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3 basic reasons why people with ME/CFS can’t be as “academically productive” (learn as much in an academic year) as they could be before the illnessA corollary of this is that just because somebody gets poor or just less than stellar results doesn't mean they weren't making a lot of...
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3 basic reasons why people with ME/CFS can’t be as “academically productive” (learn as much in an academic year) as they could be before the illnessVery helpful post for anyone considering a college work load. I got Mono yet again, in Graduate School, and my grades went down that semester... -
3 basic reasons why people with ME/CFS can’t be as “academically productive” (learn as much in an academic year) as they could be before the illnessI’ve heard people with ME/CFS, and advocates for people with ME/CFS, concentrate a lot on getting extensions for assignments. While they can have...
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I appear to be dying - and it’s from neglect@visionblue do not give up. It took Howard 3 or 4 attempts before he fought his way getting a line. When I was 85 lbs in 2009, no er or GI Dr... -
I appear to be dying - and it’s from neglectO.M.G. Thank you for letting us know. I had *mistakenly* assumed she was writing to us from her hospital bed last night. I second @linusbert's...
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I got to the point in the schedule I was able to cut down on because of really redundant results and get to the 1 minute on the back of head before some point days ago when I had a shift in how the red light was behaving. This produced somewhat more immediately pronounced effects of the same...
This was prompted both by my own personal experience studying full-time with ME/CFS for 4.5 years but also by over the years seeing many students with ME/CFS in 2nd level & 3rd level education taking on a full academic workload (for one reason or another) and it not working out for them....
“Transformation begins where resistance ends. Thus, the path inward becomes the path forward.”
- S. Istavan
Schedule (subjecct to change based on what is happening, may report in between if I feel it's needed)
7/21 - RLT - once in morning lower back, once later for seconds (under 15 seconds) back of neck - second exposure triggered extended fatigue relapse while first appeared to be stable clearing...
I debated whether I should tell everyone this but decided PR should for posterity know of another case similar to ar least one ive seen before
Quick version-i am in cachexia - my body weight is down to a BMI of 13.5. and the muscles have all been carbolized It has even accelerated last...
Things with RLT began to go south with the head/neck for some reason. Every session even cutting down to a minute daily began giving me extreme fatigue and more aching at the base of my neck that would get really bad later at night. I removed the RLT altogether for some days and bounced back...
Cool stuff. And the man has a point. 😁
Jul 16, 2025
At 1:25 scale, the model Starship Enterprise I'm building will be the BIGGEST MODEL EVER BUILT! Not only am I building the exterior of the ship, I'm also building the entire interior from the bridge all the way down to deck 24 in the...
Hey Y'all; a thing I'd very much love to go do if health, income, time, were available.
First, I made a comment,
🛶 Now, on with the narrowboating,
I'm still EMF sensitive but with shielding on everything I need to handle playing games now at least....unless the harddrive is going too much or my body even gets a hint of wifi. I sit here this morning with a face feeling like someone rubbed chili oil all over it and a general feeling of being...
Because this caught my attention and I want distraction from a misbehaving body today, even though doing this is not helping my stiff puffy painful hands.
And no, voice to text will not work since my voice has faded out today like it sometimes does.
This from 2018 was in their email newsletter...
Today and yesterday....and the day before I was doing terribly. All from the rebound of doing a adenosine experiment where I was seeing if I had a consistent reaction to antogonizing the receptors while adenosine was at peak concentrations which is around 11 PM. Every single time I would have an...
Words defy what some of us very very severe cases endure and go through.
There….are simply not words to describe this condition or to explain the feelings that go with it.
Since I have been one very, very severe after October crisis, it has been stunning to me and quite the knife in the back...
how does Neo have real world powers in the end of Matrix 2 and the whole Matrix 3?
there were common explanations like
1. matrix in a matrix
2. kinda bonding to the machines like telepathic or wifi
but i came up with...
Since everything on what I'm currently doing got way too chaotic and spread out over a bunch of topics I decided to type this up to wrap up what I'm currently doing and how it's all working with itself.
Over the past maybe a couple months now I been diving into working with enzymes and then...
Today was the second day in my RLT cycle of using the red light on my stomach and following the trend from last time the side effects were lessened upon using it again there. My guts at the time weren't doing so hot but calmed down quite a bit after the 1 minute of red light on them. I had some...
Pretty cool find, and what a coincidence!
➡️ Be sure to read article linked above
it made me in someways more anti social as i already was, but i am now reverting course on that, actually for a while now, but
also weirdly to the point before , it made me much more social as i was before, brought even some gifts like
- insane level of empathy for sick and suffering people
-...
I couldn't update my last blog post for some reason so I had to make a new one.
6/18 noon - I have pushed my way up to 2 minutes every other morning upon waking up from initially barely being able to handle 1 when I first started. No matter how I felt the previous days the side effect rebound...
I made it to 44.
Barely.
Yet, here I am.
My husband and daughter gave me a really special day despite my extreme limitations. And my son surprised me with a phonecall from the Air Force. 🙏🤍
If you want to help me celebrate,
Play this song (if you can) and dance in the sunshine (if you can)...