Good Morning....As usual, here I a am an "early bird." Oh, how I wish I could get some sleep; it has now been going on 3 wks. since I was put on Cortisone and when I'm on that I can't even squeak out my usual 4-5 hrs./night.
Ah, well, that's not why I'm writing. First off, Janet Dafoe, I'm wondering how Whitney's doing. I used to follow his/your/his father's reports immediately. I'm so hoping that your husband will be the one to crack this illness...after all, it's his field and he deserves to do so with everything you and your family has been through.
I wanted to amend, once again, my stance about mold(s) not being a cause of this illness. I thought long and hard about it and even case myself back to the beginning of my own illness, at least 30+++ yrs. ago...who knows?
Anyway, I firmly believe that an addition we were putting on our house, the second of four by my husband, (Rod), also played a large role in this illness. These materials were all brand new...new wooden floors, new wallboard, paint (a big culprit for me), and carpeting. I think those fumes somehow set something off in my immune system and, like the spinal cord surgery itself, left me so ill that I thought (& didn't) that I would never recover from whatever had occurred to me. This, in spite of walking at least 2-3 mi./day, showering & trying to prep dinner. Anyway, I'm wondering if any research has been done on this in addition to molds? We've had our air ducts cleaned out over the years; a smart move, and I don't know if it will help anyone else. We didn't have to leave the house as they were used to dealing with people with mold conditions and carefully caught it at all ends, and in between.
My heart does reach out to each of you. I'm trying to make this as short as possible; but it's not just "my style." I like the art of writing, the structure of sentences...well everything about books, etc. Good, quality books I must add. My hubby are very different in that regard. He's a math whiz, I'm the reader and the questioner in the relationship & we'll have been married for 53 yrs. in just over a month's time. Yes, one day we truly are young and invincible and before know it we're old and frail. Indeed, death doesn't frighten me one bit; after having this (these conditions) for so long, one learns to accept it,do think of becoming a stronger person. Say your goodbyes to the past, and remake yourself into someone else. You'll be surprised at how much more accepting of yourself and others' will accept you than you were before.
You'll have to do that many times in your life, but then all people do one way or another. We suffer throughout life, and sometimes we don't all use wheelchairs, so the suffering isn't seen. Ask other people how they're lives are, learn to love and praise their children, accept their irresponsibilities when their parents want to talk about them...in other words, put the focus on other people instead of yourself and begin to change. If you can't have marry or have children, move on to the next stage...adopt a pet, or even better yet, a Service Dog especially for your situation. We all need contact of some sort...just do it, you may be surprised at the changes that occur in the basic level of "you" your id. Wishing you well as we begin a new day. Yours, Lenora.
I vote we keep Pondering! Pondering is important! Lovely roses!
I want to help people also, and occasionally feel like maybe I was helpful. Also see this illness has rather made me self absorbed, which I don't like especially.
I did a ritual, a few years ago- it was something i wanted to do, a type of ritual in which one makes a bargain.
If "You" will help me get well, and feel better, I will share that healing with others. Doesn't really matter who was the You in question at the moment...(or conversely, maybe it REALLY Mattered).
After making this bargain- it was necessary that I follow thru. What if you make a bargain with the Universe and don't follow thru? What if you ask for help and disregard the messages that follow?I
I subsequently received a whole lot of messages, in many forms, in many ways. I found a few new things which helped me feel a bit better..and did considerable Attitude Adjusting...I've made attempts to share some of those things with others.
And now I wait- Pondering- what next will happen to help us? Dr. Prusty- I really needed some good news today and am grateful to him and their lab....