• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Phoenix Rising ME/CFS Forums

New posts

News, Research, and Advocacy

ME/CFS Events

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301
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301
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6.5K
Violeta
Zoom, Oct 4, 1:00 EDT, Research Roundtable

News and Research

ME/CFS and other health news and research
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Messages
250.2K
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Other Health News and Research
  4. Long COVID and Coronavirus
  5. Active Clinical Studies
  6. Phoenix Rising Articles
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250.2K
V
Possible effects on cognitive function of using AI.

Advocacy

Advocacy, fundraising and petitions
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51.8K
Sub-forums:
  1. Action Alerts and Advocacy
    1. Advocacy Projects
    2. Millions Missing Campaign
  2. Petitions
  3. Fundraising
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Messages
51.8K
B
OMF Global StudyME Registry - both healthy and ill participants needed - easy to sign up

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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5.5K
Messages
108.6K
Threads
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Messages
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P
doing better, wondering why...

Symptoms and Treatments

Symptoms

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103.6K
Sub-forums:
  1. General Symptoms
  2. Post-Exertional Malaise and Fatigue
  3. Pain and Soreness
  4. Neurological and Sensory Sensitivity
  5. Cognition, Brain fog, and Emotion
  6. Sleep
  7. Peripheral Neuropathy & SFN
  8. Immunology, Inflammation, Allergies
  9. Hypersensitivity, Intolerance, MCS
  10. Dysautonomia: Problems Standing, OI, POTS
  11. Dysautonomia: Cardiovascular, Respiratory, etc.
  12. Hormones, HPA axis, etc.
  13. Gastrointestinal: IBS, SIBO & Urinary
  14. Skeleton, Skin, Hair, Teeth, and Nails
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6.2K
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103.6K
V
PEM from talking patterns

Treatment

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12.8K
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236.2K
Sub-forums:
  1. General Treatment
  2. Antivirals, Antibiotics and Immune Modulators
    1. GcMAF
    2. Rituximab: News and Research
  3. Methylation, B12, Glutathione, etc.
  4. Hypersensitivity/MCS Treatment
  5. Gastrointestinal Treatment
  6. Alternative Therapies
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12.8K
Messages
236.2K
cfs since 1998
Daratumumab n= 10 Trial Norway - encouraging preliminary results Oct 2024

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1.8K
Messages
30.3K
Sub-forums:
  1. Information and Resources
  2. Lifestyle Management
  3. Finances, Work, Disability and Housing
  4. Disease Onset and Progression
  5. Spirituality and ME/CFS
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1.8K
Messages
30.3K
Rufous McKinney
Pacing Brings Stability -- Soothing the Nervous System -- Be Your Own Best Guide (3 Remarkable ME/CFS Recovery Videos)

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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41.8K
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
  3. Genetic Testing and SNPs
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3.1K
Messages
41.8K
dr. Arf
CellTrend test for ME/CFS (Prof. Dr. Carmen Scheibenbogen, University Hospital Charite Berlin, etc.)

Related Conditions

Comorbid Conditions, Differential Diagnoses, etc.

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2.3K
Messages
41K
Sub-forums:
  1. Fibromyalgia
  2. Lyme and Bacterial Infections
  3. Viral Infections
  4. Fungal Infection (Yeast, Candida, Mold)
  5. Mast Cell Activation (MCAS)
  6. Connective Tissue Disorders: Collagen, EDS, CCI
  7. Thyroid Dysfunction
  8. Adrenal Dysfunction
  9. Multiple Sclerosis
  10. Autoimmunity and Autoimmune Diseases
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2.3K
Messages
41K
Wayne
Diagnosed Cervical Instability

In Memory of ...

In Memory of ...

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82
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82
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1.5K
Rufous McKinney
In memory of Walker Storz (frozenborderline)

Miscellaneous

Resources, Projects, and Archives

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66.6K
Sub-forums:
  1. Google Site Search
  2. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
  3. Content Team Resources
  4. Institute of Medicine (IOM) Government Contract
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2.5K
Messages
66.6K
Rufous McKinney
Dr Mikovits excellent reply to Science Journal Request for Retraction of XMRV paper

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