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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Blog entries by sunshine44
Our medical system is inverted, most of us here know this. And there are reasons more and more healthcare workers are leaving the system.
I think a good question in coming times is how do we rebuild the system?
And further yet so it can not be repeated again, how did so many life systems on...
Eh, the struggle continues.
But sometimes I still remember to dance even whilst underwater.
What if none of it was ever really that far out there. It was merely a matter of pattern recognition? And once you see the patterns, you cannot unsee them.
I am sure some wonder, who does she think she is to be so vocal on some matters. She doesn’t have academia training etc in this area and...
Sooooo, I thought I would do a brainstorm sesh here. To assist me in navigating some important upcoming shifts in my life.
Note: please keep things in the more upbeat section for me as I have much to traverse and not a lot of bandwidth for worst case scenarios. Thank you 💗
To begin, yesterday...
Some of us have been through so much that it can be quite difficult to process the whole of it.
It comes in pieces for me.
Especially during my newest and latest eruptions aka crises.
And, I decided I forgive them.
I’ve known this.
But I get lost in the emotions when retriggered by...
If you are familiar with titanium walls of the system as a whole, then you understand.
“The thing that gives me hope is that one day this titanium wall of a system, I will be able to break through it and get access to the resources I need.” - Roger
You guys have been
through enough sad stuff lately.
Me too.
A song for your troubles.
** so many videos won’t upload here for me anymore. Strange. It’s called ‘skin shape-soul groove 7 inch vinyl’ on YouTube.
second song since the first won’t show, ha!
Golly gee, that neither.
Led...
I am so angry.
I am so angry.
I am so angry.
And I need a space to let this out right now.
I am so f ing tired of my situation.
I’ve literally been through beyond hell past 3 months. No, not much has changed. I’m still mostly in depends now since covid. Total survival mode. I my good...
So much pain has come to me and my family from Lyme disease. And the mysterious ness around it of no one wanting to treat me. And as the years went on… I learned why.
Sharing an interview with the amazing and brave, Kris Newby.
Sometimes nothing is more healing than love.
If you cannot listen to this song, I will post the lyrics and you can lay in bed and imagine your hand on your heart unless you are strong. Enough to put it on your chest and imagine people in the world swaying to this song together.
Through the...
“Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me.”
This verse has been in my head lots past few months. I have no idea what my new baseline is. I can confirm it may be worse than any baseline I’ve yet...
Vent and purge post*****
Trigger warnings
Don’t read further if you don’t want to hear unpleasant things rn.
I’m trying so hard stabilize. To remain positive. But in truth, many nasty things are occurring in my body. I’ve lost track of updates. I took a 4th ambulance in. I’m on home...
Well…. My body is STRONGLY feeling the pull of this eclipse. No surprise. I first went down around 2017 eclipse and knew the 2024 one would affect me as well. These things are like full moons on steroids for some of us. 🙈😵💫
Anywaayysss with the eclipse on my mind and distracting from immense...
“There will be a time, when the dark finds out that it has been serving the light.” ~ Similarion J.R.R. Tolkien
Many in the me/cfs community are more tuned in than not I have found. Partially by necessity at times from this wretched illness forcing us into cocoons that break (and...
Hi everyone,
Starting a new blog entry on it because … well I just am. I feel like posting a song. I’ve mostly not been able to listen to music past month. But, a song will do right now.
Things have continued to be rocky with me. My family left town for 5? Days and I was on my own. After all...
If you pray, will you pray for me please?
I have covid pneumonia and was just sent home by ambulance by an overworked worn out ER.
If you know how severe my situation already was, you know I could use all the prayers.
🙏💗
“May the light illuminate all hearts” ~ author unknown
From my room to yours, close your eyes and feel the sun 💛 let it feed your own inner light ✨
“However long
or dark your night is
Right where you are
That’s where the light is
My love
The sun
Is a reflection
It’s true
We’re one
We are each other”
One of my most favorite songs.
I used to listen to it and sing it over and over at campfires as my limited energy allotted. It...
Barbara O’Neill has some amazing gems of wisdom pertaining to health. I’m not even going to summarize. If interested, highly worth your time to watch this in its entirety.
“For some you will be a mystic
For some you will be crazy
For some you will be a wise man
For others you will be misunderstood
You will be a good example to some
A danger to others
To some people you can be a good friend
Do you realize?
You are merely a reflection of the state of mind of...