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#Millions Missing 27 Sept 2016 - post coverage, videos, pix, tweets here


Senior Member
Guiding the lifeboats to safer waters.
Action for M.E. attended the Millions Missing event in Bristol today, one of a number taking place across 25 global cities.

The demonstration was attended by people with M.E., and the friends and families of people with M.E. Many more people participated by sending in a pair of shoes and a note sharing how the condition had affected them, which were displayed for members of the public to read.

One read: “I miss dancing and socialising with my friends”.

The event was organised by #MEAction following on from similarly co-ordinated events in May, which succeeded in gaining widespread global coverage. Today’s series of demonstrations took place in Bristol, London, Belfast, Cardiff, Nottingham and Oxford, as well as other cities in Europe and in the United States, Latin America, Canada and Australia.

The Bristol protest was organised by Katharine Cheston who was interviewed on BBC Radio Bristol yesterday about her experience of M.E.

The organisers of the event hope that this series of demonstrations will raise public awareness of M.E., as well as contribute to calls for increased government funding for research, clinical trials and medical education.


Senior Member
Another piece in a Dutch newspaper with some pretty cool pictures: http://www.ad.nl/den-haag/plein-vol-met-schoenen-voor-een-betere-behandeling-ziekte-me~a51e26a9/
ETA: article says 600 shoes but there were over 1000 shoes.
Google Translate said:
Square full of shoes for better treatment of illness ME

Het Plein in The Hague this afternoon was full of shoes. 600 ME patients had their sneakers, slippers and boots put down as a protest against the "denial" of their disease. Each pair of shoes was a companion who could not get through exhaustion and pain.

Tens of thousands of ME patients in the Netherlands soon hopefully get the recognition that they crave for so long. A committee of the Ministry of Health examines whether the prevailing view that ME "between the ears" should be adjusted. The health committee reports its findings are expected next spring at the Health Council.
Btw, re: the Dutch health committee, if you haven't signed the petition for it yet, please do! ME is not MUPS!
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Senior Member
An article in Norwegian media (Nettavisen) about the demonstration in Oslo.

Title: They are reported to child welfare authorities for negligence
A politician (and nurse) from the The Christian Democrats Olaug Bollestad gave a speech at the demonstration and is interviewed. She says ME must be recognised as a physiological disease. Biomarkers and more knowledge are needed. ME-patients must be met with respect. We need to make sure money for research into ME are actually spent for that purpose. She will work on how to earmark money into ME.