Hi bread, Kanga Sue, Archie, Michael M, Pearshaped, Howard, SamB, I hope I have not forgot any in this thread;
I have had a good holiday from 'D-Lactic ME' , but I have crashed again after trying protocols including Naltrexone and Probiotics to fully reverse the illness and I am back on the exclusion diet. I am getting close, but I expect that a Fecal Transplant my be the best way after a heavy antibiotics to destroy bacteria and candida infections. I have used my time to make further attacks on Somatization in ME by the NHS and psychiatrists becuause I believe that Somatization stands as a Human Rights abuse because it causes vulnerability to patients who have illness that takes longer that 2 years to diagnose, vulnerable to psychiatrists and such a dangerous diagnosis that if placed in your records will act as a warning that all of your symptoms are psychological and do not need investigation. I believe that the diagnosis of Somatization to be sheer ignorance and the poorest thinking from those who we expect the highest level and in opposition to the hypocratic oath.
Cort Johnson at Health Rising has also taken a stance against Somatiztion 'Ending the Somatization Myth, Who's Deluded Now'.
https://www.healthrising.org/blog/2019/11/11/somatization-myth-chronic-fatigue-syndrome/
Sorry not to get back to you for so long, but have continued my NHS fight by taking it to the EU Human Rights Courts, while still fighting other aspects though the Ombudsman. It has taken a lot out of me and I had ended up using alcohol to be able to cope with the stress and then fell ill again. I do not believe that I will get a fair hearing in the UK and the Ombudsman have refused to investigate anything to do with Somatization disorder which is routinely diagnosed for ME/CFS.
Excerpt of my EU Human Rights Complaint below;
My application to the European Court of Human Rights concerns 18 years of abuse of my Human Rights that started in 2001 (two years after I became ill in 1999); when I was misdiagnosed with a psychological illness (Somatization) after a two year delay in diagnosis of illness which has recently been related
to D-Lactic acidosis that was delayed in diagnosis until 2017, because of inherent discrimination caused by the Somatization diagnosis that was placed prejudicially in my records and NHS summery documents including A&E and my 'Significant Medical History' to cause further stigmatization, because Somatization has influenced all treating Doctors and Services including A&E. I cannot obtain a fair or impartial investigation from the NHS or Ombudsman; I am still unwell and this has caused three years of fighting for investigation.
I need to take my Human Rights complaint concerning Somatization disorder diagnosis and other Human Rights abuse to the European Court of Human Rights before it is too late. The Tory Government according to Liberty plan to stop fundamental Human Rights after Brexit. I have only one chance to make an appeal to the court of Human Rights. Please read my reasons below; because the NHS Trust has tried to cover up that I was diagnosed with Somatization or that it was placed in my most influential summery documents, which they are stating they now cannot find in my records as though it does not exist, so that it cannot be realized; and due to a number of replies from the Ombudsman I suspect collusion.
I now believe that the psychological diagnosis of 'Somatization disorder' stands as a Human Rights abuse in its own right, because it is unreasonable and unethical; because the parameters for diagnosis of Somatization by a Psychiatrist is based upon a lack of evidence or clinical diagnosis within 2 years; which means that a number of illnesses including MS, Bechet's disease, Systemic Lupus and D-Lactic acidosis that take on average over two years to diagnose would be negatively and prejudicially influenced by such a psychological diagnosis as Somatization; which will cause further delay in obtaining the correct diagnosis and will only add to the stress and psychological trauma of patients with such a misdiagnosis, which happened to me when I was left with traumatic symptoms and pain after the Somatization diagnosis acted to cause me long term discrimination, because it became my diagnosis for all of my systemic symptoms and illness caused by infection and D-Lactic acidosis since 2001; there is evidence that illness was caused by prescription drugs and then dismissed as Somatic.
'Somatization disorder' was placed in my clinical record and a number of summery documents for all Doctors to see as a warning that my symptoms were psychological and I was frequently dismissed without investigation or refused attendance; and I have had to make a number of complaints to the Parliamentary and Health Service Ombudsman which all relate to the Somatization diagnosis causing discrimination, which has caused Doctors to dismiss my illness and not to attend during exacerbations of D-Lactic acidosis which can cause fatality and has caused me frequent illness including breathing difficulty like suffocation, drunk like confusion, abdominal and systemic pain, muscle weakness, tachyarrhythms and systemic neurological symptoms; which were dismissed by Doctors in A&E as psychological and Somatization caused them not to make requested Blood Gas investigations, even after a number of Doctors who had got to know me had made statements that my symptoms were in fact not Somatic from 2002 (just a year after Somatization diagnosis).
I cannot afford a solicitor because the issues have become more complex due to the dishonesty of the NHS replies to my Hospital Complaints. I need urgent help because the abuse has continued from the NHS Chief Executive who have dishonestly tried to cover up the Somatization diagnosis as though it has never happened and the Ombudsman have refused to investigate any of the issues concerning Somatization; and after so many years of continued abuse is causing me further depression and making me unwell. I feel that I can no longer live under such conditions in the UK. I cannot endure any further abuse.
I have tried to reasonably make complaints to my local NHS Trust and Health Service Ombudsman for the past 3 years, but the Ombudsman has closed my case based on the dishonesty of a number of NHS Complaint Replies; for which I have only recently found evidence of misrepresentation, dishonesty and hiding information to prevent it being realized. I also cannot afford a Solicitor because the delay in diagnosis has caused me debt because I have been too unwell to work as a Sculptor; and the simple complaint about the delay in diagnosis of D-Lactic acidosis and misdiagnois of Somatization, has now become abnormally complicated due to the dishonesty employed by the NHS stop my information being realized.
I believe that the Ombudsman was complicit in leaving the Somatization diagnosis active in 2005 to cause discrimination and further delay in my diagnosis for another 12 years, because they had not taken the evidence into account of real illness in 2005 and evidence from Doctors that I was not Somatizing. They have covered this up by not investigating my Hospital Complaints concerning Somatization in 2017, after I finally gained a diagnosis. I did not feel that I would be treated and differently by the Ombudsman until I had gained a full diagnosis, but made 4 Complaints which I had asked to be seen together as evidence of the effects of Somatization, but the Ombudsman refused and investigated them separately, without investigating the effects of the Somatization diagnosis. Prior to the Somatization diagnosis I had been diagnosed with ME. which has similar neurological symptoms to D-Lactic acidosis and it is possible that a Subset of ME is caused by D-Lactic acidosis; and I had also asked for investigation of D-Lactic acidosis on behalf of many other patients with ME in the UK, but had been refused. I had also evidenced to the Ombudsman Somatization as a Human Rights abuse .
Paul.
I have had a good holiday from 'D-Lactic ME' , but I have crashed again after trying protocols including Naltrexone and Probiotics to fully reverse the illness and I am back on the exclusion diet. I am getting close, but I expect that a Fecal Transplant my be the best way after a heavy antibiotics to destroy bacteria and candida infections. I have used my time to make further attacks on Somatization in ME by the NHS and psychiatrists becuause I believe that Somatization stands as a Human Rights abuse because it causes vulnerability to patients who have illness that takes longer that 2 years to diagnose, vulnerable to psychiatrists and such a dangerous diagnosis that if placed in your records will act as a warning that all of your symptoms are psychological and do not need investigation. I believe that the diagnosis of Somatization to be sheer ignorance and the poorest thinking from those who we expect the highest level and in opposition to the hypocratic oath.
Cort Johnson at Health Rising has also taken a stance against Somatiztion 'Ending the Somatization Myth, Who's Deluded Now'.
https://www.healthrising.org/blog/2019/11/11/somatization-myth-chronic-fatigue-syndrome/
Sorry not to get back to you for so long, but have continued my NHS fight by taking it to the EU Human Rights Courts, while still fighting other aspects though the Ombudsman. It has taken a lot out of me and I had ended up using alcohol to be able to cope with the stress and then fell ill again. I do not believe that I will get a fair hearing in the UK and the Ombudsman have refused to investigate anything to do with Somatization disorder which is routinely diagnosed for ME/CFS.
Excerpt of my EU Human Rights Complaint below;
My application to the European Court of Human Rights concerns 18 years of abuse of my Human Rights that started in 2001 (two years after I became ill in 1999); when I was misdiagnosed with a psychological illness (Somatization) after a two year delay in diagnosis of illness which has recently been related
to D-Lactic acidosis that was delayed in diagnosis until 2017, because of inherent discrimination caused by the Somatization diagnosis that was placed prejudicially in my records and NHS summery documents including A&E and my 'Significant Medical History' to cause further stigmatization, because Somatization has influenced all treating Doctors and Services including A&E. I cannot obtain a fair or impartial investigation from the NHS or Ombudsman; I am still unwell and this has caused three years of fighting for investigation.
I need to take my Human Rights complaint concerning Somatization disorder diagnosis and other Human Rights abuse to the European Court of Human Rights before it is too late. The Tory Government according to Liberty plan to stop fundamental Human Rights after Brexit. I have only one chance to make an appeal to the court of Human Rights. Please read my reasons below; because the NHS Trust has tried to cover up that I was diagnosed with Somatization or that it was placed in my most influential summery documents, which they are stating they now cannot find in my records as though it does not exist, so that it cannot be realized; and due to a number of replies from the Ombudsman I suspect collusion.
I now believe that the psychological diagnosis of 'Somatization disorder' stands as a Human Rights abuse in its own right, because it is unreasonable and unethical; because the parameters for diagnosis of Somatization by a Psychiatrist is based upon a lack of evidence or clinical diagnosis within 2 years; which means that a number of illnesses including MS, Bechet's disease, Systemic Lupus and D-Lactic acidosis that take on average over two years to diagnose would be negatively and prejudicially influenced by such a psychological diagnosis as Somatization; which will cause further delay in obtaining the correct diagnosis and will only add to the stress and psychological trauma of patients with such a misdiagnosis, which happened to me when I was left with traumatic symptoms and pain after the Somatization diagnosis acted to cause me long term discrimination, because it became my diagnosis for all of my systemic symptoms and illness caused by infection and D-Lactic acidosis since 2001; there is evidence that illness was caused by prescription drugs and then dismissed as Somatic.
'Somatization disorder' was placed in my clinical record and a number of summery documents for all Doctors to see as a warning that my symptoms were psychological and I was frequently dismissed without investigation or refused attendance; and I have had to make a number of complaints to the Parliamentary and Health Service Ombudsman which all relate to the Somatization diagnosis causing discrimination, which has caused Doctors to dismiss my illness and not to attend during exacerbations of D-Lactic acidosis which can cause fatality and has caused me frequent illness including breathing difficulty like suffocation, drunk like confusion, abdominal and systemic pain, muscle weakness, tachyarrhythms and systemic neurological symptoms; which were dismissed by Doctors in A&E as psychological and Somatization caused them not to make requested Blood Gas investigations, even after a number of Doctors who had got to know me had made statements that my symptoms were in fact not Somatic from 2002 (just a year after Somatization diagnosis).
I cannot afford a solicitor because the issues have become more complex due to the dishonesty of the NHS replies to my Hospital Complaints. I need urgent help because the abuse has continued from the NHS Chief Executive who have dishonestly tried to cover up the Somatization diagnosis as though it has never happened and the Ombudsman have refused to investigate any of the issues concerning Somatization; and after so many years of continued abuse is causing me further depression and making me unwell. I feel that I can no longer live under such conditions in the UK. I cannot endure any further abuse.
I have tried to reasonably make complaints to my local NHS Trust and Health Service Ombudsman for the past 3 years, but the Ombudsman has closed my case based on the dishonesty of a number of NHS Complaint Replies; for which I have only recently found evidence of misrepresentation, dishonesty and hiding information to prevent it being realized. I also cannot afford a Solicitor because the delay in diagnosis has caused me debt because I have been too unwell to work as a Sculptor; and the simple complaint about the delay in diagnosis of D-Lactic acidosis and misdiagnois of Somatization, has now become abnormally complicated due to the dishonesty employed by the NHS stop my information being realized.
I believe that the Ombudsman was complicit in leaving the Somatization diagnosis active in 2005 to cause discrimination and further delay in my diagnosis for another 12 years, because they had not taken the evidence into account of real illness in 2005 and evidence from Doctors that I was not Somatizing. They have covered this up by not investigating my Hospital Complaints concerning Somatization in 2017, after I finally gained a diagnosis. I did not feel that I would be treated and differently by the Ombudsman until I had gained a full diagnosis, but made 4 Complaints which I had asked to be seen together as evidence of the effects of Somatization, but the Ombudsman refused and investigated them separately, without investigating the effects of the Somatization diagnosis. Prior to the Somatization diagnosis I had been diagnosed with ME. which has similar neurological symptoms to D-Lactic acidosis and it is possible that a Subset of ME is caused by D-Lactic acidosis; and I had also asked for investigation of D-Lactic acidosis on behalf of many other patients with ME in the UK, but had been refused. I had also evidenced to the Ombudsman Somatization as a Human Rights abuse .
Paul.
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