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cfs

  1. Pyrrhus

    Second study confirms neuroinflammation in ME subcortical brain

    Many of you will remember the landmark Japanese study from 2014 that used PET tracers to detect and image neuroinflammation in the brains of ME patients. Previously, no one had the technology to detect and image neuroinflammation in ME, as standard MRI's are totally unable to detect or image...
  2. W

    Inspired to find what my problem is and need guidance. I've felt like death my entire life, the rare times I didn't tell me this isn't normal.

    Piggybacking off https://www.mechanicalbasis.org/ + https://forums.phoenixrising.me/threads/have-you-ruled-out-chiari-or-craniocervical-instability-cci-as-a-cause-of-your-cfs.56908/#post-945253 , a story of a man that suffered CFS alongside POTS...I'm inspired to sort out my body, especially...
  3. Pyrrhus

    Anti-inflammatories may reduce symptoms in the short-term, but may not in the long-term

    Over the years, we have seen multiple reports that strong anti-inflammatory treatment reduces ME symptoms in the short-term, but may worsen ME in the long-term. Most of this evidence has come from patient anecdotes regarding...
  4. gbells

    For Age 25+ w/ history of Chicken Pox and ME. Fever poll.

    Please answer this poll only if you are age 25 or older and have a history of chicken pox infection and chronic Myalgic Encephalomyelitis. Please indicate in text if you have lower body temperature in general as well.
  5. Pyrrhus

    B12: a simple 5-second poll for everyone

    This is a simple 5-second poll for anyone who has ever tried a B12 supplement in any form. Many thanks to everyone who responds! Please feel free to share your experience in more detail in a post.
  6. Pyrrhus

    Quotes from the unusual life of Dr. Byron Hyde

    I thought I would start a thread to collect quotes from the life of Dr. Byron Hyde, who has had a front-row seat to some of the most important events that have occurred in the field of ME/CFS: On the Akureyri outbreak: On the Royal Free outbreak: On McEvedy and Beard's paper calling the...
  7. gbells

    Poll for SEIDs patients who had nagalase testing

    Answer this poll only if you had nagalase testing and did not have cancer at that time.
  8. gbells

    NIH Lead investigator promotes 'mental illness' theory of CFS

    NIH lead clinical investigator thinks CFS and fibro are somatoform https://www.meaction.net/2016/02/20/nih-lead-clinical-investigator-thinks-cfs-is-psychosomatic/ #MEAction via @meactnet
  9. A

    Sudden onset of leg and tooth pain - advice needed

    Hey Guys and girls Ive had cfs/Me for the past 13 years. It started with EBV and my symptoms have been pretty constant the past decade. Namely lots of fatigue - needing to lay down most the day / finding it hard to sit up for too long, head pressure, POTS, achiness.... 6 weeks ago I got sore...
  10. Pyrrhus

    NYT Article on Empress Masako

    For anyone interested in the new Empress Masako of Japan, who reportedly suffers from ME, there was a New York Times article that entirely neglected her health problems: https://www.nytimes.com/2019/04/29/world/asia/japan-emperor-women.html?action=click&module=News&pgtype=Homepage All it says...
  11. Pyrrhus

    CDC: Enterovirus D68 causes paralysis

    After spending decades carefully avoiding the use of the word “cause” in relation to enteroviruses, the CDC has now conceded for the first time that Enterovirus D68 causes paralysis. https://www.cdc.gov/mmwr/volumes/68/wr/mm6815a4.htm?s_cid=mm6815a4_w
  12. Pyrrhus

    Viral Exosomes known as ‘Stealth Spheres’

    Given the recent interest in exosomes, I thought I might share some research on extracellular vesicles that the media have, somewhat sensationally, dubbed “Stealth Spheres”: References: (Chen et al., 2015)...
  13. O

    Anyone's symptoms get worse after doing anything stress related?

    I want to here from people who experience PEM and what the resulting symptoms are from PEM.