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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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SpecialK82

Ohio, USA
Messages
993
Location
Ohio, USA
Daily Stats for July 22, WPI is down a bit, otherwise not much to report:

WPI 38410 + 879 = 39289
Be Perfect 11845 + 161 = 12006
Surfer Healing 7772 + 95 = 7867
Hailey mayz 5687 + 111 = 5798
Next Gen 4041 + 31 = 4072
Invisible 4253 + 160 = 4413
Jumpstart 3807 + 21 = 3828
King Bellflower 3861 + 79 = 3940
Sean Vernon 2844 + 46 = 2890
Patner Living 2154 + 28 = 2182
Shared Hope 2364 + 57 = 2421
Austin's House 2240 + 50 = 2290
Trevor 1050 + 4 = 1054
Dream 1072 + 15 = 1087
Courage 1472 + 30 = 1502
Ameriface 1280 + 32 = 1312
Prader Willi CA 521 + 3 = 524
Gets Better 4217 + 62 = 4279
Tinnitus 261 + 12 = 273


Light & Love 21190 + 479 = 21669
St John Hospital 9021 + 140 = 9161
ME/FM Action 5464 + 180 = 5644
Prader-Willi 4940 + 136 = 5076
 

Attachments

  • vivint 07-22-11 933 hrs.pdf
    79.6 KB · Views: 18

SpecialK82

Ohio, USA
Messages
993
Location
Ohio, USA
Daily Stats for July 23, unfortunately WPI and National ME/FM are down, but so is Invisible Children.

WPI 39289 + 796 = 40085
Be Perfect 12006 + 159 = 12165
Surfer Healing 7867 + 59 = 7926
Hailey mayz 5798 + 92 = 5890
Next Gen 4072 + 21 = 4093
Invisible 4413 + 96 = 4509
Jumpstart 3828 + 15 = 3843
King Bellflower 3940 + 58 = 3998
Sean Vernon 2890 + 35 = 2925
Patner Living 2182 + 15 = 2197
Shared Hope 2421 + 24 = 2445
Austin's House 2290 + 32 = 2322
Trevor 1054 + 1 = 1055
Dream 1087 + 0 = 1087
Courage 1502 + 14 = 1516
Ameriface 1312 + 23 = 1335
Prader Willi CA 524 + 2 = 526
Gets Better 4279 + 39 = 4318
Tinnitus 273 + 10 = 283


Light & Love 21669 + 433 = 22102
St John Hospital 9161 + 135 = 9296
ME/FM Action 5644 + 151 = 5795
Prader-Willi 5076 + 116 = 5192
 

Attachments

  • vivint 07-23-11 956 hrs.pdf
    84.5 KB · Views: 13

eric_s

Senior Member
Messages
1,925
Location
Switzerland/Spain (Valencia)
Thanks, if some people feel like they don't need to vote for the WPI anymore, they should consider giving their vote to the National ME/FM Action Network, instead of not voting at all. But even the WPI is not over the finish line yet.
 

SpecialK82

Ohio, USA
Messages
993
Location
Ohio, USA
Daily Stats for July 24:

WPI 40085 + 831 = 40916
Be Perfect 12165 + 145 = 12310
Surfer Healing 7926 + 95 = 8021
Hailey mayz 5890 + 90 = 5980
Next Gen 4093 + 20 = 4113
Invisible 4509 + 106 = 4615
Jumpstart 3843 + 10 = 3853
King Bellflower 3998 + 39 = 4037
Sean Vernon 2925 + 29 = 2954
Patner Living 2197 + 16 = 2213
Shared Hope 2445 + 18 = 2463
Austin's House 2322 + 31 = 2353
Trevor 1055 + 0 = 1055
Dream 1087 + 14 = 1101
Courage 1516 + 20 = 1536
Ameriface 1335 + 30 = 1365
Prader Willi CA 526 + 1 = 527
Gets Better 4318 + 37 = 4355
Tinnitus 283 + 9 = 292


Light & Love 22102 + 355 = 22457
St John Hospital 9296 + 140 = 9436
ME/FM Action 5795 + 176 = 5971
Prader-Willi 5192 + 133 = 5325
 

Attachments

  • vivint 07-24-11 980 hrs.pdf
    84.7 KB · Views: 14

eric_s

Senior Member
Messages
1,925
Location
Switzerland/Spain (Valencia)
Light and Love Home seems to be dropping... of course this might only be temporary or they might mobilize more support again, if the ME/FM Action Network gets closer, but it's still better for us than the opposite.
 

helen41

Senior Member
Messages
567
Location
Sleepy Hollow Canada
I sent an email to Michael J Fox (a Canadian) doing my best to link Parkinson's, FM and ME. (I had support from a few people, particularly Marg) I asked if he would make a statement and request votes for ME/FM Action. I don't know where else we can hunt for new votes. It's a long shot, but worth a try. Fingers crossed
 

*GG*

senior member
Messages
6,391
Location
Concord, NH
I heard a radio ad for Muscular Dystropy by Jennifer Lopez. Not sure if she has a connection to the disease or she just thought it would be a good org to support?

GG
 

WillowJ

คภภเє ɠรค๓թєl
Messages
4,940
Location
WA, USA
I sent an email to Michael J Fox (a Canadian) doing my best to link Parkinson's, FM and ME. (I had support from a few people, particularly Marg) I asked if he would make a statement and request votes for ME/FM Action. I don't know where else we can hunt for new votes. It's a long shot, but worth a try. Fingers crossed

well done!
 

Doogle

Senior Member
Messages
200
Anyone have contacts with Dr. Donnica and can pitch her to encourage voting on her websites or twitter or whatever she has for publicity?
 

Dolphin

Senior Member
Messages
17,567
I wonder is it a bit of a high risk strategy contacting celebrities now as they might support one of the opposition. The WPI look in a very strong position to get $100,000 but in a very weak position to get the top prize: they would have to get 2,000 *more* than the leader to get the top prize (around 5,000 votes a day). I think celebrities might be more like to support more "cuddly" causes e.g. children, animals, or whatever.
 

Nielk

Senior Member
Messages
6,970
I wonder is it a bit of a high risk strategy contacting celebrities now as they might support one of the opposition. The WPI look in a very strong position to get $100,000 but in a very weak position to get the top prize: they would have to get 2,000 *more* than the leader to get the top prize (around 5,000 votes a day). I think celebrities might be more like to support more "cuddly" causes e.g. children, animals, or whatever.

I can be cuddly. lol
 
Messages
88
Location
Canada Niagara Falls
Hi Dolphin, Matbe when writing to these celebrities make them aware of the children and teens affected by this disease. I'm wondering if there is a staticical number for children affected?.....Just a Thought.

GaryK
 

SpecialK82

Ohio, USA
Messages
993
Location
Ohio, USA
Daily Stats for July 25, National ME/FM has stepped up to 195 ---

WPI 40916 + 840 = 41756
Be Perfect 12310 + 160 = 12470
Surfer Healing 8021 + 62 = 8083
Hailey mayz 5980 + 119 = 6099
Next Gen 4113 + 25 = 4138
Invisible 4615 + 115 = 4730
Jumpstart 3853 + 20 = 3873
King Bellflower 4037 + 63 = 4100
Sean Vernon 2954 + 41 = 2995
Patner Living 2213 + 20 = 2233
Shared Hope 2463 + 43 = 2506
Austin's House 2353 + 39 = 2392
Trevor 1055 + 1 = 1056
Dream 1101 + 19 = 1120
Courage 1536 + 37 = 1573
Ameriface 1365 + 23 = 1388
Prader Willi CA 527 + 1 = 528
Gets Better 4355 + 45 = 4400
Tinnitus 292 + 11 = 303


Light & Love 22457 + 456 = 22913
St John Hospital 9436 + 142 = 9578
ME/FM Action 5971 + 195 = 6166
Prader-Willi 5325 + 148 = 5473
 

Attachments

  • vivint 07-25-11 1004 hrs.pdf
    83.7 KB · Views: 13

SpecialK82

Ohio, USA
Messages
993
Location
Ohio, USA
I sent an email to Michael J Fox (a Canadian) doing my best to link Parkinson's, FM and ME. (I had support from a few people, particularly Marg) I asked if he would make a statement and request votes for ME/FM Action. I don't know where else we can hunt for new votes. It's a long shot, but worth a try. Fingers crossed

Outstanding! I have often wondered if he would be interested in us (in general), it's another neurological illness and helping one of them may very well help all of them.
 

glenp

"and this too shall pass"
Messages
776
Location
Vancouver Canada suburbs
Thank you

Thank you so much to those of you who are doing so much for us. I appreciate it.

I am plugging away just trying to do bits. If I can help anyone let me know.

glen
 

WillowJ

คภภเє ɠรค๓թєl
Messages
4,940
Location
WA, USA
I wonder is it a bit of a high risk strategy contacting celebrities now as they might support one of the opposition. The WPI look in a very strong position to get $100,000 but in a very weak position to get the top prize: they would have to get 2,000 *more* than the leader to get the top prize (around 5,000 votes a day). I think celebrities might be more like to support more "cuddly" causes e.g. children, animals, or whatever.

that seems a realistic concern
 
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