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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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chiari

  1. Markthehatter

    Chiari Malformation support

    Hi all, I hope this finds you as well as you can be. This is a long post so for those that don't have the energy or want to read a long post, I will get to the main points first. I have been suffering with significant long covid since March 2022 (symptoms below) and have been predominantly...
  2. J

    #MEspine hashtag

    Just FYI, I’ve started a new hashtag on Twitter, #MEspine: https://twitter.com/hashtag/MESpine I know a lot of folks on PR aren’t on Facebook, where a lot of the EDS, tethered cord, Chiari, CCI/AAI, etc. groups are. Hopefully this will make it easier to follow research and patient stories. Most...
  3. tiredgirl928

    My MRI images for CCI/AAI/Chiari/tethered cord

    I just had my upright MRI completed and I was wondering if anyone could offer some insights :) I have numbness and weakness all over, but it is worse on the R side (along with fatigue, insomnia, GI issues, and PEM). I have not been evaluated for Ehler-danlos, but I do have noted hypermobility...
  4. nyanko_the_sane

    Connecting the Dots with EDS in Managing Pain w/Dr. Pradeep Chopra

    These Posts Have Been Moved from: https://forums.phoenixrising.me/threads/jen-brea-on-whether-some-of-us-might-be-mis-diagnosed-eds-patients.75684/page-2 Connecting the Dots with EDS in Managing Pain w/Dr. Pradeep Chopra Not sure how this great webinar got past us, but I am posting it here...