• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Jody

Jody
4 min read
Views
523
Reaction score
4
User Blogs
May 12, 2013 is International ME/CFS and FM Awareness Day. ME is the acronym for myalgic encephalomyelitis. CFS stands for chronic fatigue syndrome. FM is the short form for fibromyalgia. In researching online for this article, I was disappointed by what I found ... or didn't find. I...
Jody
3 min read
Views
540
Reaction score
5
User Blogs
My friend just died. Lynda suffered from a number of autoimmune conditions, not the least of which was Chronic Fatigue Syndrome. CFS descended upon her two decades ago, after she was exposed to someone with a bad virus. They got better, and their life went on. Lynda didn't recover, and her...
Jody
4 min read
Views
2K
Comments
17
User Blogs
I wrote this article for www.empowher.com -- 1. I can stay out of bed during the day. Before Chronic Fatigue Syndrome led me to my naturopath Dr. Kelly Upcott, I was spending anywhere from 5 to 8 hours during the daytime in bed. I was also sleeping 8 to 10 hours at night. The rest periods...
Jody
3 min read
Views
2K
Reaction score
2
Comments
10
User Blogs
(written for EmpowHER.com http://www.empowher.com/chronic-fatigue-syndrome/content/chronic-fatigue-syndrome-10-things-people-misunderstand-about-fatig) I think we can all agree that Chronic Fatigue Syndrome is a stupid name for an incapacitating illness. I think we can also agree that it is...
Jody
2 min read
Views
2K
Comments
12
User Blogs
Its not enough for me to let you know I have Chronic Fatigue Syndrome and I dont feel good. I want to give you details, about an astonishing variety of stultifying symptoms that are real life-stoppers. And I want you to be haunted by a chronic with a face. If its me, well and good. If its...
Jody
2 min read
Views
1K
Comments
8
User Blogs
My son Jesse and I went to my moms for an early Mothers Day visit this afternoon. Though we only live a three minute drive away from her, this is the first time since around Christmas that Jesse has been able to make this trip. I have been over to see her a few times since the New Year, but...
Jody
3 min read
Views
3K
Comments
25
User Blogs
It is a fearsome thing to find oneself living outside the camp. As the sickness of Chronic Fatigue Syndrome causes the circle of life to shrink, as the chronic element reduces our contacts with other people, we find ourselves moving (or being moved) further and further away from the campfire...
Jody
1 min read
Views
1K
Comments
9
User Blogs
During the winter, CFS seems to close in on me in a way that was not happening during the warmer months. I am not as ill as I was last winter, but the day to day habits of my life become more closed in and insular. While I dont have the distressing neurological symptoms from before, my...
Jody
1 min read
Views
793
Comments
4
User Blogs
Wednesday, October 7, 2009 The weather has turned cooler and overcast these days. Summer is over. It seems every year that in the change of seasons from summer to fall, I experience some downturn. Some years have been worse than others. This fall so far has been, I think, the gentlest one...
Jody
1 min read
Views
440
User Blogs
Its my birthday today. I am now 54 years old. And still recovering from CFS. Both in the long term (17 years and counting) and in the short term, from a crash that started about a month ago. I had been hoping that with better health this year, that this couldnt happen anymore. And now I...
Jody
1 min read
Views
431
User Blogs
September 3rd marked Ncubators 4 month milestone. And then I had a crash. We chronics use this word to indicate an ugly relapse into old symptoms, lasting anywhere from a few days to a few weeks to months to years depending on the crash. You never know till you come out of one, what...
Jody
1 min read
Views
418
User Blogs
There is an alchemy that comes about in relationship to others that cannot come into existence in isolation. Can you picture a hammock tied to only one tree?
Jody
2 min read
Views
1K
Reaction score
1
Comments
7
User Blogs
Monday, August 3, 2009 I was thinking about how being a chronic, we are so isolated, and some of the things I miss are so very mundane. I miss having a friend drop by for a cup of coffee or whatever. I miss the type of chitchat I used to have with people in my homeschool group...
Jody
1 min read
Views
638
Comments
2
User Blogs
Saturday, August 1, 2009 I write to my imaginary friend, the one who is always there, always wants to KNOW me. I write believing I can hear a response (my imaginary friend ALWAYS gives a response, lest I feel unloved or alone). When I find indifference and lack of regard in the rest of...
Jody
1 min read
Views
427
User Blogs
Some animals use echolocation to orient themselves. They emit calls to the world and listen for echoes from their environment. This helps them determine where they are, where they are going, and what if anything is near. Here is a poignant metaphor. We call out to find our place, to see if...
Jody
1 min read
Views
780
Comments
3
User Blogs
How does a wealthy man get, and stay, wealthy? He doesn't do it by spending everything he has. Bingo, CFS'ers, Push-Crashers. All you really need to know about the role of rest and regeneration. In a nutshell. If you keep spending your energy, ... well, it's gone, isn't it. It...
Jody
1 min read
Views
517
Reaction score
1
User Blogs
Friday, July 24, 2009 I posted an article on Ncubator yesterday called No Disability for Jody. Since then Ive received two lovely emails from friends who were shocked to learn of my state of affairs. I appreciated these so much. It got me thinking, though. And I want to clarify something...
Jody
1 min read
Views
594
User Blogs
Wednesday, July 22, 2009 If youve ever had a tendency to feel indispensible, a good run-in with CFS will cure you of that. You will discover in short order that you are indeed dispensible, and possibly even forgotten, faster than you can imagine. It is a heartbreak. And it is a...
Jody
1 min read
Views
503
User Blogs
Monday, July 20, 2009 If an area is cordoned off and you dont heed the warning and go ahead anyway, dont be surprised if you fall through. All those symptoms making our lives a misery? Cautionary signs weve been ignoring and then were surprised when we crash. Our idiot lights are...
Jody
1 min read
Views
618
Reaction score
2
Comments
1
User Blogs
Saturday, July 18, 2009 I'd like to say I do this for the good of mankind. That that's why I write here. I'd like mankind to be healthy and happy, don't get me wrong. But I am not here on the net for mankind. I am here for me. Because the silence from the rest of the world has been...

Blog information

Author
Jody
Blog entries
26
Last update
Back