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chiari

  1. J

    #MEspine hashtag

    Just FYI, I’ve started a new hashtag on Twitter, #MEspine: https://twitter.com/hashtag/MESpine I know a lot of folks on PR aren’t on Facebook, where a lot of the EDS, tethered cord, Chiari, CCI/AAI, etc. groups are. Hopefully this will make it easier to follow research and patient stories. Most...
  2. tiredgirl928

    My MRI images for CCI/AAI/Chiari/tethered cord

    I just had my upright MRI completed and I was wondering if anyone could offer some insights :) I have numbness and weakness all over, but it is worse on the R side (along with fatigue, insomnia, GI issues, and PEM). I have not been evaluated for Ehler-danlos, but I do have noted hypermobility...
  3. nyanko_the_sane

    Connecting the Dots with EDS in Managing Pain w/Dr. Pradeep Chopra

    These Posts Have Been Moved from: https://forums.phoenixrising.me/threads/jen-brea-on-whether-some-of-us-might-be-mis-diagnosed-eds-patients.75684/page-2 Connecting the Dots with EDS in Managing Pain w/Dr. Pradeep Chopra Not sure how this great webinar got past us, but I am posting it here...