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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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User Blogs
When I finally got what the Chase Community Giving Contest really is it made my jaw drop. What it is is easy money for non-profits - and lots of it - and in these difficult economic times that's a godsend for nonprofits.
Chase has deposited a boatload of money (5 million dollars) that it's...
I put this together after getting an email from someone I know about a kind of unusual treatment that worked very well for her.
Junes adrenal glands werent just low - they were shot. In fact her cortisol levels were low enough to get her diagnosed with Addisons disease; a disease...
I have had a couple of good days and I want to share them with you. I may not be so descriptive, but instead, just talk of how happy I am to have a couple of good days. I am trying new therapies and I am sure that has something to do with it. I will mention them first. I am doing peptide...
I've been a member of an online disabled dating site for several years. And all I've met are losers, abusers, and incompatibles.
I've also met alot of disabled men who said they cannot handle my disability. As soon as they learn about it or watch my videos about it, it's totally forget...
http://www.cfsclinic.com/NK_photo_adjusted_op_558x643.jpgDr. Klimas has been one of the central figures in CFS. A prominent AIDS researcher in the mid-1980's she became acquainted with CFS when patients with another strange kind of immune dysfunction showed up on her door. In Osler's Web she...
Could I please direct all over-heated members to the Joke of the Day thread.
(I suspect you are all feeling a little disgruntled, fed up with Chronic illness & pain, & need a good laugh)
I am starting a competition.
Whoever posts the funniest Joke of the Month of June, wins the $50 credit...
Suppose, just suppose for the sake of discussion, that true replication studies in well-defined cohorts confirm the Whittemore Peterson Institute's XMRV findings in ME/CFS. What does that actually tell us, where do we need to go from there, and what questions will need to be answered...
A quick report from my trip last week. This is equal parts blog, doctor report, and travelogue. Feel free to move to the docs section or elsewhere if more appropriate.
I ventured to Miami to see Irma Rey, who works with Nancy Klimas. I saw her at the University of Miami, hence was able to...
A quick report from my trip last week. This is equal parts blog, doctor report, and travelogue. Feel free to move to the docs section or elsewhere if more appropriate.
I ventured to Miami to see Irma Rey, who works with Nancy Klimas. I saw her at the University of Miami, hence was able to...
It was worse than just being ignored. The problem was this arrogant nurse was trying to make me feel invisible - As if I didn't exist - And that I just couldn't permit.
It happened at the clinic. This nurse was a freelance RN hired exclusively by another patient to do her infusions at my...
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I had met someone recently. And he led me on for a few weeks, really making me believe we could have a relationship. And then tonight, he said to me that he thought about it and he can't deal with my disability. He can't deal with the fatigue. So, I've just been crying all night over it. He...
Hi all!
I thought I would write an upbeat blog! It's about time, right? Well, next week the axe will fall "possibly." Hormones. So until then, I will revel in my good day. It was one good day out of 7, but I will take what I can get. Because that one day is so special, I hope to write...
Owwwwwwwwwww. Went foodshopping yesterday and flaring into today. Got the usual flare up last night. Pain, tons of pain. Feels like someone is ripping every nerve cell out of my body. People who don't have this never understand. It literally feels like someone is ripping apart the nerve...
Had another phone appointment yesterday with Dr. Buscher our CFS/MCS specialist. Seemed time to consult him since Jeremy and I had tried everything we could think of doing on our own but to no avail.
It didn't take Dr. Buscher long to figure out what is very likely happening to us. This year...
The Problem - We know CFS patients cant get any respect. We have solid data showing there are high rates of CFS prevalence (@1,000,000 people in the US), that CFS causes high economic losses (up to 20 billion dollar a year), and that it causes high rates of disability. In short we have data that...
My favorite line in the "Bourne" trilogy is given by The Professor. He appears briefly in the first installment, but it is in the second film, the Bourne Conspiracy, that Clive Owen utters the quintessential phrase of the movie. After dueling with fellow agent Jason Bourne in the countryside...
