Sweden: ME/CFS in Sweden

Pyrrhus

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Lots of discussions:

Sweden: 'A health care scandal that had run in silence' (2012)
https://forums.phoenixrising.me/threads/sweden-a-health-care-scandal-that-had-run-in-silence.15257/

Study of possible treatment for mental fatigue in Sweden (2012)
https://forums.phoenixrising.me/thr...treatment-for-mental-fatigue-in-sweden.15985/

What is CFS/ME treatment like in Sweden? Is there a specialist I can see? (2012)
https://forums.phoenixrising.me/thr...sweden-is-there-a-specialist-i-can-see.18439/

Problematic ME/CFS research on ACT/GET in Sweden (2015)
https://forums.phoenixrising.me/threads/problematic-me-cfs-research-on-act-get-in-sweden.37482/

International petition: Get Sweden to support international ME/CFS projects (2015)
https://forums.phoenixrising.me/thr...-support-international-me-cfs-projects.39552/

Video and news articles about a conference organized by RME, the Swedish ME association (2015)
https://forums.phoenixrising.me/thr...-oct-hornig-peterson-jason.40618/#post-652920

ME Action: Save the Gottfries Clinic in Sweden from the shrinks (2015)
https://forums.phoenixrising.me/thr...ries-clinic-in-sweden-from-the-shrinks.41106/

Sweden: ME/CFS on TV Program "Fråga Doktorn" (2016)
https://forums.phoenixrising.me/threads/sweden-me-cfs-on-tv-program-fraga-doktorn.44368/

May 12 demonstration in Mariestad, Sweden (2016)
https://forums.phoenixrising.me/threads/may-12-demonstration-in-mariestad-sweden.44566/

Luleå Sweden hosts Psychosomatic Conference, EAPM 2016 June 16-18 (2016)
https://forums.phoenixrising.me/thr...omatic-conference-eapm-2016-june-16-18.44750/

2 seminars in Sweden on ME in October (2016)
https://forums.phoenixrising.me/threads/2-seminars-in-sweden-on-me-in-october.44913/

Sweden: 1177.se has changed their info on ME/CFS (2016)
https://forums.phoenixrising.me/threads/sweden-1177-se-has-changed-their-info-on-me-cfs.45629/

Sweden: New biomedical ME/CFS centre opening in Stockholm in 2017 (2016)
https://forums.phoenixrising.me/thr...fs-centre-opening-in-stockholm-in-2017.47405/

ME-conference in Sweden with English-speaking lecturers Wed Oct 19th, available for streaming (2016)
https://forums.phoenixrising.me/thr...s-wed-oct-19th-available-for-streaming.47449/

[Sweden] Metro.se: "Anja got a sore throat - is now bedbound 23 hours a day" (2016)
https://forums.phoenixrising.me/thr...-throat-is-now-bedbound-23-hours-a-day.47657/

[Sweden] Expressen.se: "Karin, 32, imprisoned in her own bed – for five years" (2017)
https://forums.phoenixrising.me/thr...prisoned-in-her-own-bed-for-five-years.48899/

[Sweden] Opinion piece: B12/B9 – possible treatment for mental fatigue (2017)
https://forums.phoenixrising.me/thr...-possible-treatment-for-mental-fatigue.52758/

Resignation syndrome: Sweden's mystery illness (2017)
https://forums.phoenixrising.me/threads/bbc-article-resignation-syndrome-in-sweden.55755/

Learn About the Newest OMF-funded Research Center at Uppsala Univ, Sweden (2019)
https://forums.phoenixrising.me/thr...research-center-at-uppsala-univ-sweden.75704/

RME Sweden has donated over $140,000 USD (1,326,444 SEK) to OMF (2019)
https://forums.phoenixrising.me/thr...-over-140-000-usd-1-326-444-sek-to-omf.77190/
 

Pyrrhus

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Parliamentary hearing on ME/CFS and post-viral fatigue syndrome
On 27 May, the Social Affairs Committee of the Swedish Parliament held an open hearing on the disease ME / CFS and infection-triggered post-viral fatigue syndrome.

9.45 Kristina Nilsson (S), vice chair of the social committee
9.50 Björn Eklund, ME / CFS patient
10.00 Kerstin Heiling, chairman of the Swedish Association for ME patients and their relatives
10.10 Per Julin, PhD and specialist doctor in rehabilitation medicine, Karolinska Institutet
10.20 Björn Bragée, pain doctor, Bragée clinician
10.30 Jonas Axelsson, associate professor and specialist in internal medicine and immunology, Ameliekliniken
10.40 Anders Rosén, Professor Emeritus, Linköping University
10.50 Désirée Pethrus (KD), Regional Council for Care Development, Stockholm Region
11.00 Anna-Lena Hogerud (S), Regional Council for Health and Medical Care, Region Skåne
11.10 Thomas Lindén, Head of Knowledge Management for Health and Medical Care, National Board of Health and Welfare
11.20 Questions from members
11.55–12.00 Acko Ankarberg Johansson (KD), chairman of the social committee

Recording in Swedish:
https://www.riksdagen.se/sv/webb-tv...agning-om-sjukdomen-mecfs-och_H8C220210527ou1
 

Pyrrhus

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How can society close all the doors for my sick daughter?
https://hejaolika.se/artikel/hur-kan-samhallet-stanga-alla-dorrar/amp/

Excerpt:
Ann-Marie Högberg has had a good view of Swedish welfare, through a professional life as a nurse, municipal councilor and union president . But at the age of 72, she has discovered that the safety net she took for granted no longer exists.

She is shocked, and describes it as being met by a wall: A wall where it is welcome to go to the forest, as long as it does so according to the regulations.

The daughter fell ill
It was a few years ago that Ann-Marie's adult daughter became ill.

Her story is about being tossed between the health center (which is on sick leave), the Swedish Social Insurance Agency (which refuses sickness benefits), the Swedish Public Employment Service (which cannot offer help because it is unable to work), and the social services (which reject maintenance support due to employment).

Without income - all aid is denied
Today, the daughter is completely on sick leave , can do almost nothing, is completely without income and is denied all support and benefits.

- How is it possible that society closes all doors when you are in a desperate situation?