OK So do not ask, I didn't change anything much and I have been with 0 symptoms. I have a clear head and I don't feel pain anywhere or anything bothering me today (probably I will get my period since I get remission on it).
But in these past few days, I have been noticing the brain fog finally going away, the pain is under control just a feeling good in general feeling.
I have not done anything different. I am getting b12 shots which always make me feel better but I have done it before with no such great results. So I think is that I have been doing little things here and there and they all add up to a point where my body is responding well.
I am not cured obviously if I do exercise, I feel a bit of PEM if I overdo. Also my base energy is not any higher but I can do more without getting symptoms. I would rate me at a 7 today (only because I cannot move as I please I still have to manage energy). I can walk about 30min in a day (as my exercise) and some stretching.
The point is , the feeling. If I do not move I feel like a normal person which I haven't felt in 10 years. I can have up to 70 symptoms on my worst minimum of 5 or so on a good day. But being able to breath and take in live and just exist without all that physical suffering Is freaking priceless.
You don't realize how bad we are until we get that good day.
But in these past few days, I have been noticing the brain fog finally going away, the pain is under control just a feeling good in general feeling.
I have not done anything different. I am getting b12 shots which always make me feel better but I have done it before with no such great results. So I think is that I have been doing little things here and there and they all add up to a point where my body is responding well.
I am not cured obviously if I do exercise, I feel a bit of PEM if I overdo. Also my base energy is not any higher but I can do more without getting symptoms. I would rate me at a 7 today (only because I cannot move as I please I still have to manage energy). I can walk about 30min in a day (as my exercise) and some stretching.
The point is , the feeling. If I do not move I feel like a normal person which I haven't felt in 10 years. I can have up to 70 symptoms on my worst minimum of 5 or so on a good day. But being able to breath and take in live and just exist without all that physical suffering Is freaking priceless.
You don't realize how bad we are until we get that good day.