• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. Recluse.F

    L-Carnitine Fumarate Setback

    Moving forward with the protocol once I achieved the ability to take tolerate Folate was the switch from L-Carnitine in the liquid form by Jarrow to L-Carnitine Fumarate. It seems like I read so many people referring to LCF as making a huge difference for them. It turns out to be the wrong...
  2. Recluse.F

    Folate, deal breaker update

    I had about decided Folate was evil, for me. The possibility that it was the magic cure for brain fog was an irresistible lure so I gave it another try within two weeks of the edema episode. I cut out everything I was taking that had Folic Acid in it, as well as all foods sources with Folic...
  3. Recluse.F

    Comment by 'Recluse.F' in 'Tolerable symptoms'

    Hi taniaaust1. I tried energy supplements at times over the years, but did not take them after trying them once every few years because of the side effect energy crash. Now, however, I am taking B vitamins as part of the protocol and persist despite the energy crashes because I believe I...
  4. Recluse.F

    Comment by 'Recluse.F' in 'Brazil Nuts & Sodium Bicarbonate & Folate'

    Hi Lolo. Yes, the Kinesic Body Testing can be very useful... but it gives results that are very "in the moment," which may not always be the best answer, depending on the situation.
  5. Recluse.F

    Comment by 'Recluse.F' in 'Brazil Nuts & Sodium Bicarbonate & Folate'

    Hi there, Humanrights. Regarding Sodium Bicarbonate: I think it is overlooked in its usefulness. I consulted with a counselor about getting a DNA snp test done. This was at a counseling office with DNA snp posters and references to CFS and Fibromyalgia all over the walls. Very up with the...
  6. Recluse.F

    Comment by 'Recluse.F' in 'Supplements, as of November 11, 2016'

    Hi there. LOL. My supplement table rattles. I tend to slosh inside. But, seriously, I have not documented how the supplements change me (yet). I intended to use this blog for that, but I got derailed by life or CFS things or something in November. I have updates to add now.
  7. Recluse.F

    Supplements, as of November 11, 2016

    Per Protocol, daily**: Methly B12; 500mcg lozenge 2x (Jarrow) Dibencozide B12; 3000mcg lozenge 1-2x Methyl B12; 5000mcg lozenge alternate 1x (Now) TMG 500 2x (Trimethylglycine from beets) Carnitine 1 Tbs 1x (Liquid Carnitine, Jarrow; incl B5 100%) Gamma-E complex 2x (Now, 810mg mix...
  8. Recluse.F

    Brazil Nuts & Sodium Bicarbonate & Folate

    In the early days, that being only two weeks ago really, I was feeling B12 crash terrible in the middle of the night and ate a handful of Brazil Nuts. Suddenly, I felt better than I had in ... I have no idea how long. They fed something missing and everything suddenly balanced out. It was a...
  9. Recluse.F

    Tolerable symptoms

    I wonder "What is a significant reaction and when does a reaction indicate a need to adjust?" I have reactions to the supplements that I take under the protocol (still mostly Freddd's), but I consider a great many things to be "Tolerable" because 1. my lifestyle can allow for the reaction, and...
  10. Recluse.F

    A B12 test led me here

    Greetings. I thought to use the blog as a diary of sorts to track my issues and progress. I have a lot of questions, but imagine they have already been answered, and once I have time to read the entire forum, I will know where. In the meantime, if you come upon this determined to heal or die...
  11. Recluse.F

    Recluse.F

    deliberata mea curo vel mortis attentatio
    • Recluse.F
    • Blog
    • Blog entries: 7
  12. Recluse.F

    Edema is a protocal breaker for Me & Folate

    The Freddd Protocol pushes Folate hard as an absolute necessity, but it must be wrong *for me.* Ref: Solgar Folate (as Metafolin) 400mcg I am 5'5" and weigh 117 lbs and edema that obscures my ankle bones is freakishly bizarre, outside the boundary of my body experience, and I consider it a...
  13. Recluse.F

    Tough time finding my mFolate dose

    Other's experiences and insight is invaluable. Where's the Folate bible? :thumbdown: I think it good to at least aim for a dose that takes you above the issue of being unable to physically sit still -- until things settle.
  14. Recluse.F

    Tough time finding my mFolate dose

    It seems pretty clear that you need the higher dose. You feel calm, focused, capable of writing, less jumpy, friendly, and merely eye your couch for a nap (yet, are not truly sleepy?). The lower dose jazzed up feeling is not normal physical 'energy'. It sounds like you are experiencing...