So I have been ok for a few months. The only issue I had was bones popping out of place WAY to often, Since then I decided to lower the midodrine since I was doing better and that did the trick.
But I have not have a crash or the regular CFS fatigue for about a few months.
Then today I felt it. That tiredness and then the wave of this substance that invades my brain and wipes me out unconscious.
I freaked out, all I thought Holly shit how did I did this for whole days / months / years at the time. I cannot go there again, there is no way I can make it through another relapse.
I know compared with much, is a good problem to have but the feeling of CFS is so overwhelming that I had forgotten or I don't even know how to put it, I DONT MISS IT. for sure. But also reminded me of the fragility of my good periods. I have crash every year every fall, I hope this year will be different because to be honest I don't know if I can do this again.
Note: I still manage energy, and I follow a very strict livestyle to feel somewhat decent, but I have my other diseases (colitis is acting up) and POTs to deal with. But CFS mostly is doing great. I don't know if I attribute the IBS like thingy to CFS or Colitis, that is an issue still.
But I have not have a crash or the regular CFS fatigue for about a few months.
Then today I felt it. That tiredness and then the wave of this substance that invades my brain and wipes me out unconscious.
I freaked out, all I thought Holly shit how did I did this for whole days / months / years at the time. I cannot go there again, there is no way I can make it through another relapse.
I know compared with much, is a good problem to have but the feeling of CFS is so overwhelming that I had forgotten or I don't even know how to put it, I DONT MISS IT. for sure. But also reminded me of the fragility of my good periods. I have crash every year every fall, I hope this year will be different because to be honest I don't know if I can do this again.
Note: I still manage energy, and I follow a very strict livestyle to feel somewhat decent, but I have my other diseases (colitis is acting up) and POTs to deal with. But CFS mostly is doing great. I don't know if I attribute the IBS like thingy to CFS or Colitis, that is an issue still.
