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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Thanks for the infos. I'm currently waiting on both b12 oils and mineral oils from Greg, customs in Italy is taking an insane amount of time, like twice the time for the package to arrive here.@motorhead This video is good….and yes iodine, as potassium iodide is at the basis of Greg Russell-Jones approach to getting activated B2, which assists the recycling of B12 and Folate going. I had another non-productive experience with Genestra’s Potassium Iodide because it is mixed with Kelp. Somehow, according to Greg, this deactivates the iodide, or makes it effectively simple iodine, which doesn’t work biochemically. If you use a liquid supplement that has any tinge of yellow in it, this will make the iodide ineffective. It must be in the iodide form. For this reason Greg is now recommending people use his transdermal mineral oils which, like his transdermal B12 oils, is readily absorbable by the skin…and avoids ifffy gut situations.
Sorry to ignore you, @lenora -- I haven't been active on this site for a very long time. But it looks like Kath answered your question better than I would have.@garyfritz....you've put a lot of effort into this matter. However, I haven't read about any side-effects....any mention of them? If so, what are they?
Gary,So I'll chelate again for a few months, and then I'll stop all ALA. Won't be going back to 2x/day doses.
Seems more like the opposite is happening for many. Did you get the shot?maybe the 'third booster' which they are talking about can boost your immune system--I've heard this speculation.
Ah that's a new one. There's users in here who were on huge quantities of ALA.I have found a medical article that says ALA blocks the conversion of T4 to T3. But it doesn't say at what doses, etc. I have never heard this before, but need to get around to asking others on ACC to see if they have experienced problems during chelation. If it were that much of an issue, I would imagine that many on ACC would have experienced problems, and frankly, I've never heard of it...
I got the Moderna vaccine beginning in February and had a sore arm for several days after each time, but no more. Greg says the important thing is to have ample B-12 and Vitamin D and I do supplement both, so maybe that helped. My son who is highly allergic had it a couple of months later and had more fatigue with the second shot, but nothing more (despite having had many anaphylactic reactions in his life where we had to useSeems more like the opposite is happening for many. Did you get the shot?
In fact, I've taken fairly high doses of ALA - only up to 75mg/dose, but even at that, I'd noticed my TSH had risen over the past few months from 2.6 to about 3.7 (it had been as low as 1.9, and of course the goal is .5-1.5), so I am taking a break for at lest a month or two to see if it goes back down with the levels of iodine and selenium I'm taking. As to R-LA, it is definitely NOT recommended by the Cutler people, though I don't know anything about it. I do understand they are two different things entirely...There's users in here who were on huge quantities of ALA.
We are all different, as you certainly know by now! I have been taking the mineral supplements for almost three weeks and have been struggling to find any balance at all. I have suffered both insomnia from as little as 2 drops of iodine and 1 each of molybdenum and selenium; and heart palpitations --last night for a loooong time--when I tried to increase the iodine to 3 drops and also increased the moly and se.Just got the b12 and minerals, immediately applied a full dose (8 drops of iodide) thinking I'd turn into superman in a matter of minutes (considering I'm vegan), no reaction whatsoever. Don't know what the people on the fb page are on about mentiong pinhead starting doses.
FT3/FT4/TSH from last week's blood test are in ranges:Have you done a Thyroid panel?
Took the first squirt (edit: make it SIX now) of B12 today preceded by a 15mg (edit: 30 mg) MTHF supplement, L-carnitine fumarate and 5mg of lithium orotate, feeling so far? yup you've guessed it; none.
Thank you for this long and comprehensive post. Your profile is very like many of us who have found our way to Greg and his oils. His hard work in trying to find out sources of the Iodine/Selenium/Molybdenum that actually work has led him to develop the companion mineral oils that go with his B-12 Oils. If one has multiple B-12 snps, as well as MAO/B2 issues, this may be a worthwhile path to check out. Greg says that of those he has worked with with this profile (and I believe there are over a thousand of us or more), he says 100% of us are B-12 deficient (often 'paradoxically' which is a challenge to uncerstand!), and 80% of us are B2 deficient.
Unfortunately, like you, it has been very hard to convince a doctor to look into my thyroid as a source of problems. Because my TSH falls within the 'normal' range of between .5 and 5, they ignore the fact that my total T3 has been hovering at or below range ( 76-180ng/dL) as far back as I've been keeping track of it (2014). Also like you, a little selenium back then might have gone a long way. Now, who knows?
I've struggled with my health for about 25 years.
Very interested to find this thread! I've been following GRJ's protocol for the past two years in an attempt to improve my health. Some things have improved, others not. I'm still a work in progress, it seems.