I live in Northern New England but I found a talented ME-CFS clinic and Doctor Lynch in Westerern Mass USA called Northampton Wellness Associates. After testing positive for XMRV
in September 2010 I was motivated to find a CFS Doc and I found NWA through co -cure. After seeing the XMRV positive results I started on Valcyte for 14 months and just ended. All the blood tests that he ordered in October 2010 came back with high levels of EBV, CMV and the usual list of suspects and Low Vit D3 etc.
Dr. Lynch and NWA drew my blood just yesterday for my Nagalese count.
I had to pay $70.00 U.S. for the test. Dr. Lynch is recommending that if my Nagalese levels are high I should consider GcMAF
. I am very excited about this as I have mild-to severe CFS for 9 years and I am mostly homebound although I did have a good response to the Valcyte and still take famcyclovir. I will also be starting low dose naltraxone or LDN this week.
If anybody in the U.S is purchasing GcMAF
I would like to know of their experiences and cost of the GcMAF so I can determine if I can somehow come up with the $$ to do this therapy!.
Also if anybody in New England (United States) has been looking to receive REAL treatment and RESPECT for Me-CFS they should contact Northampton Wellness Associates in Western Mass. It is 160 miles from my home in Vermont but is well worth the trip. I spent years trying to find a ME-CFS Doctor in Boston to no avail! Here is their website.http://www.northamptonwellness.com