yep - its been a long long journey to get a diagnosis - including negative serological test results - only to find bartonella clearly visible in my blood by conventional old fashioned Giemsa stain of blood smear - as used worldwide for malaria ( i really think our current over reliance on serology is one of the main reasons we have so much undiagnosed chronic disease )
but now that i can focus treatment on a known cause - i am moving forward slowly but surely - and in measurable objective ways
eg i managed 150 bodyweight squats without stopping and 64 press-ups on my last workout
chronic Bartonellosis is a poorly recognised emerging zoonotic disease - the medical textbooks are hopelessly out of date - and basically say Bartonellosis is just a brief self resolving febrile illness
but there are now reams of papers showing it is in fact often chronic, have a raft of symptoms, is hard to test for and often very hard to treat.
until the 1980's only 2 or 3 species were known - and one of these only present in south America
but now there are 30 or 40 species known and over half of these are confirmed to be pathogenic in humans.
i was given a diagnosis of ME/CFS by my GP's - which is basically their go to diagnosis when they don't know what the cause is - but since there is no treatment in conventional medicine - and since my partner and i got sick at the same time - i felt it was in fact an infectious disease and pressed on with my search for a proper diagnosis.
i suspect a significant proportion of other ME/CFS sufferers are also actually experiencing Bartonellosis - so i do what i can to raise awareness.
in fact there were some threads here that were polls of members symptoms - i was interested to find that when i answered the poll questions, my symptoms were a perfect match for the top 10 symptoms of the other respondents.
i was sick for 6-7 years before definitively diagnosing Bartonellosis - and i was pretty sick by that time - my approach to treatment has had to be multifaceted in order to build my health back up - layering in many approaches that strengthen my body so it can better fight the disease and tolerate further treatments. Starting with the very basic stuff that helps a persons health no matter what the cause:
-exercise ( within a very systematic approach to avoid PEM)
-things that help rebalance the immune system
then latterly adding more antimicrobial therapies - both natural and pharma - again only at a rate that i could tolerate - as they tended to make me more sick before i got gradually better
its more of a methodology -addressing the root cause - rather than any specific single "special sauce" magic anti-microbial or antibiotic
i am pretty active on the forum here - https://www.healingwell.com/community/default.aspx?f=30
on this thread i document my blood smear results - where i was initially looking for a potential Babesia infection (similar symptoms) before finding bartonella by accident.