@Freddd Please don't take this the wrong way because I don't mean this as an attack or insult. But over the years you keep saying you've recovered, you've healed yourself, yet every few years you mention dealing with new issues causing more problems, like when you suddenly couldn't tolerate dietary folate, or when your neuropathy got worse when you became copper deficient after taking 50 mgs of zinc without
any copper -- something you recommended for years and years.
I'm sincerely glad you've been able to recover to the extent you have, and I know others are grateful that your advice has helped them too. But perhaps a better word would be '
recovering'?
Let's see, I am managing Subacute combined degeneration. I am managing scoliosis with the help of my chiropractor. I am being treated for the neuropathies with a couple of different electro stimulation devices and I'm getting some nerve function returning. And I am managing other problems. However, I am HEALING, recovering from CNS COB[II] deficiency caused by TCR deficiency. Anybody else doing that? That involves several at least of the micronutrients in the more complete version of this list of group's of refeeding symptoms. So let me put it this way. If a person has one or more compartments having healing then they are likely having more and other symptoms worsen in other compartments that are not healing. SO I went through a couple of hundred cycles of folate deficiency from refeeding syndrome. I had my specific group of quick symptoms each time. The cycle goes to back to childhood. as does a low potassium . Right now I am RECOVERING from TCR deficiency in my CNS. That appears to be the cause or a contributing cause of FMS, CFS, MS, Parkinson's and other things in combination with micronutrient deficiencies which accounts for the specific damages in the cell growth or failure to do so becasue of the deficiencies.
I haven't had the symptoms fibromyalgia SYNDROME, of Chronic fatigue SYNDROME, Multiple chemical sensitivity SYNDROME, congestive heart failure which is also a syndrome. Healing all those along with poor absorption, conflicting absorption caused then copper deficiency which caused upper motor neuron damage, liver damage and SACD lesions. The Subacute Combined Degeneration and such things were affected but not corrected. They are damage, demyelination, a first cousin to MS and Parkinson's; FMS, CFS ARE the symptoms, at least in present definitions. I started working on it in 1978. I have a SYSTEM here for recognizing the bottlenecks.
Each person's patterns of bottlenecks are their own, and everybody has them for many possible reasons. These symptoms mean something in connection to nutrients changes. While ALL of these syndromes appear to be subsets of refeeding SYNDROME, the FMS, CFS etc were all gone by 2007 and haven't been back. The exercise intolerance isn't present and hasn't been for more than 12 years. The terrible fatigue has never been back. I think the basic FMS neurological changes are caused by lack of COB[II] or adequate replacement in the brain. So what FMS, CFS, etc symptoms do I have? My biggest problem, now that my liver has healed, is scoliosis which is based on damage from being broken in half sideways in 1972 when a truck ran a red light and hit me. I have shifting muscle pains that change every day as my balance keeps changing with each chiropractic adjustment. If you define FMS., CFS and so on as being subacute combined degeneration, liver damage, scoliosis, then I am recovering from FMS and CFS. But it is quite past tense. I recovered from FMS and CFS and CHF and others in the past. That is old news. They were healed and since I haven't allowed the nutritional deficiencies to continue, I haven't gotten the FMS and CFS symptoms of the syndromes for more than a decade now.
I don't have and haven't had any FMS or CFS symptoms. Those are syndromes and fortunately those symptoms can be healed. I use to have all 18 FMS pain points, I don't any more. Those specifically healed during the titration of methylfolate once it became available enough that I could titrate above 8mg.
I also don't have all the hypersensitivity. Demyelination iis on pause and has been since I got the copper back up to a more reasonable level after the healing turn-on that sent the level plummeting even more and caused additional neurological damage
So Look at group 3. These are PREDICTED methylfolate deficiency symptoms, or bottlenecks of whatever cause. Then they can be predictably caused time after time with folic acid and low dose methylfolate. They also are not caused, predictably, if a person takes enough methylfolate. The person can have a complete cycle of onset and correction in 5 days. They are the group of symptoms, and most have several, a pattern, starting anywhere from very quickly to generally on the 3rd day as the low potassium symptoms, but those can also appear on the first day from red cell maturing and goes back to the 50s in it's recognition. The trick is a person can see which patterns they get. I used to have chronic daily headaches and a 2 week 3-5 day "suicide headaches" (yup, the same two week periodic folate deficiency) dating back into mid 80s. I literally haven't had a headache, killer or just ordinary headache, in decades. Skin lesions can still be a good indicator when the needed folate shifts. Be Well. There is no need to continue misery if you can untangle the problems. I've learned about about copper tooin the past decade.
extracted from
https://www.quora.com/Has-someone-u..._filter__=all&__nsrc__=1&__snid3__=1808215186
"INDUCED DEFICIENCY SYMPTOMS FROM REFEEDING SYNDROME. This can follow 5 days of food deprivation, anorexia, or sort of a pinpoint starvation via vitamin or mineral or amino acid deficiencies. Whatever the “most needed” item is will often cause a strong response. The first usual notable symptoms occur on typically the third day of starting a previously insufficient nutrient with normally feeling or seeing the changes within minutes to hours. From MecBL I had over 30 symptoms respond in the first few hours with blow my socks off intensity with neurological startup and potassium deficiency on the 3rd day along with increasing folate deficiencies that took years to figure out. For instance it was noted in the 50s with injections of B12 with potassium deficiency (hypokalemia) as a side effect. It is dangerous and can be unpredictably fatal if not corrected and the cause is continued. When they say people are dying in Syria after they have been starved and given food, they are often suffering REFEEDING SYNDROME. When previous symptoms return that can also indicate a developing deficiency that started hindering cell formation. "
"Group 3 - Induced and/or Paradoxical Folate deficiency or insufficiency, partial methylation block to methyltrap on 1 or more internal triage levels. Frequently called “NAC DETOX” or “GLUTATHIONE DETOX”. Can be caused by folic acid, folinic acid and for some people, like me and quite a few others, excess vegetable folates. Further excess B1, B2, B3 and/or inositol can increase methylfolate deficiency symptoms. Methylfolate, MeCbl and just about anything else that starts healing can cause the folate deficiency symptoms.
These symptoms appear in 2 forms generally, the milder symptoms that start with partial methylation block and the more severe symptoms that come on as partial methylation block gets worse or very quickly with methyltrap onset.
Edema - An additional thing I would like to mention. I would never have found it without 5 years of watching the onset of paradoxical folate insufficiency and trying to catch it earlier and earlier and to figure out what was causing it and to reverse it. For me the onset order goes back to the day of onset now with edema and a sudden increase of weight. I noticed that within 2 hours of taking sufficient Metafolin I would have an increase in urine output.
Old symptoms returning in a general sense, a person may have had onset of these hundreds of time if they are on the borderline
Edema
Angular Cheilitis, Canker sores,
Skin rashes, increased acne, Increased itchy acne on scalp and face, Skin peeling around fingernails, Skin cracking and peeling at fingertips, painful cracks in the skin at the corner of fingernails at approximate right angles to nails, can take months to occur and it may be only non mood or neurological symptoms.
IBS – Diarrhea alternating with constipation, IBS – Normal alternating with constipation
Headache, Increased malaise, Fatigue
Increased hypersensitive responses, Runny nose, Increased allergies, Increased Multiple Chemical Sensitivities, Increased asthma, rapidly increasing Generalized inflammation in body, Increased Inflammation pain in muscles, Increased Inflammation pain in joints, Achy muscles, Flu like symptoms
IBS – Steady diarrhea, IBS – Diarrhea alternating with normal, Stomach ache, Uneasy digestive tract,
Coated tongue, Depression, Less sociable, Impaired planning and logic, Brain fog, Low energy, Light headedness, Sluggishness, Increase irritability, Heart palpitations,
Longer term, very serious:
Loss of reflexes, Fevers, Forgetfulness, Confusion, Difficulty walking, Behavioral disorders, Dementia, Reduced sense of taste, bleeding easily.
High MCV, > 93, persistent and resistant to MeCbl and B6 and/P5P. The warning about too much folate causing subacute combined degeneration which kept folic acid to a max of 800 mcg for decades becasue large folate doses can lower MCV without MeCbl. There is a long history to this."
