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long covid

  1. frozenborderline

    Updates on Long covid NIH funding and concerns from advocates

    The NIH seems to drag their feet even when congress literally hands them a huge pile of money. It really makes me wonder if it would even matter if our disease got huge amounts of funds , as even if congress allocated it, the NIH has to care enough enough spend it well... this is really...
  2. SWAlexander

    Mast Cell Activation Syndrome (MCAS)

    Mast cells are found throughout the body and play a complex and critical role in immune response and keeping people healthy. However, when these cells become altered or activate inappropriately to specific triggers, they can create symptoms throughout the body. While mast cell activation...
  3. frozenborderline

    Great Direct action /civil disobedience by ME/CFs patients at the NIH

    https://openletteropenmedicinefoundation.com/brave-me-cfs-patients-protest-and-are-arrested-at-the-nih/ I wish I knew the full names of the patients to help publicize. I think one of them was whitney something. This is inspiring. I do wish it had more views though.
  4. C

    Epigenetic Memory of COVID-19 in Innate Immune Cells and Their Progenitors (Cheong et al, 2022)

    Abstract Severe coronavirus disease 2019 (COVID-19) is characterized by systemic inflammation and can result in protracted symptoms. Robust systemic inflammation may trigger persistent changes in hematopoietic cells and innate immune memory through epigenetic mechanisms. We reveal that rare...
  5. frozenborderline

    Hellmouth (a story about being in hell)

    https://atomicchesterton.blogspot.com/2022/02/hellmouth.html?m=1 This was previously published in lit mag softcartel. It's based on composites of dreams and real experiences that come from the truly hellish experience of severe ME/CFS I think it's a pretty good story and maybe a realistic...
  6. C

    Serum Level of Anti-Nucleocapsid, but Not Anti-Spike Antibody, Is Associated with Improvement of Long COVID Symptoms (Varnai et al, 2022)

    Abstract Background: Long COVID is a condition characterized by long-term sequelae persisting after the typical convalescence period of COVID-19. Previous reports have suggested the role of an unsatisfactory immune response and impaired viral clearance in the pathogenesis of long COVID...
  7. C

    COVID-19 and Mitochondrial Non-Coding RNAs: New Insights From Published Data (Pozzi, 2022)

    Abstract Scientists all around the world are working to investigate new ways to prevent and treat COVID-19, and recent research has been focusing on the effects of a syndrome commonly called "long COVID." People affected by this syndrome usually suffer from symptoms like the ones observed in...
  8. C

    New study looking at oxidative stress

    https://www.pnas.org/content/118/34/e2024358118 I found this interesting because I got ME/CFS after doing those dumb Wim Hoff breathing exercises. I had mono a few months prior, and always assumed it was the mono that caused my illness…
  9. C

    Immunoglobulin signature predicts risk of post-acute COVID-19 syndrome (Cervia et al, 2022)

    Abstract Following acute infection with severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) a significant proportion of individuals develop prolonged symptoms, a serious condition termed post-acute coronavirus disease 2019 (COVID-19) syndrome (PACS) or long COVID. Predictors of PACS...
  10. pattismith

    Dysautonomia may explain the persistent symptoms observed in long COVID-19 patients, such as fatigue and hypoxia 2021

    Clinical characterization of dysautonomia in long COVID-19 patients | Scientific Reports (nature.com)
  11. C

    Cerebrospinal fluid offers clues to post-COVID 'brain fog'

    In a small study with 32 adults, comprising 22 with cognitive symptoms and 10 control participants without, researchers from UC San Francisco and Weill Cornell Medicine, New York, analyzed the cerebrospinal fluid of 17 of the participants who consented to lumbar puncture. All participants had...
  12. C

    Oral Bacteriotherapy Reduces the Occurrence of Chronic Fatigue in COVID-19 Patients (Santinelli et al, 2022)

    Abstract Long COVID refers to patients with symptoms as fatigue, “brain fog,” pain, suggesting the chronic involvement of the central nervous system (CNS) in COVID-19. The supplementation with probiotic (OB) would have a positive effect on metabolic homeostasis, negatively impacting the...
  13. Pyrrhus

    Persistence of SARS-CoV-2 Spike Protein in Long Covid up to 15 Months Post-Infection (Patterson et al., 2022)

    Persistence of SARS CoV-2 S1 Protein in CD16+ Monocytes in Post-Acute Sequelae of COVID-19 (PASC) up to 15 Months Post-Infection (Patterson et al., 2022) https://doi.org/10.3389/fimmu.2021.746021 A publication by Bruce Patterson and colleagues, regarding findings in the blood from Long Covid...
  14. frozenborderline

    My plan for surviving covid, plus vaccine dillemmas

    I need to figure out how to answer the question of if the existing vaccines side effects are worse than long covid sequelae from omicron... and whether the vaccine even protects against long covid in breakthrough cases I also want to see if there are any treatments for long or acute covid that...
  15. V

    Mast Cell Activation Syndrome and Long Co

    Not sure if anyone has posted this paper https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8459548/#__ffn_sectitle
  16. Pyrrhus

    Use of Cardiopulmonary Stress Testing for Patients With Unexplained Dyspnea Post–Coronavirus Disease (Mancini et al., 2021)

    Use of Cardiopulmonary Stress Testing for Patients With Unexplained Dyspnea Post–Coronavirus Disease (Mancini et al., 2021) https://doi.org/10.1016/j.jchf.2021.10.002 A study by Ben Natelson and colleagues that confirmed the key findings from David Systrom's iCPET study on Long Covid patients...
  17. Pyrrhus

    Reasons for no antibodies after SARS-CoV-2 Infection (Liu et al., Sept. 2021)

    Interestingly, many patients with Long Covid report that they never tested positive on any antibody tests. The following CDC study tried to determine why some people don't seem to develop antibodies after a SARS-CoV-2 infection, even though they tested positive on a PCR test. (a phenomenon...
  18. Pyrrhus

    NIH RECOVER study for Long COVID

    It looks like there might be a problem with the $1.15 billion that the US Congress gave to the NIH to study Long Covid... ONE: Late in 2020, the US Congress passed a bill providing $1.15 billion to study Long Covid. The US National Institutes of Health (NIH) has used this money to undertake the...
  19. BrightCandle

    ONS Estimates of Covid Long Haulers

    https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/conditionsanddiseases/datasets/alldatarelatingtoprevalenceofongoingsymptomsfollowingcoronaviruscovid19infectionintheuk A quick summary of some numbers: And 1.2 million currently suffering total in the country with 426,000...
  20. SNT Gatchaman

    COVID-19 induces neuroinflammation and loss of hippocampal neurogenesis

    Authors: Klein et al. Published: 29th Oct 2021 (Pre-print) DOI: 10.21203/rs.3.rs-1031824/v1 Full Text: Pre-print Abstract
  21. SNT Gatchaman

    Persistent endotheliopathy in the pathogenesis of long COVID syndrome

    Authors: Fogarty et al Published: 10th Aug 2021 DOI: 10.1111/jth.15490 Full Text: J Thromb Haemostat (open access PDF) ABSTRACT ESSENTIALS Ongoing endotheliopathy is a common finding in convalescent COVID-19 patients and is independent of the acute phase response. Plasma FVIII:C levels and...
  22. pattismith

    Central Sensitization Phenotypes in Post Acute Sequelae of SARS-CoV-2 Infection (PASC) 2021

    Central Sensitization Phenotypes in Post Acute Sequelae of SARS-CoV-2 Infection (PASC): Defining the Post COVID Syndrome Dennis M. Bierle, Christopher A Aakre, Stephanie L. Grach, ... First Published July 7, 2021 Research Article https://doi.org/10.1177/21501327211030826 Objective To develop...
  23. Sherpa

    Dr. Bens' Cellular Repair Protocol for Long Covid / Post-Vaccine

    I wanted to share a really interesting protocol I found by Dr. Charles Ben, Ph.D. You can read it here: Help for Covid-19 Long Haulers: Dr. Bens' Cellular Repair Program. Here is a rough outline: Reduce the viral presence / boost immune system: Vitamin C, Vitamin D, Olive Leaf Extract, Zinc...
  24. 2

    UAMS Research Team Finds Potential Cause of COVID-19 ‘Long-haulers’

    UAMS Research Team Finds Potential Cause of COVID-19 ‘Long-haulers’ by David Robinson
  25. Boba

    Gut persistence of C19 up to 180 days

  26. 2

    Long COVID and severe COVID-19 infections associated with Epstein-Barr virus reactivation

    "“We ran Epstein-Barr virus serological tests on COVID-19 patients at least 90 days after testing positive for SARS-CoV-2 infection, comparing EBV reactivation rates of those with long COVID symptoms to those who never experienced long COVID symptoms,” says lead study author Jeffrey E. Gold of...
  27. M

    STIMULATE-ICP ( Long Covid Study)

    The STIMULATE-ICP (https://www.stimulate-icp.org/) will be a 2-year study, starting on the fall, investigating causes and treatments for Long Covid. It seems they are looking into three different treatments to trial: * anticoagulant rivaroxaban; * anti-inflammatory drug colchicine; *...
  28. M

    Long Covid research- persistent dyspnea and exercise intolerance

    I noticed that Dr. David Systrom published a paper that resonates a lot with what I have been experiencing. Persistent Exertional Intolerance after COVID-19: Insights from Invasive Cardiopulmonary Exercise Testing. https://journal.chestnet.org/article/S0012-3692(21)03635-7/fulltext They...
  29. Rufous McKinney

    American Medical Association to Pursue Post Viral Diagnosis and Research

    This is pretty exciting news...almost earthshaking...revolutionary if they succeed....... from the American Medical Association...June 16, 2021 https://www.ama-assn.org/press-center/press-releases/ama-adopts-new-policy-better-diagnose-and-treat-long-haul-covid-19 CHICAGO — With millions of...