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mcas

  1. M

    Elevated CU index - Autoimmune Mast Cell Disease?

    My new immunologist had me do a test recently called a CU index. I had an elevated result with autoantibodies against IgE. More info on CU index if interested https://www.viracor-eurofins.com/test-menu/2103-cu-index/ From what I understand, the CU index is done for patients with chronic...
  2. debored13

    Outdoor toxins of particular relevance to mold illness patients

    https://paradigmchange.me/wp/outdoor-toxins/ There is a lot of focus on building mold in me/cfs but often outdoor toxins are underlooked, because they are harder to study. But there is a large volume of anecdote suggesting they matter in me/cfs as much as building mold.
  3. J

    Elevated Vitamin D 1,25 Dihydroxy and Low Vitamin D, 25-OH

    Hello all, I have an abundance of multi-system symptoms that seem to be some sort of chronic version of ME, dysautonomia, autoimmune or other "zebra" type issue yet to be diagnosed. Recently, an endocrinologist that also specializes in Mast Cell Activation Syndrome (a hunch that I had and we...
  4. debored13

    Swelling and itching help, possible infections??

    Below is what I posted in r/askdocs I think it's a good summary of my situation and too tjred to repeat myself much. The things I wonder most about are valley fever and chagas disease ... seems more likely to be fungal or parasitic than bacterial and more likely to be some infection than an...
  5. MariaMagdalena

    Brand New Rash with Petichiae. MCAS?

    Hi Everyone! Please forgive if this has been discussed elsewhere. I'm at the end of my cognitive endurance for the day and can't deal with sorting through threads at the moment. I developed 2 weird skin issues in the last week. This is highly unusual for me, but not unheard of in the long...
  6. nyanko_the_sane

    Connecting the Dots with EDS in Managing Pain w/Dr. Pradeep Chopra

    These Posts Have Been Moved from: https://forums.phoenixrising.me/threads/jen-brea-on-whether-some-of-us-might-be-mis-diagnosed-eds-patients.75684/page-2 Connecting the Dots with EDS in Managing Pain w/Dr. Pradeep Chopra Not sure how this great webinar got past us, but I am posting it here...
  7. Galixie

    Just Dermatographism or MCAS?

    A couple of weeks ago, the back of my shoulders started feeling itchy and tight. The itchiness progressed to my neck, chest, face, arms, and legs over the next couple of days. The worst day also included a bad sinus headache and probably the worst heartburn I've ever had. (It was so painful I...
  8. S

    MCAS in Portugal

    Here is Dra. Margarida Lima from the public hospital in Porto speaking about MCAS. She is doing a lot to raise awareness in Portugal, and has access to run fairly in depth tests that are analyzed in Porto, and also sent to a specialist MCAS lab in Spain. It’s in Portuguese...