep study and it was negative. A few years later I developed a slight dizziness, fatigue from certain foods, chemical sensitivities, joint pain and enlarged prostate.

I had nasal surgery in 2020 and 2021 for swollen sinus cavities but the inflammation keeps returning. Had an allergy test by immunologist and it was all negative. Got another sleep study and it was negative. Got lots of lab work and all normal, the only thing consistently out of range is high bilirubin. Normal testosterone, vitamin D, B12, autoimmune, lyme and thyroid. Brain MRI they said looked good.

I took a Great Plain and Real Time labs mycotox test and they were both negative. ERMI test I did came in at 4 which is pretty low. Professional mold inspector found some small areas of mold but nothing major. Mold in one supply duct, shower caulking and a little water damage from over flow washer about 3 years ago. They did several air samples and were very low. I did some gravity plate sampling and hey were negative.

My 8 year old has some nasal inflammation and fatigue. 5 year old son has nasal inflammation, mood issues and lack of appetite. I have mood issues too but I think it's from the fatigue and sinus swelling. I feel like if the mold in the house was an issue then I would test positive or the house testing would be positive.

Just got a new HVAC system a few months ago. I have a dehumidifier in each bathroom set at 45%. The old HVAC didn't control humidity as good and would get about 60% in spring and fall.

I'm still working but want to quit so bad. Feels like my whole head is inflamed. I have fatigue, sinus swelling, brain fog. Lesser symptoms: joint pain, headaches once a week, chemical sensitivities, irritability, eyes water when wearing mask, ear stuffiness, voice changes, bad breath and enlarged prostate. I have a history of anxiety, GERD 2006, Barretts 2021, headaches, TMJD, bruxism and rosacea.
 
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I feel like I make others sick too. Like I make people yawn. I guess because of how tired I look or because of the voice changes. My eyes water at work when I have to wear a mask and my symptoms seem to transfer to the people I talk to. It's not my job because it is a clean room and thousands of people work here. Plus the fatigue started 8 years ago and have had 3 different jobs in that time frame.

Different diets seem to have no effect. I do notice reflux from rice and fatigue from dairy. PSA or whatever its called prostate urine test came out fine. Nasal swab from ENT was fine. So it's like their is no infections but just something causing swelling. The sinuses mostly but also prostate.

Maybe it is MARCoNS? My wife just has weight gain since having 3 kids and high TSH but not hypothyroid yet. We also have 2 Austin air purifiers. I've tried different HVAC filters, UV lights, etc and nothing seems to help.

I've tried different sinus rinses, red LED sinus therapy, probiotic sinus rinses, probiotics, SSRIs, CPAP and nothing seems to help.
 

hapl808

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I think this is the challenge of 'mold' stuff. There seems to be something to it, but not sure that mold tests or Shoemaker or any of that stuff actually works. I saw a mold doctor who was sure that my MARCoNS test would be positive (it wasn't), I took CSM for a couple weeks (no real change until I had a bad reaction one day), and so forth. My feeling is that CIRS is a correct identification of an underlying problem but a faulty explanation of the etiology.

In short, no idea. I didn't try CPAP but definitely considered that. Have you tried wearing a P100 level mask for a bit and seeing how much it helps your symptoms?
 
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I started getting sick 8 years ago. At that time we got married, had fist kid, moved into new house and got a new used car. My symptoms were fatigue and sinus pressure. My wife never really got sick. I got a sleep study and it was negative. A few years later I developed a slight dizziness, fatigue from certain foods, chemical sensitivities, joint pain and enlarged prostate.

I had nasal surgery in 2020 and 2021 for swollen sinus cavities but the inflammation keeps returning. Had an allergy test by immunologist and it was all negative. Got another sleep study and it was negative. Got lots of lab work and all normal, the only thing consistently out of range is high bilirubin. Normal testosterone, vitamin D, B12, autoimmune, lyme and thyroid. Brain MRI they said looked good.

I took a Great Plain and Real Time labs mycotox test and they were both negative. ERMI test I did came in at 4 which is pretty low. Professional mold inspector found some small areas of mold but nothing major. Mold in one supply duct, shower caulking and a little water damage from over flow washer about 3 years ago. They did several air samples and were very low. I did some gravity plate sampling and hey were negative.

My 8 year old has some nasal inflammation and fatigue. 5 year old son has nasal inflammation, mood issues and lack of appetite. I have mood issues too but I think it's from the fatigue and sinus swelling. I feel like if the mold in the house was an issue then I would test positive or the house testing would be positive.

Just got a new HVAC system a few months ago. I have a dehumidifier in each bathroom set at 45%. The old HVAC didn't control humidity as good and would get about 60% in spring and fall.

I'm still working but want to quit so bad. Feels like my whole head is inflamed. I have fatigue, sinus swelling, brain fog. Lesser symptoms: joint pain, headaches once a week, chemical sensitivities, irritability, eyes water when wearing mask, ear stuffiness, voice changes, bad breath and enlarged prostate. I have a history of anxiety, GERD 2006, Barretts 2021, headaches, TMJD, bruxism and rosacea.
Hey I am too tired to repost all of my info on mold but I highly recommend checking the podcast I did on it out. I also recommend the website paradigmchange.me, Erik Johnsons work, lisa petrisons mold avoiders Facebook groups, the beginners guide to mold avoidance. I have a podcast that covers both Lyme and mold here https://soundcloud.com/headlessyouthpodcast%2Ftribulations-25-ft-allegedlyzo
 
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Tests are mwaningless. Current tests are. I covered the other kind of testing. Sabbaticals, in this podcast: https://soundcloud.com/headlessyouthpodcast%2Fgo-west-young-man Like I said I'm not just trying to promote my podcast. Others have covered the same info. Lisa petrisons website paradigmchange.me is good, Julie rehmeyers book "through the shadowlands" is good.

The podcast episode I did where we cover the lake Tahoe outbreaks the most , "origin story part III", is also good for this info.