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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Not Exactly an Emergency / The Beat Heat ManifestoHoward, I agree with Hufsamor
And I'm really glad your neighbors (one in a pink bikini no less!) were kind and helpful, as well as the fire...
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Nobody's ComingI wonder if Dr Claire Taylor might be able to help. I have not had an appointment with her personally but I know people on this baord have talked... -
Nobody's ComingI"m so sorry that you have to deal with this. And you're doing a great job. I am in the US, but we have some similar version of the same... -
Nobody's ComingIt’s truly atrocious. I’ve written about it much on my blog. I remember in the beginning years, thinking, oh they are going to come running in... -
Not Exactly an Emergency / The Beat Heat ManifestoI would suggest trying one of the over the counter products by Nestlé first. More affordable. The Liquid Hope and the Kate Farms formula cost...
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Audiences and an Activism Abyss
A logical progression from When PR means Public Relations part 1 would now involve a principled discussion of the target audience(s) that M.E/CFS representation needs to address, however given the current media position of M.E/CFS a purely principled...
Just in case anyone is confused by this perspective, I want to emphasize that a virus is unlikely to have mental processes of any kind. We don't normally even call things living if they can be crystallized and stored like salt. My approach is a literary device to help us view the problem from...
What kind of virus should we expect to cause chronic infectious diseases? Will it resemble the virus that causes measles? If not, how will it differ? Perhaps we can get a better idea by viewing things from the perspective of a virus.
While we often believe pathogens are out to kill us, the...
Autumn Day
by Rainer Maria Rilke
Lord, it is time. The summer was too long.
Lay down thy shadow over the sundials,
and on the meadows let the winds blow strong.
Bid the last fruit to ripen on the vine;
allow them still two friendly southern days
to bring them to perfection and to...
Typical of today's subhuman care in the US.
So we started talking about my irregular bleeding which has started again. And she looks up my chart and she's like, two years ago we saw what we "thought" was a uterine fibroid. But I can't guarantee you it's not cancer. (Basically it's an...
Madmen for M.E
Ive written critically and at length, both on another blog and on the PR forums about what I see as the failings of M.E/CFS advocacy and about the attitudes that underwrite those failings. Not surprisingly other posters have complained that I dont offer what seem to them to be...
With a new-found reputation for financial expertise, I thought it appropriate to offer my distilled wisdom to those innocents looking to invest. There are three laws, paralleling the laws of thermodynamics:
1. You can't win.
2. You can't break even.
3. You can't get out of the game...
Ok just to checkj in to update. I am doing well. Throwing out the imunovir and more recently the methyl b12 was a good idea. I have more energy, feel healthier, can concentrate better, less compulsive, etc. Still by no means healthy, but doing much better than the last 2 years. I think NAC, zinc...
21 Greguerias
by Daniel Liebert
1. Sunlight 90 million miles and then through a baby's ear.
2. Old shoes speak the pungent slang of feet.
3. Musical instruments go blind in pawnshop windows.
4. A coffee ring on a book is the hoof-print of Pegasus.
5. Birds began as...
Has anyone heard of the "Guaicinafin Protocol?" Created by a Dr. in So. CA.
It is a medication and diet. I am not sure if I spelled the medication correctly or not.
Some people say they are able to get out, work, have a life......etc. Hard to believe if it
did work so well it would not be...
I wanted to share this because it just seemed to make alot of sense in so many ways.
I did a card reading tonight on myself to ask why I'm going through all this now, this disease, all the horrible things we go through in life. And the card I got was The Medicine Bowl. And this is what it...
I had a huge blowout with my uncle over this disease tonight. Alot of things. It was bad. But tonight, I finally saw the light of what he's doing.
He is insisting that there is no disease and that I'm just that "fat, lazy relative who doesn't want to work" because he doesn't want to...
Anyone ever have some non understanding person ask you "What are your long term goals in life? Where do you expect to be in five or ten years?"
Goal? What's a goal? This disease has long ago crushed all my hopes and dreams for my life. My "goals" are to simply get through each day and do...
from Mirrors of the Unseen: Journeys in Iran
by Jason Elliot
I had come to a small village on the edge of the desert to follow an unlikely clue. Years before, I had read an enigmatic mention of "a monastery in Persia" where visitors were said to weep spontaneously on entering a...
I woke up this this morning and the ME wasnt good at all.
My boyfriend woke me up when he arrived and all I could do is lay in bed for a further 3hrs (till 1.30pm), to exhausted and dizzy (and with a sore throat) to move (I started shaking just to sit up and have a drink). Today thou is...
It is week 21 of my pregnancy and I am finally feeling the effects of the energy boost that my specialists have told me would happen around this time. It makes me feel alive that I can now get out into the garden and sit in the sun for a while or sit in the soon to be nursery and work out what I...
Humans are the only known species which will not simply guard members who are injured or sick, but actively feed and care for them. Likewise, we have an apparently unique ability to subordinate individual differences during struggles with forces of nature which endanger all. We forget these...
My new neighbors are already commenting on how they never see me.
All those boxes I unpacked when I moved in here, I destroyed my lower back doing it. So now, I have a loose SI joint, where every time I move the wrong way, I'm getting severe sciatica on the right side. And even when I...
This is an effort to pull this discursive discourse together into something coherent. I'll start with the purely economic side.
At the largest scale we have a macroeconomic view found in "This Time is Different". There is a great deal of dense material in this book, but I'm only going to...