Probably asked you this before, but have you tried cumin? It's never really let me down,
I have yes but it didn't really seem to do anything. I do sometimes take another antioxidant called PQQ, it's very strong and definitely I feel it clear up something, my depression definitely gets a lot less so I think it clears cytokines or inflammation or something, but again if I take too much I rapidly start to feel shitty. Right now I'm leaning towards letting myself flush the current one out naturally - I think my glutathione escapades made everything a lot worse and I'm worried about doing that with other supplements. Hopefully it shouldn't take too much longer.
But I did come back to only very sick
Haha yes, I didn't think I'd ever hope to be feeling like I was before! I guess there is always another level of "sick"
I wonder if it's the rate of liver detox... would we benefit from milk thistle or other things for the liver?
Yeh good point and I'm sure this is a factor. And I know I have liver issues, one of the few blood tests that have ever come back positive for me have been very high liver enzymes, maybe because they're struggling to clear all the toxins I'm flooded with. Although Glutathione (and Ph-choline) is a liver supplement, and binders are supposed to help the liver. More I suspect it's just our livers already working to the limit, and any more glutathione might just be overloading our livers with too much work? Who knows.
But perhaps the toxins it does target are contributing to my inability to detox others. I wonder also if the good effects on the gut will make the detox reactions less severe.
I agree, it probably doesn't hurt at least. To be honest I probably would go straight for the S Boulardii first were it not for my paranoia about the Steroids, it seems a sensible first port of call. If I fail again on my next round of Zeolite I probably will just have to bite the bullet and go for it though. Even if it's clearing anything it's probably good, plus like you say it's a probiotic and so presumably good for the gut and permeability too.
Did you do the glutathione before you got tested?
Tested for Mycotoxins? No. I've only ever taken it sporadically because my reactions have generally not been the best, it would always give me really bad brain fog. It was only when I was Herxing from the last round of binders that I noticed that the glutathione wasn't giving me brain fog, which felt pretty significant, like something had maybe changed in how my body was working, and surely that could only have come from the binders? Anyway that spurred me to take more glutathione, because it wasn't clearing the Herx, and more, until I realised it was probably adding to it! So from now I'll be very careful with it. But I'm still encouraged by the fact I'm responding to it a bit differently now, and I'm interested to see where I'll be at once I'm out of this current Herx.
As for the Mycotoxin test, it was just a Urine test, pretty standard, I can't recall them asking me to avoid anything.
I'm starting to think about gut permeability and general gut health now too. Perhaps we're so sensitive because we're leaking from the gut too much. It would be nice to know all this.
Agreed. I've spoken to a few doctors now who've basically said they think the gut is the root of basically all chronic CFS-type illnesses, and that even if it's not the root cause a bad gut probably wont be helping matters. Specifically things like gut dysbiosis is probably a huge factor that science still knows barely anything about, it's being linked daily to new illnesses, and we all probably have it to some degree given our diets and the extent to which we bombard ourselves with antibiotics throughout our lives. I suspect with me it's the root of my issues, and even if mould is the main one it's probably my gut environment that allowed it to flourish (& I know that in the height of my illness my gut was in an absolute state, fortunately it's a bit better now). It's definitely next on my list to properly address if I can get the mould sorted.
Did you take it orally? And was it just a worsening of your general sickness and fatigue?
Yes I've only ever taken it orally, and again it gave me really bad brain fog, plus my general aches and pains seemed a lot worse the following day. It's weird because sometimes it's done the complete opposite, very similar to glutathione in that regard that it can seem to help or hinder depending on the day. Which perhaps isn't surprising given it's a liver supplement. But my experiences with both make me think it's unlikely to be one of them that fixes me - for now I'm keen to just stick with the binders, physiologically they're pretty simple (as in they're not absorbed so probably the risk of them triggering a range of unwanted symptoms is pretty low, unlike glutatione/Ph-choline) and I feel like if there was one magic supplement that helps mould patients Nathan would probably have mentioned it?
