Connecting the Dots with EDS in Managing Pain w/Dr. Pradeep Chopra

[nyanko_the_sane]

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Connecting the Dots with EDS in Managing Pain w/Dr. Pradeep Chopra

Not sure how this great webinar got past us, but I am posting it here for everyone. For additional great resources on the subject of EDS visit: https://www.ehlers-danlos.com/

The webinar slides:
https://www.ehlers-danlos.com/pdf/2018-EDS-Webinar-Chopra.pdf

@nyanko_the_sane - Thank you so much for posting this webinar. It was excellent. I had just passed off learning about EDS because I thought it was all about having hyper mobile joints, which I don’t have. I also did not understand much about mast cells, but figured this was not an issue for me because those who seemed to be diagnosed with this problem seemed to be so severely effected by this condition.

After watching this video and beginning to understand a little bit more about cranial instability, connective tissue issues and mast cells, I am beginning to see a bigger picture evolve that could explain a lot of symptoms that I experience. These are symptoms that I never mention to doctors anymore because you see their eyes begin to glaze over when you start using the fingers on your second hand to count past the first 5 symptoms that stand out to you the most.

Interestingly, many of the underlying symptoms identified in this webinar were never asked about by my ME CFS physician. Is there a disconnect in what some of our “ experts” may understand about this illness or other illnesses that may co-exist with ME or CFS?

I would highly recommend other people watch this webinar. I would also recommend that this particular video have its own thread because I think it may generate a lot of interest and discussion.