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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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$$$ for WPI vote daily now in Vivint Round 2!

WillowJ

คภภเє ɠรค๓թєl
Messages
4,940
Location
WA, USA
Thank you so much to those of you who are doing so much for us. I appreciate it.

I am plugging away just trying to do bits. If I can help anyone let me know.

glen

same from me; well done everyone, and let me know if there's something small I can do to help
 

helen41

Senior Member
Messages
567
Location
Sleepy Hollow Canada
I wonder is it a bit of a high risk strategy contacting celebrities now as they might support one of the opposition. The WPI look in a very strong position to get $100,000 but in a very weak position to get the top prize: they would have to get 2,000 *more* than the leader to get the top prize (around 5,000 votes a day). I think celebrities might be more like to support more "cuddly" causes e.g. children, animals, or whatever.

I appreciate your point, but my thoughts were directed more towards the ME/FM Action Network. Fact is, we are losing, and losing by more every day. I don't think there is a lot of risk in the Canadian section of the contest, because unless we do something differently, it's lost anyway. I think it is worth trying about anything at this point. If Nielk is willing to look cuddly and be our poster child, I'd vote for that too!
 

taniaaust1

Senior Member
Messages
13,054
Location
Sth Australia
I heard a radio ad for Muscular Dystropy by Jennifer Lopez. Not sure if she has a connection to the disease or she just thought it would be a good org to support?

GG

Most celebraties have orgs that they support (it does good for their reputations etc)

If people contact them and they find out about the competition.. it is just as likely they may decide to vote or get votes for a like org or the org they already support.
 

jace

Off the fence
Messages
856
Location
England
Well spotted, Francelle, I'll watch them. 135 votes on Tuesday, 600 votes on Wednesday. Chart below.
 

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SpecialK82

Ohio, USA
Messages
993
Location
Ohio, USA
Well spotted, Francelle, I'll watch them. 135 votes on Tuesday, 600 votes on Wednesday. Chart below.

Jace, I think you meant to say 135 votes on Monday, 600 votes on Tuesday (since today is Wed ;))

But, somehow our numbers aren't meshing together either.

I show It Gets Better at 45 for Mon July 25, and 403 for Tues July 26. So far, they only have 48 today, Wed July 27. So even if we are pulling the figures at different times, these three days added together (which would be too much) still wouldn't equal 600 votes for Tues.

That being said though, It Gets Better did take a jump on Tuesday, so I agree that we should watch them.

Here's the stats for Tues, July 26:


WPI 41756 + 891 = 42647
Be Perfect 12470 + 179 = 12649
Surfer Healing 8083 + 102 = 8185
Hailey mayz 6099 + 117 = 6216
Next Gen 4138 + 16 = 4154
Invisible 4730 + 70 = 4800
Jumpstart 3873 + 18 = 3891
King Bellflower 4100 + 71 = 4171
Sean Vernon 2995 + 41 = 3036
Patner Living 2233 + 28 = 2261
Shared Hope 2506 + 34 = 2540
Austin's House 2392 + 49 = 2441
Trevor 1056 + 16 = 1072
Dream 1120 + 9 = 1129
Courage 1573 + 23 = 1596
Ameriface 1388 + 30 = 1418
Prader Willi CA 528 + 4 = 532
Gets Better 4400 + 403 = 4803
Tinnitus 303 + 12 = 315


Light & Love 22913 + 557 = 23470
St John Hospital 9578 + 167 = 9745
ME/FM Action 6166 + 180 = 6346
Prader-Willi 5473 + 163 = 5636
 

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  • vivint 07-26-11 1028 hrs.pdf
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Dolphin

Senior Member
Messages
17,567
I'm currently voting for the National ME/FM Action Network (and now "control" votes of 4 family members) however I still have problems with looking for celebrity endorsement as I don't want to jeopardise the WPI vote - a celebrity could encourage voters to vote for a charity in any region. And while perhaps a celebrity might persuade somebody to vote once for a cause (which might work well in Chase Community Giving), I'm not sure they'll convince that many to vote regularly for the National ME/FM Action Network; (while people might vote a bit more for other charities).
 

jace

Off the fence
Messages
856
Location
England
Hi SpecialK, the dates are the day of recording, so yes, the record made on the 27th is for the 24 hour period that ends on 00:01 UT of the 27th. A little misleading, perhaps. Just the way I do it. Works for me. Is accurate, too, as a comparison. Maybe I'll get in sync with you tomorrow, though, because I see that it might create confusion.

What time do you make your snapshot of the data?
 

SpecialK82

Ohio, USA
Messages
993
Location
Ohio, USA
Jace - I do it between 20:00 - 20:30 (8:00 - 8:30 PM) Eastern Standard Time. It looks like It Gets Better is back down today, they have less than 100 so far, and I will pull the file in about 90 minutes.
 

jace

Off the fence
Messages
856
Location
England
Jace - I do it between 20:00 - 20:30 (8:00 - 8:30 PM) Eastern Standard Time. It looks like It Gets Better is back down today, they have less than 100 so far, and I will pull the file in about 90 minutes.

So that's 01:00 - 01:30 UTC. Just an hour later than me. Do you have this link? It's a page where you can access Vivint totals hour by hour - it means you can be exact re time of sample, without being tied to doing the sampling at a specific time.

I'll alter my dates to make it less confusing.

I'm keeping a spreadsheet in order to flag up any more shenanigans. If you'd like access, send me a pm. I'm not keeping a record of the Canada board. Really we are doing different jobs.
 

SpecialK82

Ohio, USA
Messages
993
Location
Ohio, USA
Daily Stats for July 27, It Gets Better has decreased nicely:

WPI 42647 + 909 = 43556
Be Perfect 12649 + 183 = 12832
Surfer Healing 8185 + 87 = 8272
Hailey mayz 6216 + 93 = 6309
Next Gen 4154 + 30 = 4184
Invisible 4800 + 159 = 4959
Jumpstart 3891 + 22 = 3913
King Bellflower 4171 + 45 = 4216
Sean Vernon 3036 + 39 = 3075
Patner Living 2261 + 16 = 2277
Shared Hope 2540 + 37 = 2577
Austin's House 2441 + 43 = 2484
Trevor 1072 + 7 = 1079
Dream 1129 + 14 = 1143
Courage 1596 + 24 = 1620
Ameriface 1418 + 20 = 1438
Prader Willi CA 532 + 1 = 533
Gets Better 4803 + 88 = 4891
Tinnitus 315 + 10 = 325


Light & Love 23470 + 440 = 23910
St John Hospital 9745 + 144 = 9889
ME/FM Action 6346 + 181 = 6527[/B
]Prader-Willi 5636 + 158 = 5794
 

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  • vivint 07-27-11 1052 hrs.pdf
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SpecialK82

Ohio, USA
Messages
993
Location
Ohio, USA
So that's 01:00 - 01:30 UTC. Just an hour later than me. Do you have this link? It's a page where you can access Vivint totals hour by hour - it means you can be exact re time of sample, without being tied to doing the sampling at a specific time.

I'll alter my dates to make it less confusing.

Thanks Jace, I'll PM you you a little later, I'm so brain-fogged right now. :In bed:
 
Messages
59
I sent an email to Michael J Fox (a Canadian) doing my best to link Parkinson's, FM and ME. (I had support from a few people, particularly Marg) I asked if he would make a statement and request votes for ME/FM Action. I don't know where else we can hunt for new votes. It's a long shot, but worth a try. Fingers crossed

Thanks for your support Helen41.
 

Dolphin

Senior Member
Messages
17,567
It looks like there will be another matching period in 90 hours.
As the WPI have already reached their limit, I presume they won't be eligible for matching.
Has anyone seen an announcement on this that could be passed around?

Actually, I know see:
matching period coming soon!

August 2 at 2:00am ET to August 4 at 2:00am ET

Donations will be matched dollar for dollar. Come back tomorrow to donate to your favorite charity.
 

Sasha

Fine, thank you
Messages
17,863
Location
UK
It looks like there will be another matching period in 90 hours.
As the WPI have already reached their limit, I presume they won't be eligible for matching.

Unless it's $2,500 per matching period, rather than during the whole contest - I don't know if Vivint made that clear.
 

Francelle

Senior Member
Messages
444
Location
Victoria, Australia
Anybody else had trouble getting on to vote these past few hours?

Yes Dolphin - just saw your message - same here. I haven't voted but it says I have. The numbers are low all round too so perhaps it is a general problem.
 
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