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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Bet you what's happening is they are being made sick either by an environmental difference from their homelands
You guys beat me to it posting the article i was going to do it but not been up to it. My first thought was that whatever the accuracies, or not, of the psych interpretation of this problem, immigrant kids with very severe ME from the appropriate countries are hideously likely to get misdiagnosed with this.
My other thought was that i wonder whetehr the treatment given (when they are removed from their parents & taken to that treatment centre (a la Karina Hansen), does actually work or if it's just PR bullsh*t from the centre.... i mean if it does work (they talk about the kids being able to phone home after being entirely unable) & that is real, then ok maybe i would give the psych view some credibility, but i am extremely skeptical.
But regardless it just worries me so much for any Russian immigrant children who have the extreme misfortune to get ME in Sweden, because the prospects for them look horrific in light of this. I think of Karina, Ean Proctor, etc & i shudder.
Somebody needs to do a professional document highlighting the differences between the symptoms of very severe ME & this resignation syndrome, because any ignoramus dr will find it so easy to mistake one for the other!
These children seem entirely uncommunicative and responsive. I only know in the very severe community one individual who is entirely and constantly like that. Most will be able to facially express or press a button or use eye movements to signal etc. There are times when someone with very severe ME will be unresponsive but it's very rare to be total and long lasting like this seems
I was surprised to see this as the kids where nappies and are tube fed.