pots

  1. M

    Patients in Ontario/Canada - Can doctors refuse to accept referrals?

    Hello, I have a question for those patients that have to deal with the Ontario Health System. I have POTS, and my GP agreed to refer me to a cardiologist that specializes in that condition. He practices in a Hamilton hospital, but I do not live there. To my surprise, my request was denied by...
  2. 2Cor.12:19

    Chasing Rainbows: Sleep Apnea, Polyneuropathy, & SIBO

    Sometimes it seems like all I ever do is chase rainbows. With each new diagnosis and corresponding treatment, supplement, diet --fill in the blank, comes a glimmer of hope for significant and lasting improvement. But it always ends up being just another small piece of the puzzle leaving me...
  3. Pyrrhus

    Deconditioning does not explain orthostatic intolerance in ME/CFS (van Campen, Rowe, and Visser, 2021)

    Deconditioning does not explain orthostatic intolerance in ME/CFS (van Campen, Rowe, and Visser, 2021) https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-021-02819-0 Excerpt: I thought the title statement should have been obvious to people by now, but apparently not...
  4. Cipher

    Circulating levels of growth hormone in postural orthostatic tachycardia syndrome (Johansson et al. 2021)

    Circulating levels of growth hormone in postural orthostatic tachycardia syndrome
  5. Aspen

    Abdominal compression tips?

    Hi folks, I’m looking for any tips you have about using abdominal compression gear to help with POTS. I recently purchased an elastic abdominal support with velcro closure, and while I love the effects of abdominal compression in general I’m having lots of trouble with the gear itself. The...
  6. M

    Post-Covid POTS and alpha-1 adrenergic AABs (G-Protein receptors)

    A couple of weeks after I contracted Covid, I developed symptoms that resemble Hyperadrenergic POTS, which have persisted for the past ~10.5 months. I went for a POTS panel, and ended having elevated levels for * Alpha-1 Adrenergic AABs As well as at risk for * AT1R AABs These are not too...
  7. W

    2-day neurocognitive testing to measure cognitive crash?

    We're trying to justify treatment to insurance, but a standard 2-day exercise test doesn't get at my son's primary functional issues. His key items are the fatigue, anxiety, intractable headache, brain fog, bad sleep ... AND the neurocognitive/emotional crash he has after cognitive/emotional...
  8. Muon

    Is POTS a central nervous system disorder? (Blitshteyn, 2021)

    Is postural orthostatic tachycardia syndrome (POTS) a central nervous system disorder? (Blitshteyn, 2021) Same thread on Dinet forum Abstract Postural orthostatic tachycardia syndrome (POTS), a disorder of the autonomic nervous system characterized by a rise in heart rate of at least 30 bpm...
  9. Muon

    Inflammatory Biomarkers in Postural Orthostatic Tachycardia Syndrome with Elevated G-Protein-Coupled Receptor Autoantibodies

    Inflammatory Biomarkers in Postural Orthostatic Tachycardia Syndrome with Elevated G-Protein-Coupled Receptor Autoantibodies (Published: 6 February 2021 ) Abstract A growing body of evidence suggests that postural orthostatic tachycardia syndrome (POTS) may be an autoimmune disorder. We have...
  10. frozenborderline

    Keeping a master list of all abnormal results in my case

    Starting now and off the top of my head. I will have a caregiver go back to the actual documents to find details as they come up. For now , however, I will post that something is out of range without specific number as I'm going from memory. Abnormal Clivo axial angle, on two separate...
  11. mitoMAN

    Moxonidine

    Came across this interesting clinical Trail with Moxonidine. has anyone here tested Moxonidine for their POTS? Autonomic Determinants of POTS - Pilot 2 https://clinicaltrials.gov/ct2/show/NCT04140721 Detailed Description: Patients with POTS experience symptoms and an increase in heart rate≥30...
  12. mitoMAN

    GSK-126 inhibit EZH2 activity - first potential POTS cure

    GSK-126 inhibit EZH2 activity - first potential POTS cure Targeting Treatment Refractory NET by EZH2 Inhibition in Postural Tachycardia Syndrome https://www.ahajournals.org/doi/abs/10.1161/CIRCRESAHA.119.315654 Resources...
  13. ChookityPop

    Anyone resolved blood pooling?

    This is my biggest problem. If I can fix this, I think that I would be in much better shape. I have Pectus Excavatum which can mimic POTS and I think I will have to do the NUSS procedure in the hopes it can better my symptoms. I use compression, drink fluid, salt and Mestinon. I also have...
  14. ChookityPop

    Anyone cured their POTS?

    I have blood pooling and the last week I have been experiencing dizziness for the first time. Though I should note that Ive been on Mestinon for 3 days. Ive seen people reverse their pots with: Abx IVIG & Rituximab I read somewhere that doxycycline could help strengthen ligaments, could this...
  15. P

    Role of EZH2 in ME/ CFS and POTS

    Hi, I have been a silent reader of this forum for many years. During the past couple of months, I often had to think about a study from Australia. There, it is said, that POTS (at least in a subgroup) is caused by an epigenetic malfunction of the NE-Transporter. This epigenetic malfunction can...
  16. Jwarrior77

    Eosinophils and their role in Connective Tissue Disorders, Autonomic Dysfunction, and Mast Cell interactions.

    There has been increasing research on the role of eosinophils and connective tissue disorders. The eosinophils main role is fighting off parasitic infections, however they also play a huge part in allergic responses and inflammation. They release many cytotoxic and neurotoxic chemicals that...
  17. nyanko_the_sane

    Connecting the Dots with EDS in Managing Pain w/Dr. Pradeep Chopra

    These Posts Have Been Moved from: https://forums.phoenixrising.me/threads/jen-brea-on-whether-some-of-us-might-be-mis-diagnosed-eds-patients.75684/page-2 Connecting the Dots with EDS in Managing Pain w/Dr. Pradeep Chopra Not sure how this great webinar got past us, but I am posting it here...
  18. Saraswati

    Muscle issues-dehydration/electrolytes

    I don't know exactly how much I should drink so am sticking with 12 cups of water a day (very thirsty and peeing a lot) from hyper POTS/mild hyperaldosteronism. But I have been getting muscle aches/cramps (more like muscle pulling sensation) behind my knees lately. I had my sodium and potassium...
  19. M

    A little confused about POTS

    Ive been seeing a lot of people post about POTS here on PR and I am honestly a little confused about it. From my understanding it has something to do with blood volume in your body?? And how it changes/lacks change when standing??? Every time I google it I just get confused and find that...