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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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long covid

  1. V

    Mast Cell Activation Syndrome and Long Co

    Not sure if anyone has posted this paper https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8459548/#__ffn_sectitle
  2. Pyrrhus

    Use of Cardiopulmonary Stress Testing for Patients With Unexplained Dyspnea Post–Coronavirus Disease (Mancini et al., 2021)

    Use of Cardiopulmonary Stress Testing for Patients With Unexplained Dyspnea Post–Coronavirus Disease (Mancini et al., 2021) https://doi.org/10.1016/j.jchf.2021.10.002 A study by Ben Natelson and colleagues that confirmed the key findings from David Systrom's iCPET study on Long Covid patients...
  3. Pyrrhus

    Reasons for no antibodies after SARS-CoV-2 Infection (Liu et al., Sept. 2021)

    Interestingly, many patients with Long Covid report that they never tested positive on any antibody tests. The following CDC study tried to determine why some people don't seem to develop antibodies after a SARS-CoV-2 infection, even though they tested positive on a PCR test. (a phenomenon...
  4. Pyrrhus

    NIH RECOVER study for Long COVID

    It looks like there might be a problem with the $1.15 billion that the US Congress gave to the NIH to study Long Covid... ONE: Late in 2020, the US Congress passed a bill providing $1.15 billion to study Long Covid. The US National Institutes of Health (NIH) has used this money to undertake the...
  5. BrightCandle

    ONS Estimates of Covid Long Haulers

    https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/conditionsanddiseases/datasets/alldatarelatingtoprevalenceofongoingsymptomsfollowingcoronaviruscovid19infectionintheuk A quick summary of some numbers: And 1.2 million currently suffering total in the country with 426,000...
  6. SNT Gatchaman

    COVID-19 induces neuroinflammation and loss of hippocampal neurogenesis

    Authors: Klein et al. Published: 29th Oct 2021 (Pre-print) DOI: 10.21203/rs.3.rs-1031824/v1 Full Text: Pre-print Abstract
  7. SNT Gatchaman

    Persistent endotheliopathy in the pathogenesis of long COVID syndrome

    Authors: Fogarty et al Published: 10th Aug 2021 DOI: 10.1111/jth.15490 Full Text: J Thromb Haemostat (open access PDF) ABSTRACT ESSENTIALS Ongoing endotheliopathy is a common finding in convalescent COVID-19 patients and is independent of the acute phase response. Plasma FVIII:C levels and...
  8. pattismith

    Central Sensitization Phenotypes in Post Acute Sequelae of SARS-CoV-2 Infection (PASC) 2021

    Central Sensitization Phenotypes in Post Acute Sequelae of SARS-CoV-2 Infection (PASC): Defining the Post COVID Syndrome Dennis M. Bierle, Christopher A Aakre, Stephanie L. Grach, ... First Published July 7, 2021 Research Article https://doi.org/10.1177/21501327211030826 Objective To develop...
  9. Sherpa

    Dr. Bens' Cellular Repair Protocol for Long Covid / Post-Vaccine

    I wanted to share a really interesting protocol I found by Dr. Charles Ben, Ph.D. You can read it here: Help for Covid-19 Long Haulers: Dr. Bens' Cellular Repair Program. Here is a rough outline: Reduce the viral presence / boost immune system: Vitamin C, Vitamin D, Olive Leaf Extract, Zinc...
  10. 2

    UAMS Research Team Finds Potential Cause of COVID-19 ‘Long-haulers’

    UAMS Research Team Finds Potential Cause of COVID-19 ‘Long-haulers’ by David Robinson
  11. Boba

    Gut persistence of C19 up to 180 days

  12. 2

    Long COVID and severe COVID-19 infections associated with Epstein-Barr virus reactivation

    "“We ran Epstein-Barr virus serological tests on COVID-19 patients at least 90 days after testing positive for SARS-CoV-2 infection, comparing EBV reactivation rates of those with long COVID symptoms to those who never experienced long COVID symptoms,” says lead study author Jeffrey E. Gold of...
  13. M

    STIMULATE-ICP ( Long Covid Study)

    The STIMULATE-ICP (https://www.stimulate-icp.org/) will be a 2-year study, starting on the fall, investigating causes and treatments for Long Covid. It seems they are looking into three different treatments to trial: * anticoagulant rivaroxaban; * anti-inflammatory drug colchicine; *...
  14. M

    Long Covid research- persistent dyspnea and exercise intolerance

    I noticed that Dr. David Systrom published a paper that resonates a lot with what I have been experiencing. Persistent Exertional Intolerance after COVID-19: Insights from Invasive Cardiopulmonary Exercise Testing. https://journal.chestnet.org/article/S0012-3692(21)03635-7/fulltext They...
  15. Rufous McKinney

    American Medical Association to Pursue Post Viral Diagnosis and Research

    This is pretty exciting news...almost earthshaking...revolutionary if they succeed....... from the American Medical Association...June 16, 2021 https://www.ama-assn.org/press-center/press-releases/ama-adopts-new-policy-better-diagnose-and-treat-long-haul-covid-19 CHICAGO — With millions of...
  16. Pyrrhus

    Long COVID or Post-acute Sequelae of COVID-19 (PASC): An Overview of Biological Factors That May Contribute to Persistent Symptoms (PolyBio, 2021)

    I thought this recent paper probably deserved its own discussion thread... Long COVID or Post-acute Sequelae of COVID-19 (PASC): An Overview of Biological Factors That May Contribute to Persistent Symptoms (Proal and VanElzakker, 2021)...
  17. frozenborderline

    Long Covid, MCAS and Environmental Toxins--Lake Tahoe 2.0?

    https://openletteropenmedicinefoundation.com/long-covid-and-environmental-toxins-lake-tahoe-2-0/ Is the CDC and general scientific community retreading ground from the Lake Tahoe outbreak that caused the invention of the CFS syndrome /category of illness ? Are they reinventing the wheel, so to...
  18. frozenborderline

    Long covid, mold and mcas--Lake Tahoe 2.0?

    https://openletteropenmedicinefoundation.com/long-covid-and-environmental-toxins-lake-tahoe-2-0/ Heres a short post I made on my website about long covid and mold. Hopefully google indexes it soon. For now, hopefully I can get some eyes on it by posting it here.
  19. M

    Non-Classical monocytes as one of the drivers behind Long Covid

    The video below is one of the best summaries I have seen on what we know so far about Long Covid, and it is very educational as well. In short: * Non-classical monocytes, responsible for clearing out pathogens, are unable to digest the Covid S1 protein. They are left in a persistent active...
  20. nerd

    The Latest Long Hauler Research From Dr. Bruce Patterson

    Since they finally seem to have their first paper published soon, this time for real, hopefully, I'd like to discuss this latest update. Their main point for the symptomology is angiogenesis and vasodilation. This also happens in MCAS and CFS/ME, though. This is why histamine-induced symptoms...
  21. junkcrap50

    [Webinar] Thursday, June 17th 7PM ET - Frontline COVID-19 Critical Care doctors unveiling I-RECOVER Protocol for Long Haul COVID Syndrome (LHCS)

    Frontline COVID-19 Critical Care (FLCCC) Alliance will be giving a webinar tomorrow evening announcing their management protocol for Long-haul COVID Syndrome (LHCS). They will be sharing their experience, which they claim has returned many patients back to health. Tomorrow, Thursday, June 17th...
  22. Celandine

    Why Women are More Prone to Long Covid (and ME/CFS)

    Good piece in the Guardian looking at various theories. Very applicable to ME, as well. One of the things it says is "Some scientists have already begun to describe long Covid as an oestrogen-associated autoimmune disease..." which is very interesting and not something I've seen mentioned...
  23. Hip

    Survey suggests post-viral fatigue form of long COVID might be the most common subtype

    In the COVID-19 Longhauler Advocacy Project Facebook group, I posted a poll asking members of that group which subtype of long COVID they most identify with. Long COVID subtypes include: post-viral fatigue (similar or the same as ME/CFS), heart and/or lung damage (which may be permanent) and...
  24. Pyrrhus

    COVID-19 symptoms over time: comparing long-haulers to ME/CFS (Jason et al., 2021)

    Gotta love Lenny Jason! COVID-19 symptoms over time: comparing long-haulers to ME/CFS (Jason et al., 2021) Leonard A. Jason, Mohammed F. Islam, Karl Conroy, Joseph Cotler, Chelsea Torres, Mady Johnson & Brianna Mabie https://www.tandfonline.com/doi/abs/10.1080/21641846.2021.1922140 Excerpt:
  25. nerd

    Google Trends not showing increased awareness for CFS/ME

    I created this plot to analyze if COVID-19 somehow contributed to an increased awareness for CFS/ME. The latest Google Trends data show increased searches for Long COVID in Google and YouTube - multitudes greater than for CFS/ME. There is no increased awareness for CFS/ME from Long-COVID...
  26. nerd

    Long-COVID and CFS/ME are not MCAS

    The inducement for this post is the growing publicity of the theory that Long-COVID is just a simple disease in disguise, such as MCAS, and that there is a quick solution around the corner. For MCAS, a low histamine diet would be a simple fix to all the problems. This is the subtext of the...
  27. nerd

    Severe COVID-19: A serotonine-mediated disease

    I found this research from Dr. Farid Jalali, and it finally explains why severe COVID-19 is so severe despite antivirals and immune suppressants. It's all driven by serotonin from destroyed platelets. I'm mentioning this because it can also explain the damage to the Blood-Brain Barrier (BBB)...
  28. max_yazhbin

    Gumweed leaf tea helped me overcome Covid

    I have a pre-existing condition, multiple chemical sensitivities, which upon more recent testing looks to be caused by an insufficiency of the appropriate amino acids as well as mercury poisoning which allowed candida, SIBO, H. pylori, and ulcers to flourish. I was worried for a bit when the...
  29. Pyrrhus

    Video: #MEAction "M.E. and Long COVID" 25 March 2021

    #MEAction Press Telebriefing: M.E. and Long COVID 25 March 2021