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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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User Blogs

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Michelle
3 min read
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619
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1
User Blogs
(Cross-posted at Behind the Surface) Since my boyfriend, A., arrived a week and a half ago, I have awakened each morning to his succinct report of the most interesting news story of the day such as the latest creepy cop video on Reddit or the most recent Obama capitulation to the Republicans...
Victoria
14 min read
Views
502
Reaction score
1
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1
User Blogs
TALKING ABOUT IT. The best way to talk about this subject is to share my own experiences. And theres only one language to use when talking about this subject. And that is in simple, basic, hard (or in my case, soft :D) terms. I was lucky enough to work for 2 doctors in one of my early Nanny...
Jody
1 min read
Views
773
Comments
4
User Blogs
Wednesday, October 7, 2009 The weather has turned cooler and overcast these days. Summer is over. It seems every year that in the change of seasons from summer to fall, I experience some downturn. Some years have been worse than others. This fall so far has been, I think, the gentlest one...
Lisa
1 min read
Views
338
User Blogs
I had a wonderful birthday yesterday. It was a very relaxing day. Here are the things that made yesterday one of the best birthdays I have ever had: Perfectly blue skies and sunshine. A quiet hour spent at my spirit rock, contemplating the remarkable changes taking place in me in recent...
Lisa
3 min read
Views
380
User Blogs
Eight years ago today saw one of the worst days of my life. The last two months had become an ever increasing nightmare as life started to plunge into the icy depths of serious illness. With chronic fatigue making it increasingly difficult to work even part time and chemical sensitivities...
Lisa
2 min read
Views
567
Comments
2
User Blogs
Everyone who knows me will tell you that in all my emails, live chat, any place that allows for more one-on-one text communication, that almost without fail I will close with a hug. Sometimes I will even get carried away and there will be different variations of hugs, such as from bunnies and...
Lisa
2 min read
Views
366
User Blogs
A star is born in the depths of space from nothing more than clouds of gas and dust drawn together by once inexplicable forces. From such humble beginnings did our own star form billions of years ago. The same star that provides warmth on a cold day, life to everything and everyone, once began...
Lisa
3 min read
Views
395
User Blogs
I remember the very moment I first thought of building a house. It was spring in 2005. After spending the last two years in a constant battle with DSHS to retain our temporary state disability while applying for federal benefits, both Jeremy and I had just received notification our battle was...
Lisa
4 min read
Views
378
User Blogs
Home is a tent right now. A medium sized tent, sitting in a patch of woods in the Pacific Northwest. Alders, maples, cedars, and other various trees shelter us from the world outside. A world that has now become too toxic for us to live directly in any longer. Growing up I had seen my mom...
Lisa
2 min read
Views
323
User Blogs
After living in these woods for five years, I had thought I had seen just about everything nature would throw my way. I have seen four foot snows dropped in three days, rain torrents that last for weeks without more than the briefest of breaks, and winds rattling the tree tops around me in a...
Lisa
1 min read
Views
362
User Blogs
Overlooking the house I am building is a rock. A big chuck of granite unearthed from the very place my house now stands. In the afternoon after the sun has warmed the surface with its loving rays, this stone feels like home, warm and inviting. It doesnt matter if I sit on it with feet...
Advocate
1 min read
Views
461
User Blogs
"Advocate, I'd like some of yours too if you're reading this." Hi Jen, Sure. I'll contact you privately, and make arrangements to send you some. I sent some to Angel, and they survived and are apparently thriving. (She sent me some excellent photos.) I take good care of my grains and...
margib
2 min read
Views
464
User Blogs
In 1993, my neighbor said I was the sickest person she'd ever seen live to tell about it. Most people have a flu story, a sick story, a food poisoning story, a once-or-twice-in a lifetime experience that is over in 3 - 7 business days. Mine has sort of never ended. Although I believe I was...
Jody
1 min read
Views
431
User Blogs
Its my birthday today. I am now 54 years old. And still recovering from CFS. Both in the long term (17 years and counting) and in the short term, from a crash that started about a month ago. I had been hoping that with better health this year, that this couldnt happen anymore. And now I...
Jody
1 min read
Views
424
User Blogs
September 3rd marked Ncubators 4 month milestone. And then I had a crash. We chronics use this word to indicate an ugly relapse into old symptoms, lasting anywhere from a few days to a few weeks to months to years depending on the crash. You never know till you come out of one, what...
Victoria
4 min read
Views
682
Comments
3
User Blogs
In Case you don't know the name of Dan Millman, I would like to introduce you to him. He has great Insight & Wisdom. And I very much admire his middle way approach to life. I have some of his books & his DVD called the Peaceful Warrior. If you like what he has written below, you might like...
Victoria
6 min read
Views
1K
Comments
8
User Blogs
A bit of history in the first couple: OF PEOPLE & PLANTS The Autobiography of Europes Most Celebrated Herbal Healer by Maurice Messegue - (born 1921)In a remote French village in the province of Gascony, the young Messegue learned from his father the plant lore handed down by generations of...
Dreambirdie
2 min read
Views
517
Reaction score
3
User Blogs
Having this condition for 32 years, I've had a LOT of time to be alone with myself and observe my inner process--my mind and its assorted little insanities. :cool::confused::(:mad::p:p:eek:;) When I first became ill in 1977, at age 20, most doctors did not even know what an immune system was...
I am really, really curious on this one. I have been reading many of the treatment regimes with great interest. Many of them are both complicated & way over my head. I admire so many of you, in your understanding of these deficiencies & bodily dysfunction attributed to ME/CFS and FM...
Cort
3 min read
Views
475
User Blogs
CDC/CFSAC BLOGS #2 International Workshop - Clinical Management of CFS The aim of this workshop (to be held summer 2009) is to establish a collaborative international consortium of investigators who will present and discuss evidence- and practice-based findings related to the treatment, and...
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