hi Civicko -@Garz Can I have an invite too please?
you will need to enable conversations invites in your profile
are you undergoing the Markov Treatment at the moment ?
hi Civicko -@Garz Can I have an invite too please?
What about now?hi Civicko -
you will need to enable conversations invites in your profile
are you undergoing the Markov Treatment at the moment ?
Update: I'm still doing treatment and my third vaccine cycle is currently being shipped to me.
I finished my last cycle mid March so it's been about 5 months off and though I could have restarted after ~3-4 months, Dr Markovs prescription did suggest a wait of 3-6 months before next cycle so not sure whether to record that as any time off or not. Probably to be consistent with last time will mark July as no treatment, because I would have restarted in July if not for long shipping times to get my dipslides there and get the vaccines back.
I'm not sure exactly when it happened but I have definitely been doing more than last year, although my brain does feel slightly more derealised right now because of overdoing it, I have been able to do a lot more daily cognitive activity than in previous years before my brain shuts down completely.
Actually it doesn't usually shut down the same any more with the same sort of brain fog, I just get "long" pem where I generally feel more derealised and less "conscious", instead of my brain becoming so fogged that I can't think. Which can still happen if I concentrate too much but less rapidly. Which makes it harder to pace because the punishment is not as obvious or rapid-onset.
But I think overall considering how much I have been doing I do have relatively more energy on average than last year. I don't know if this is relevant to the treatment or not.
I'm not sure it's a full or half level change but relatively it feels like something. Physically I'm still bedbound all day but do go out to the kitchen on a rollie stool and have been making my own fried eggs when my Mum is gone. I've also gone to the back door a couple times to put the cat out.
My absolute limits are still not much, like I was washing my earmuffs in the kitchen sink and it became painful pretty quick and my arms/wrist muscles literally fatigued to exhaustion before I could finish washing them.
But I don't know, I think there is some difference from before it's just maybe a 5% to a 7% so not a full half level I don't think.
And it is hard to tell because my energy levels fluctuate anyway.
Then again, there are other symptoms which have gotten worse, like myoclonic jerks which only showed up in the last ~year.
My sense of smell is still much improved.