• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Jody
2 min read
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7
User Blogs
Monday, August 3, 2009 I was thinking about how being a chronic, we are so isolated, and some of the things I miss are so very mundane. I miss having a friend drop by for a cup of coffee or whatever. I miss the type of chitchat I used to have with people in my homeschool group...
rosebud
1 min read
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695
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1
User Blogs
Hi all, I am new to your group and am very impressed with the PWC's who post on this forum. I was diagnosed with fibromyalgia in 1990, but in looking back, I also had MCS's, cognitive dysfunction and many symptoms, except fatigue I eventually got involved with the fibro community and have...
Jody
1 min read
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639
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2
User Blogs
Saturday, August 1, 2009 I write to my imaginary friend, the one who is always there, always wants to KNOW me. I write believing I can hear a response (my imaginary friend ALWAYS gives a response, lest I feel unloved or alone). When I find indifference and lack of regard in the rest of...
Jody
1 min read
Views
428
User Blogs
Some animals use echolocation to orient themselves. They emit calls to the world and listen for echoes from their environment. This helps them determine where they are, where they are going, and what if anything is near. Here is a poignant metaphor. We call out to find our place, to see if...
Jody
1 min read
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781
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3
User Blogs
How does a wealthy man get, and stay, wealthy? He doesn't do it by spending everything he has. Bingo, CFS'ers, Push-Crashers. All you really need to know about the role of rest and regeneration. In a nutshell. If you keep spending your energy, ... well, it's gone, isn't it. It...
Cort
3 min read
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1K
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7
User Blogs
Years ago, in the depths of ME/CFS, I took a course called the EST Training (now called the Forum) which was designed to increase one's vitality and participation in life. The course worked - altho I still had ME/CFS afterwards - it did increase my vitality enormously. Taking A Stand - One of...
Jody
1 min read
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518
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User Blogs
Friday, July 24, 2009 I posted an article on Ncubator yesterday called No Disability for Jody. Since then Ive received two lovely emails from friends who were shocked to learn of my state of affairs. I appreciated these so much. It got me thinking, though. And I want to clarify something...
Cross-posted at Behind the surface Anne Shirley has been a kindred spirit ever since I first watched the Kevin Sullivan production of the classic book by L.M. Montgomery. The first time I heard her talk about "so much view for the imagination," I remember thinking, someone else thinks like...
Jody
1 min read
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595
User Blogs
Wednesday, July 22, 2009 If youve ever had a tendency to feel indispensible, a good run-in with CFS will cure you of that. You will discover in short order that you are indeed dispensible, and possibly even forgotten, faster than you can imagine. It is a heartbreak. And it is a...
Jody
1 min read
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504
User Blogs
Monday, July 20, 2009 If an area is cordoned off and you dont heed the warning and go ahead anyway, dont be surprised if you fall through. All those symptoms making our lives a misery? Cautionary signs weve been ignoring and then were surprised when we crash. Our idiot lights are...
Jody
1 min read
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619
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User Blogs
Saturday, July 18, 2009 I'd like to say I do this for the good of mankind. That that's why I write here. I'd like mankind to be healthy and happy, don't get me wrong. But I am not here on the net for mankind. I am here for me. Because the silence from the rest of the world has been...
Jody
1 min read
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597
User Blogs
Friday, July 17, 2009 My world had gotten very small. I would look around and see, really, nothing out there for me, beyond my own four walls. Suffocating. Depressing. Infuriating. So I took a leap through the portal of my laptop, into the virtual world of the net. The reason I am...
Jody
2 min read
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763
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2
User Blogs
Monday, July 13, 2009 I guess its been a good week. I know it has. Yet I feel unsatisfied. That seems strange to me. I am involved in things that just three months ago would have been beyond my ability to imagine. If youd told me then what the next three months would hold, I would have...
Jody
1 min read
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584
User Blogs
Sunday, July 5, 2009 Lazarus! Come forth! Imagine Lazarus, appearing in the opening to the tomb, still wrapped in his graveclothes, a miracle standing before the people and everybody just wandered away leaving good ol Lazarus to unravel himself and figure out his own way back into...
Jody
1 min read
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563
User Blogs
Friday, July 3, 2009 Its my husband Alans birthday today. He is celebrating by having an emissions test done on the car, and going to get a licence sticker for it. Birthday dinner tonight is steak with mushrooms, broccoli with cheese sauce, coffee with cream (18 %) and caramel chocolate...
Jody
1 min read
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592
User Blogs
Thursday, July 2, 2009 I feel like Rip Van Winkle, after he woke up, looking around at a changed world. I speak of the virtual world of the internet. Two months ago I set out to have my own website and felt rather smug that so much was familiar, even after six years absence. However...
Jody
1 min read
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543
User Blogs
Wednesday, July 1, 2009 Happy Canada Day, all. Or for the old-time purists like myself, Happy Dominion Day. I am celebrating by starting a real blog. I had my website before I was able to get a real blog going, so had a journal of sorts for the last couple of months. But this is way...
Cort
3 min read
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2K
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8
User Blogs
I've use this little technique more often and more successfully than any other. It's not as powerful as the Amygdala Retraining technique but it's easier and for me it's more consistent. The neuro- reprogramming technique came to me while I was reading a book by Norman Doidge called "The...
Rosalie
1 min read
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2K
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5
User Blogs
:DI've been doing a little searching on the site and I've come across a term I'm not familiar with "AR" I think it has something to do with keeping up with an exercise regime. I guess I haven't gotten to that place yet, I'm still at the stage where when I get to the top...
Cort
2 min read
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826
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1
User Blogs
The AR retraining blog is back and I'm a little embarrassed. The problem is that I've not been doing the training that much. Recently I've found that the 'world' pulls me in too much. The dog pulls me in greatly since it's so hard to see this vigorous dog sit around with his mopey eyes. The...
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