Sorry about the long writing...
So, we have spent 20 days at sea this summer so far, with my wife and a dog. Day by day my body seems to heal a little by little due to vastly available energy from the sunshine. I tend to need a few days rest from sailing every seven or so days and so we come home to rest for 4 to 5 days. But just like last summer, I am sure, we can sail for three weeks without rest when my body is more healed. This is going to be around in the middle of August. We sail 2 to 4 hours a day.
I have got rid of most cognitive problems. My brains are working a lot better than in winter. One day I checked 5 page english-finnish translation for a book and didn't get tired. I felt that it was hard work but once I rested an hour or so, I was OK. Therefore, I stopped injecting methylcobalamin 5000 micrograms twice a week, without which I had had anxiousness, and a bad depression and brainfog in Spring, if I over excercised or used my brains too much. My quess is that improved Brain-derived neurotrophic factor (BDNF) production is a to blame for this. Its job is to fix brain cell membranes (myelin), like methyl cobalamin does too. When excess homocysteine (of CFS patients) destroys brain cells and their membranes, the previous prevent them doing so and fixes brain cells. Sunshine increases BDNF production a lot. The more you are in sunshine (or have PBM therapy) the more BDNF you get.
But my kidneys are not working better. According to lab tests, my kidneys are just fine but a little lazy. It shows in higher than normal creatine and uric acid levels and in the fact that I was just diagnosed gout. I have to change my diet. I have to cut my beer drinking and eat less protein, and some other changes too. Mainly stop drinking alcohol and I have to loose some weight too.
It should not be a big problem, because I used to drink alcohol for depression and anxiety but since I don't have them anymore, I know I can manage to cut my alcohol. According to my previous blood tests, some beer once a month shouldn't be a catastrophe, I think. And once I cut my alcohol, I loose weight too. After all, I am physically more active now than in Spring.
My diet has become more versatile too because my chemical sensitivity has got better. This too is due to sunshine. But sunshine is not all good for me. When the temperature rises too much, I seem to feel week. Some 24 degrees (Celsius) is fine. 27 degrees in the shadow is OK but in the sunshine not so fine.
My quess is that I have a broken gene that causes my kidney problems, just as I have a broken gene that influences my homocysteine levels. When I was well, my body was able to compensate the broken homocysteine gene but now, when I have lowered energy production, it can not compensate it anymore. I wonder why sun light affetcs so much to my homocysteine level but not creatine and uric acid levels. I will have blood test this monday to confirm that my homocysteine is normal. If it is, I don't have to inject methylcobalamin ever egain, because PBM therapy will then take care of this problem.
Sunshine affected positively to my depression and now I can even enjoy food, which tasted like cardboard a few months ago. I feel happy at the sea and in the nature, smelling fresh air and fragrance of various flowers and plants. Just seing small nice things, like a flower or rocks at the archibelago, brings me joy. And my sex life related hormones are working now well and I can enjoy that lost part of my life again. So, the change is quite inclusive (is that the right word here?)
This all is a lot and I am very gratefull and I feel blessed. I still can't do physically demanding tasks. My muscles are groving slowly but they are weak. I can sit now about two to three hours daily but four hour sailing is too much.
I am now quite sure that I will benefit also from UVB light and will be building a narrow band UVB treatment light panel with my friend who is an electrician. This will be around September. Together with red and near-red infrared light, I should be this "well" the whole year. If not, there are green and blue LED light panels in the market, to test.
My gut feeling is that when my body heals itself, it can use more energy to healing process which promotes even more healing. When my physical health will be better, it also promotes improved chemical health. What I mean is, by the summer 2021, I could be more well than I have been in years. Hopefully.
Here some pictures and info from finnish archipelago, encase you got interested:
Have a nice summer! Or Winter, if you live in Australia!