@Athene “Thanks for the detail. It helps so much to compare. Your story is so like mine@@dogged_daysI had the endometrial ablation too when my ovaries went haywire as they returned after many years dormant.”
Interesting. I was in the midst of the tenth year on t4 when I had this surgery. I hadn’t left my endo yet. A gyno recommended it. With the specialties segregated like they are, no one steps on anyone else’s toes in recommending against surgeries. I was a deer in the headlights at the time.
I agree with you wholeheartedly that had we received proper treatment, or even direction, (of any kind, really) we would not be in these positions we are in now. It’s a futile, profit driven scheme, not intended to make you well. In fact I’m still angry over it all, as it gets progressively worse, and more complicated. I am only beginning to learn how to take care of myself.
“I had identical response to you on the Fredd Protocol too and thought it was miraculous, but then it tanked my iron because of the low b2, but I'm still doing a lower version of my original FP, along with the b2. I've been ill for 20+ years, so, like you and others here, it will take more time to get better than for those who have recent onset deficiencies.”
Thanks for these encouraging words. I learn a lot from you. What a tangled web.
“I never tried testosterone. Do you find you need less testosterone with your b12? I only ask because it seems to increase my testosterone (too much at times).”
Wow, I wish I could say that. There are times when I can feel prog & test doing me good. But right now I don’t feel them at all. So I’d say no, the b12 has not increased the testosterone. Since last summer I don’t feel any benefit. What I’m doing isn’t quite working right now. I am sure I am suffering from the metals.
Not a good week. Lowered the iodine Sunday. Not sure about that. Cold, exhausted, cold and agitated cold and more freakish than usual. No calm. It will take a bit to transition to the oils. I also started the adeno only oil. Maybe it was that? I’m not knowledgeable enough. I don’t know how everything interacts. It’s absolutely fascinating.
I did an experiment today however. Yes…I changed two things in one day…impatient. With my 2 x 50 B2s, I added 2 x FMNs. Within the hour my temps were up. So I’m pretty sure I need more than 100 b2. I had about an hour of warmth in the morning and the afternoon from the FNMs. The oil’s effectiveness is changing everything. The hardest thing to manage has been the hydrocortisone. I am deficient still, yet I cannot tolerate it well. 10 mgs is really difficult, but I am freezing and terribly agitated without it. Remarkable change from 25 mgs prior dose. Amazing to peel away all the props that were holding us up. HC, iodine, etc. You really see that you were merely "propping" yourself up all those years and that so many systems were not functioning properly.
@Kathevans. "My neck is much better than it was a year ago, though I still have a lot of joint, tendon and muscle pain and soreness. The thing is, as I've played with folate after having taken so much B2 on board, it seems like the folate is driving the tightening muscles. I kept going lower, raising it, back and forth with the folate, the B12, the B2, and it seems to me--in this moment--that it is, indeed, the folate that is causing the tightening. I keep recalling what Greg said to me, that"If you need more [than 400-800mcg/day], then either your methyl B12 is too low, or you have a block at MTHFR, due to B2 deficiency." I also think that I have a substantial need for Adenosyl B12, but am still not adding it at all because I want to have things settled to some extent prior. I have a very strong feeling that enough B2 will enable me to take the Ado without problems.”
So this is very encouraging, thank you. I am working to ramp the folate down! This gives me the confidence to drop the dose again. I am
very happy to move on from this, it’s tough to maintain.But I am confused about the IBS symptoms I get. I thought they indicated folate deficiency. They are pretty strong right before I “need” the folate dose, and go away right after I take it. It’s all very confusing to me. There’s more going on than I know. I am sure. One thing I know. I have fingernails for the first time in my life since starting all this B business. That's pretty neat. I'm not ashamed of my hands for once.
I’m sorry to hear your heart gave you trouble last night. I hope you have restful sleep tonight with no dancing heart. Makes for such a long night.