#Millions Missing 27 Sept 2016 - post coverage, videos, pix, tweets here

[Ben H]

Thanks, Ben - I think he was saying that, rather than do a clinical trial that could take years they hoped to repurpose existing drugs using that process to get a racing start.

Last #MM day, people here on PR worked together to produce a transcript but the sound quality was worse on this - I think people would need a cleaner recording.

Yes exactly. And thus they already have every known FDA approved drug to hand. Absolutely incredible.

Yes, I will ask around to see about a cleaner recording.


B

 

[Ben H]

Here is a link to tweet with full recording. A MUST watch.

https://twitter.com/i/web/status/780847759452573696

B

 

[BurnA]

https://twitter.com/i/web/status/780806004569174017

Senator Thom Tillis joins in the thunderclap....and gets abuse because of the name MECFS in the tweet
ETA you would think people might be appreciative that a Senator tweets and generates awareness, but no they would rather argue over a name.

 

[flybro]

I'm massively impressed by this campaign. It was easy for me, I just retweeted stuff with the #millionsmissing hashtag.

I so needed easy today too, so cheers all.

 

[Sasha]

BBC South Today coverage of the Oxford demo
http://bbc.in/2cIWNlU
Starts at 0:32 and runs until 3:30 - probably only viewable in the UK and only until tomorrow in any case.

Wow, that's amazing - top of the news on South Today.

Well done, Oxford!

 

[Yogi]

https://twitter.com/i/web/status/780868762849476609

http://www.itv.com/news/westcountry/2016-09-27/silent-shoe-protest-at-lack-of-funding-for-me/

 

[AndyPR]

There is now a YouTube link for the South Today coverage.

 

[Yogi]

Wasington DC

https://twitter.com/i/web/status/780875590027055105

https://twitter.com/i/web/status/780873942387032064

https://twitter.com/i/web/status/780877407276466177

Lansing, Michigan

https://twitter.com/i/web/status/780877956969275393

NYC, New York

https://twitter.com/i/web/status/780876040780574721

 

[Jill]

I think Ron said that a student has created an assay that cost 5 c . He had the gadget in his hand I think. It will pick up people who have certain defect. ie get a set of similar patients , then start running drugs past these cells also . I could be a tad muddled .

 

[Yogi]

This is a good one

https://twitter.com/i/web/status/780877484300574720

 

[Sasha]

Any video footage from Washington DC?

 

[Sasha]

https://twitter.com/i/web/status/780809927329779712

 

[Sasha]

Go, Nottingham!

https://twitter.com/i/web/status/780800574581252096

 

[Yogi]

first time for Chicago, Illinois

https://twitter.com/i/web/status/780884649669234688

 

[JAH]

Thanks for this thread everyone. I've been so, so sick, and unable to do anything to support this campaign. Just really appreciate all the effort and hard work- you've inspired me.

I even tweeted Lena Dunham! From Girls, who happened to post a photo of her shoes today.

https://twitter.com/i/web/status/780874290975694848

Now I have to close my eyes...

 

[Yogi]

Curated video footage of all protests

http://forums.phoenixrising.me/index.php?threads/meaction-curated-feed-of-all-protests.47071/

 

[Yogi]

Chronic Fatigue Patients Fight for Research, Funding, and Recognition
In 25 cities, patients and allies will protest under the name Millions Missing.

http://www.bostonmagazine.com/health/blog/2016/09/27/millions-missing-boston/

 

[Sushi]

@Ben Howell Do you know how we can view the video in this post?

 

[Janet Dafoe]

Thanks, Ben - I think he was saying that, rather than do a clinical trial that could take years they hoped to repurpose existing drugs using that process to get a racing start.

Last #MM day, people here on PR worked together to produce a transcript but the sound quality was worse on this - I think people would need a cleaner recording.

There's good live video that Ashley took. It's in our fb page. Can somebody put a link in here? It's in two or three parts. First is short. Second includes Montoya (note our pose with him after his talk!) . Third has Sonya, Linda, Me, Eric Gordon, and Ron.

 

[Sushi]

It's in our fb page.

This page? https://www.facebook.com/cfsresearchcenter/?hc_ref=SEARCH